Discover the most recent treatments and therapies available for High-Risk MDS, or Myelodysplastic Syndromes, in this recorded session featuring Dr. Zahra Pakbaz.
Patient and Family Webinars
Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!
Register for Upcoming Patient Webinars
Sat, 07/20/2024 - 9:45am (EDT) | Low-Risk MDS |
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Sat, 07/20/2024 - 12:45pm (EDT) | Nutrition and Bone Marrow Failure |
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Watch Past Webinar Recordings
Cardiovascular Concerns after HCT from the 2024 Los Angeles Patient and Family Conference (Apr 2024)
- Presenter: June-Wha Rhee, MD
Dr. June-Wha Rhee describes the potential for cardiovascular complications after HCT, or hematopoietic stem cell transplantation, in this session from the 2024 Los Angeles Patient and Family Conference.
In this webinar, Dr. Akriti Jain will explains the latest research presented the American Society of Hematology meeting on MDS and secondary AML. This is an advanced presentation.
In this webinar, patients diagnosed with MDS discuss their patient journey and share their personal experiences.
In this webinar, patients diagnosed with PNH discuss their patient journey and share their personal experiences.
In this webinar, patients diagnosed with Aplastic Anemia discuss their patient journey and share their personal experiences.
- Presenter: Susan Kirk, MSPAS, PA-C
In this webinar, Susan Kirk discusses the latest advances in treating pediatric aplastic anemia.
- Presenter: Annie Im, MD
In this webinar, Dr. Annie Im presents the latest research and treatment of GVHD.
In this webinar, Jennie Vagher, certified genetic counselor, discusses hereditary or genetic predisposition to MDS. Jennie is an expert in rare cancer predisposition syndromes.
- Presenter: Taha Bat, MD
Dr. Taha Bat explains extravascular hemolysis, focusing on PNH (Paroxysmal Nocturnal Hemoglobinuria). This session is important for anyone affected by PNH.
- Presenter: Nathan R. Handley, MD
In this webinar, Dr. Nathan Handley discusses what is integrative medicine and how it can be part of your treatment plan. He answers audience questions in the recording.
- Presenter: Kelly Bolton, MD, PhD
- Presenter: Eytan Stein, MD
In this webinar, Drs. Kelly Bolton and Eytan Stein discuss CCUS (clonal cytopenia of undetermined significance) and the connection to MDS.
In this webinar, Jennifer Lotter explains medical terms most commonly used with a diagnosis of aplastic anemia, MDS, and PNH.
- Presenter: Jane Meier Hamilton, RN, MSN
In this webinar, Jane Hamilton discusses how and why it is important for caregivers to practice self care. The entire interactive session was recorded.
- Presenter: Swapna Thota, MD
In this webinar, Dr. Thota will discuss what caregivers can expect when their loved one is diagnosed- symptoms and side effects of disease and treatments.
Program participants will learn the basics of Medicare including how and when to enroll, the different parts of Medicare, the difference between Advantage and Supplement plans and what original Medicare does not cover, eligibility, how to avoid penalties, when to qualify for disability after a blood cancer diagnosis and which part covers infusion versus which part covers pill medications. Bonnie will also discuss what is new in 2024 for Medicare. This program is a must for anyone turning 65, over 65 and getting ready to retire, already on Medicare, or a caregiver for a loved one on Medicare.
- Presenter: Lourdes Mendez, MD, PhD
Dr. Lourdes Mendez explains High-Risk MDS, or Myelodysplastic Syndromes, in detail for patients and families from the 2023 Patient and Family Conference in New Haven, CT. Learn about this condition and treatment options by watching now.
- Presenter: Lisa Barbarotta, MSN, APRN-BC, AOCNS
Lisa Barbarotta describes techniques to help manage low blood counts in this session.
Dr. Nicolai Podoltsev describes options available for patients with PNH who could choose non-transplant treatments.
Dr. Nikolai Podoltsev presents this session for Aplastic Anemia non-transplant therapies.
Patient Education Sponsors
Our Diamond Level Sponsors:
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Our Gold Level Sponsors:
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Our Silver Level Sponsors:
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Our Bronze Level Sponsors:
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Special thanks to Abbvie and Taiho Oncology