Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Aplastic Anemia and MDS International Foundation

Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare providers, and ensures our patients’ voices are heard through awareness and advocacy.

Square photo of two women with a tablet device.

Quick Links: Resources for You

Photo of family.
The AAMDS International Foundation has been an integral part of our life since Mario’s diagnosis 13 years ago. We have gained knowledge, support and, most importantly, developed lasting relationships. We continue to depend on them to provide cutting-edge information and patient and family support.

AAMDSIF Events and Inspiration

March for Marrow and Community Fundraisers»

Raising money for AAMDSIF through fundraising events also raises awareness for rare bone marrow failure diseases. Your participation by recruiting friends, family, and coworkers spreads the word and helps fund the mission of AAMDSIF.

Stories of Hope»

Karen Woys

I was diagnosed with MDS (RAEB-2 - Refractory Anemia with Excess Blasts) in January 2010 at the age of 55. This came after routine blood...

Professional Conferences»

March 6, 2025

2025 AAMDSIF Bone Marrow Failure Summit: Translating Science to Advance Patient Outcomes Since it was founded in 1983, AAMDSIF has...

Online Library

Webinars »

March 8, 2025

In this webinar, Dr. Amy DeZern discusses the latest in transplantation and GVHD for aplastic anemia. The presentation will include...

Conference Materials »

Saturday, March 8, 2025 - 8:30am

The 2025 Patient and Family Conference in Rockville, MD was held on March 8, 2025. Below are links to conference session recordings in full....

Research Articles »

Originally published: March 31, 2025

Hypomethylating agents (HMA) are indicated in the treatment of higher-risk myelodysplastic syndromes (MDS) and chronic myelomonocytic leukemia (CMML...

Graphic - Your Donation Helps Us Build Community Together

Your Support Powers Our Community

“With over 17 years experience supporting and advocating for patients at the Aplastic Anemia and MDS International Foundation, I've seen firsthand how important community support is when facing the challenges of a rare disease. Every contribution enables AAMDSIF to continue providing free and accessible programs that strengthen our community. Together, we can make a real difference in our community!”

Help strengthen our community today »