Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

There are currently no upcoming webinars scheduled.

Watch Past Webinar Recordings

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Gail J. Roboz, M.D.
In this webinar, Dr. Gail Roboz discusses the Molecular International Prognostic Scoring System (IPSS-M) which is a newly developed risk stratification model for myelodysplastic syndromes (MDS) that expands on the original IPSS-R by including data on somatic oncogenic mutations…

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Presenter(s)
Emma Groarke, MD, FRCPath
Dr. Emma Groarke discusses research most relevant to patients reported over the past year on the biology and treatment on Aplastic Anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2022 meeting and their findings will be explained along with…

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Living Well with Bone Marrow Failure

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Topic(s)
Acute Myeloid Leukemia (AML)
Presenter(s)
Salman Fazal, MD
Dr. Salman Fazal will gives a brief AML overview and then answers questions from participants. The question and answer session is recorded here.

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Topic(s)
Myelodysplastic Syndromes (MDS)
High Risk MDS Non-Transplant Therapies Current Therapies and Clinical Trials with Dr. Prajwal Dhakal

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Learn how to manage your PNH, or paroxysmal nocturnal hemoglobinuria, symptoms and complications with the instruction from this session of the 2023 Omaha Patient and Family Hybrid Conference.

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Topic(s)
Aplastic Anemia
Presenter(s)
Krishna Gundabolu, MBBS
This session explains why and how patients may be offered a transplant to treat MDS, or myelodysplastic syndromes, or severe aplastic anemia. Dr. Gundabolu also answers questions from the live audience.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Vijaya Bhatt, MD
Dr. Vijaya Bhatt discusses Low-Risk MDS in accessible terminology during this session from the 2023 Omaha, NE, Patient and Family Hybrid Conference.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Watch this session to learn techniques for coping after the diagnosis of a bone marrow failure disease such as aplastic anemia, MDS, or PNH. The session is useful for all bone marrow failure disease patients.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Alex Nester, MD
From the 2023 Omaha Patient and Family Hybrid Conference: PNH Non-Transplant Therapies with Dr. Alex Nester. Learn symptom management and options for therapies in this session which includes questions from the audience.

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Topic(s)
Aplastic Anemia
Presenter(s)
Srinivas Tantravahi, MBBS, MRCP
Watch this session, featuring Dr. Srinivas Tantravahi, to learn more about different treatment options for patients with aplastic anemia.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
The patient panel discusses this essential topic: Barriers and Challenges to accessing care. Learn their techniques for overcoming these barriers in this session from the Patient and Family Conference.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
In this webinar, Dr. Lourdes Mendez discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and secondary AML. These studies were presented at the American Society of Hematology (ASH) 2022 meeting. Research findings are…

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Topic(s)
Aplastic Anemia
Presenter(s)
Bhavisha Patel, MD
Dr. Patel explains the challenges and successes for treating aplastic anemia when diagnosed in an older adult. The recording includes an extensive question and answer section with the virtual attendees.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Thomas G. DeLoughery, MD, MACP, FAWM
Thomas G. DeLoughery, MD, MACP, FAWM, answers questions from the live, online audience in this recording on PNH, or Paroxysmal Nocturnal Hemoglobinuria.

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Topic(s)
Aplastic Anemia
Listen to these patients with aplastic anemia describe their challenges and joys in this recent webinar recording.

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Topic(s)
Living Well with Bone Marrow Failure
Presenter(s)
Areej El-Jawahri, MD
Areej El-Jawahri, MD, and Elyse R. Park, PhD teach patients coping strategies and practical tips for easing the stress of living with a bone marrow failure disease. Patients with aplastic anemia, PNH, or MDS benefit from viewing this recorded program.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Naval Daver, MD
Dr. Naval Daver describes recent research and upcoming treatments for MDS presented at the ASCO and EHA 2022 meetings. Discover how the understanding of MDS, or Myelodysplastic Syndromes, has advanced as well as possible new treatments in this recording.

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Topic(s)
Pediatric Bone Marrow Failure Diseases
This webinar features parents and guardians of pediatric patients who have been diagnosed with a bone marrow failure disease like aplastic anemia, MDS or PNH. The panel includes parents and guardians at all stages of their journeys, from diagnosis to treatment to survivorship.

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
COVID-19
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
In this webinar, Jane Hamilton discusses the benefits of respite care for caregivers. Learn tips and tools to hire a respite worker, how to partner and share the care.
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