Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Aplastic Anemia and MDS International Foundation

Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare providers, and ensures our patients’ voices are heard through awareness and advocacy.

Square photo of two women with a tablet device.

Quick Links: Resources for You

Photo of family.
The AAMDS International Foundation has been an integral part of our life since Mario’s diagnosis 13 years ago. We have gained knowledge, support and, most importantly, developed lasting relationships. We continue to depend on them to provide cutting-edge information and patient and family support.

AAMDSIF Events and Inspiration

Patient and Family Conferences»

Saturday, June 22, 2024 - 8:00am

The time is now to save your seat for the 2024 Patient and Family Conference in Seattle! Plan to attend on June 22, 2024, in Seattle, WA, in...

March for Marrow»

Saturday, September 21, 2024 - 8:00am

March for Marrow 5K Run & Walk in Arlington, VA. Sunday, October 1st. For 40 years, the

Stories of Hope»

David Atherfold

Most of my working life was associated with the printing industry. I was apprenticed to printing way back in 1962. I then worked as a...

Professional Conferences»

March 21, 2024

The biennial Symposium will bring together physicians treating these diseases; laboratory researchers studying genetics, genomics, and...

Online Library

Webinars »

April 13, 2024

In this webinar, Dr. Ronald Paquette discusses the latest advances in treating aplastic anemia. This was also recorded from a live session...

Podcast Episodes »

AAMDSIF Podcast for Patients

Dr. Caroline Piatek describes the purpose and use of this new drug approval for some patients with PNH, or Paroxysmal Nocturnal Hemoglobinuria.

Conference Materials »

Saturday, October 14, 2023 - 8:15am

On October 14, 2023, Patient and Family Hybrid Conference, in Partnership with Yale Cancer Center, was held in New Haven, CT.  Find recordings...
Square photo of son and mother.

Together, We are Impacting the Lives of Patients and Families

"The AAMDSIF community has been a safe space to land in a turbulent and often unpredictable storm. Patients with bone marrow failure disease and their families need all the support they can get. AAMDSIF provides patients and their families with critical resources like educational webinars, conferences, and support groups."

Your donation supports our mission »