Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

There are currently no upcoming webinars scheduled.

Watch Past Webinar Recordings

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Topic(s)
Managing Your Treatment
In this webinar, Joanna Myers Casale, RD, CSO, discusses how the foods patients choose can help them cope with side effects, such as loss of appetite, nausea, vomiting, diarrhea, chewing and swallowing difficulties, and taste changes. The recording includes questions from…

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Topic(s)
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Namrata Chandhok, MD
Learn about living with High-Risk MDS, Myelodysplastic Syndromes in this session. Learn about treatments and therapies for MDS and AML in this session with Dr. Namrata S. Chandok.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Damian Laber, MD
Dr. Damian Laber anticipates all your questions about PNH, or Paroxysmal Nocturnal Hemoglobinuria, in this session recording.

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Topic(s)
Aplastic Anemia
Presenter(s)
Mark Goodman, MD
What does it mean to be diagnosed with aplastic anemia? Which treatments can be used? How do you manage the disease? Learn from Dr. Mark Goodman in the recording of this session.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Mikkael Sekeres, MD, MS
Mikkael Sekeres, MD, MS, explains Low-Risk MDS, or Myelodysplastic Syndromes, in this session. This presentation reveals answers to most questions that patients and families have.

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Topic(s)
Bone Marrow Transplant
Presenter(s)
Antonio Jimenez Jimenez, MD
Bone marrow transplantation is rigorous, so understanding the challenges from the process is essential. Learn from Dr. Antonio Jimenez Jimenez all about what patients can expect when this treatment is selected.

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Topic(s)
Living Well with Bone Marrow Failure
Presenter(s)
Amber Thomassen, APRN-BC,  AOCNP
The patient's life changes with diagnosis of any bone marrow failure disease. Learn how to adapt and thrive from Amber Thomassen, APRN-BC, AOCNP, in this session recording.

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Topic(s)
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Phil Scheinberg, MD
In this webinar, Dr. Phillip Scheinberg discusses research most relevant to patients reported over the past year on the biology and treatment on Aplastic Anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2021, European Hematology Association…

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Topic(s)
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Sandrine Niyongere, MD
Dr. Sandrine Niyongere will gives a brief MDS overview and then answer questions from participants. This interactive webinar recorded patients asking questions that are answered directly by a MDS Expert. #MDS #myelodysplasia #bloodcancer

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Topic(s)
Acute Myeloid Leukemia (AML)
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Patient panel discussions are a chance to meet some of the inspiring patients, caregivers and parents who are dealing with a bone marrow failure disease. Panel discussions are a bit different from our regular educational webinars so please plan to participate via the Q & A window…

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Mikhail Kogan, MD
Dr. Mikhail Kogan, Medical Director of the GW Center for Integrative Medicine, discusses the differences between integrative, holistic and functional medicines and how they can be used to treat patients. The end of the webinar features questions from patients in the audience.

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Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
Presenter(s)
Jadee Neff, M.D., Ph.D., FCAP
In this webinar, Dr. Jadee Neff discusses how genetic testing used in the diagnostic process, how it can help identify possible causes of disease that inform decisions regarding appropriate therapies, identify potential donors for bone marrow transplant, and potential risk for…

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Topic(s)
Aplastic Anemia
Presenter(s)
Taha Bat, MD
Patients may learn about a variety of treatments for aplastic anemia. Sometimes the preference will be a non-transplant treatment. This webinar, which includes questions from the live audience at the end, describes the types of treatments and why each may be considered.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)

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Topic(s)
Living Well with Bone Marrow Failure
Program participants will learn the basics of Medicare including how and when to enroll, the different parts of Medicare, the difference between Advantage and Supplement plans and what original Medicare does not cover, eligibility, how to avoid penalties, when to qualify for…

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Topic(s)
Bone Marrow Transplant
Presenter(s)
George Chen, MD
Has a bone marrow transplant been suggested as a treatment for aplastic anemia, MDS, or PNH? George Chen, MD, explains why your specialists may recommend this treatment, along with risks and benefits. He takes questions at the end of the recording from the attendees.

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Topic(s)
Aplastic Anemia
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
Megan Pailler, PhD, Assistant Professor of Oncology, provides clinical assessment and intervention services to oncology patients on both an inpatient and outpatient basis. Her area of focus has been the hematological services, including leukemia, lymphoma, and bone marrow…

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Ilene Weitz, MD
Satheesh Chonat, MD
These three experts discuss new and upcoming treatments for PNH, or Paroxysmal Nocturnal Hemoglobinuria.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Eunice Wang, MD
Eunice Wang, MD of Roswell Park Comprehensive Cancer Center explains the challenges of living with High-Risk MDS during this recorded session. Watch now for her presentation and the answers she gives to the attendees' questions.
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