Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Aplastic Anemia and MDS International Foundation

Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare providers, and ensures our patients’ voices are heard through awareness and advocacy.

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Quick Links: Resources for You

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The AAMDS International Foundation has been an integral part of our life since Mario’s diagnosis 13 years ago. We have gained knowledge, support and, most importantly, developed lasting relationships. We continue to depend on them to provide cutting-edge information and patient and family support.

AAMDSIF Events and Inspiration

Patient and Family Conferences»

Registration for 2025 Patient and Family Conferences will open soon. Until then, please find recorded sessions from the 2024 conferences here.

March for Marrow and Community Fundraisers»

Raising money for AAMDSIF through fundraising events also raises awareness for rare bone marrow failure diseases. Your participation by recruiting friends, family, and coworkers spreads the word and helps fund the mission of AAMDSIF.

Stories of Hope»

Jane Biehl, PhD

I sat quietly in the oncologist’s office. The doctor confirmed that my diagnosis was MDS and calmly stated, “The average survival term for...

Professional Conferences»

November 8, 2024

This symposium will provide updates on the most recent advances in the pathophysiology, diagnosis and clinical management of bone marrow...

Online Library

Webinars »

September 26, 2024

In this webinar, Dr. Alejandro Marinos Velarde discusses the risk factors that can cause post transplant relapse along with treatment and...

Conference Materials »

Saturday, October 19, 2024 - 7:30am

Due to the impact on the Tampa, Florida community and surrounding areas by Hurricanes Helene and Milton, the AAMDSIF Tampa Patient and Family...

Research Articles »

Originally published: September 24, 2024

Introduction: Real-world studies of lower-risk myelodysplastic syndromes (LR-MDS) are limited. We evaluated treatment patterns, clinical...

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I’m proud to support AAMDSIF—will you join me?

"My name is Brianne, and 2024 marks my ninth year as a donor. Donations for AAMDSIF help patients like me living with bone marrow failure at every critical point in our journey. I'm proud to be a donor to the Foundation. I'm able to donate annually because my friends and family support me through a golf outing that I host called "Fighting PNH…Rare but Real" (pictured here). We need your help to make a difference. Join me and donate today."

Your donation supports our mission »