Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

PNH Patient Panel 2026 Webinar: P-N-H Patient Panel
The MDS Spectrum - Lower Risk MDS, Higher Risk MDS and MDS/MPN Overlap 2026 Webinar: The MDS Spectrum - Lower Risk M-D-S, Higher Risk M-D-S and M-D-S/M-P-N Overlap

Watch Past Webinar Recordings

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Topic(s)
Aplastic Anemia
Presenter(s)
Brandi Reeves, MD
In this recording, Dr. Brandi Reeves discusses the diagnosis of aplastic anemia and the treatment options available to patients.

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Topic(s)
Bone Marrow Transplant
Presenter(s)
Jeremy A. Meier, MD, PhD
In this recording, Dr. Jeremy Meier discusses the journey of a transplant (before, during and after) and potential management of GVHD.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Lacey Williams, MD
In this webinar, Dr. Lacey Williams discusses the diagnosis of High Risk MDS and treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Jose Martinez, MD, PhD
In this webinar, Dr. Jose Martinez discuesse the diagnosis of Low Risk MDS and treatment options available to patients.

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Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
Presenter(s)
Jorg Dietrich, MD, PhD
In this webinar, Dr. Jorg Dietrich will discusses the diagnosis of brain fog/chemo brain and how patients can manage this symptom of disease and its treatments.

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Topic(s)
Bone Marrow Transplant
Presenter(s)
Corey Cutler, MD, MPH, FRCPC
In this webinar, Dr. Corey Cutler discusses advances in transplant and treating GVHD, or Graft Versus Host Disease.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD
In this webinar, Dr. Srinivasa Sanikommu discusses the management of PNH and complications experienced by patients.

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Topic(s)
Aplastic Anemia
Presenter(s)
Nikolai Podoltsev, MD, PhD
In this recording, Dr. Nikolai Podoltsev discusses the diagnosis of aplastic anemia and the treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Andrew Brunner
In this recording, Dr. Andrew Brunner discusses the diagnosis of low risk MDS overlap and the treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Richard M. Stone, MD
In this recording, Dr. Richard Stone discusses the diagnosis of MDS/MPN overlap and the treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Jacqueline Garcia, MD
In this recording, Dr. Jacqueline Garcia discusses the diagnosis of high risk MDS and the treatment options available to patients.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD
In this webinar, Dr. Srinivasa Sanikommu discusses the diagnosis of PNH and current treatments available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Christin DeStefano, MD, FACP
Drew A. Helmer, MD, MS
In this webinar, Drs. Christin Destefano and Drew Helmar discuss the link between military toxic exposure and hematologic malignancies.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
In this webinar, Kylie Chen, Registered Dietitian, discusses common nutrition challenges and evidence-based strategies to improve nutritional status and learn easy nutrition swaps.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bart Scott, MD
Bart Scott, MD, explains various treatments for PNH, or Paroxysmal Nocturnal Hemoglobinuria. He discusses possible side effects and treatment methods.

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Topic(s)
Aplastic Anemia
Presenter(s)
Sally Arai, MD
In this webinar, Dr. Sally Arai discusses the latest in treating aplastic anemia and what is on the horizon.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bart Scott, MD
Learn from Dr. Bart Scott in this recorded session. Find out all the symptoms and science for a diagnosis of PNH, or Paroxysmal Nocturnal Hemoglobinuria to answer your most pressing questions.

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Judith Shizuru, MD
Dr. Judith Shizuru explains how Transplantation can be used to treat Aplastic Anemia and PNH. She discusses how GVHD, or Graft VS Host Disease, can occur after transplant as well.

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Topic(s)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Anju Goyal, MD
Satheesh Chonat, MD
Rajni Agarwal, MD
Jessie Alexander, MD
Marcin Wlodarski, MD, PhD
The Pediatric Hematology/Oncology Experts answer questions from the audience at the 2025 San Francisco Bay Area Patient and Family Conference.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Jessie Alexander, MD
Rajni Agarwal, MD
Which bone marrow failure diseases can be inherited? Why? How? Find the answers to these questions and more in this recording from the 2025 San Francisco Bay Area Patient and Family Conference.

2026 Patient Education Sponsors

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Bristol MyersSquibb Logo
Geron Logo
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Regeneron Logo
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