Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Aplastic Anemia and MDS International Foundation

Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare providers, and ensures our patients’ voices are heard through awareness and advocacy.

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Quick Links: Resources for You

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The AAMDS International Foundation has been an integral part of our life since Mario’s diagnosis 13 years ago. We have gained knowledge, support and, most importantly, developed lasting relationships. We continue to depend on them to provide cutting-edge information and patient and family support.

AAMDSIF Events and Inspiration

Patient and Family Conferences»

Friday, July 19, 2024 - 2:00pm

The conference will occur over two days - Friday, July 19 from 2-7 PM ET and Saturday, July 20 from 8AM - 4 PM ET. This conference will provide...

March for Marrow and Community Fundraisers»

Thursday, August 22, 2024 - 6:30am

Join the Downtown Sykesville Connection (DSC) for a fun day of golf, food, and drinks at the beautiful Waverly Woods Golf Course (the official...

Stories of Hope»

Precious Mathabatha

As a girl in South Africa, I was healthy and active. I started college at the University of Limpopo, studying Business/Accounting in 2011...

Professional Conferences»

March 21, 2024

The biennial Symposium will bring together physicians treating these diseases; laboratory researchers studying genetics, genomics, and...

Online Library

Webinars »

June 18, 2024

In this webinar, Dr. Thomas Coates will discuss blood transfusions and the potential side effect, iron overload. You may submit questions...

Conference Materials »

Saturday, October 14, 2023 - 8:15am

On October 14, 2023, Patient and Family Hybrid Conference, in Partnership with Yale Cancer Center, was held in New Haven, CT.  Find recordings...

Research Articles »

Originally published: May 16, 2024

Paroxysmal nocturnal hemoglobinuria (PNH) is a rare, acquired disease in which blood cells lack anchored proteins that regulate the complement system...
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Together, We are Impacting the Lives of Patients and Families

"The AAMDSIF community has been a safe space to land in a turbulent and often unpredictable storm. Patients with bone marrow failure disease and their families need all the support they can get. AAMDSIF provides patients and their families with critical resources like educational webinars, conferences, and support groups."

Your donation supports our mission »