Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Aplastic Anemia and MDS International Foundation

Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare providers, and ensures our patients’ voices are heard through awareness and advocacy.

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Quick Links: Resources for You

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The AAMDS International Foundation has been an integral part of our life since Mario’s diagnosis 13 years ago. We have gained knowledge, support and, most importantly, developed lasting relationships. We continue to depend on them to provide cutting-edge information and patient and family support.

AAMDSIF Events and Inspiration

Patient and Family Conferences»

Saturday, June 22, 2024 - 11:00am

The time is now to save your seat for the 2024 Patient and Family Conference in Seattle! Plan to attend on June 22, 2024, in Seattle, WA, in...

March for Marrow»

Saturday, September 21, 2024 - 8:00am

March for Marrow 5K Run & Walk in Arlington, VA. Sunday, October 1st. For 40 years, the

Stories of Hope»

Nick Karavite

Here is Nick's story, as told by his mom, Pamela Karavite At 13, Nick was an active teenaged boy.  He played on a summer basketball team,...

Professional Conferences»

March 21, 2024

The biennial Symposium will bring together physicians treating these diseases; laboratory researchers studying genetics, genomics, and...

Online Library

Webinars »

May 24, 2024

In this webinar, Dr. David Dingli presents the latest research presented the American Society of Hematology meeting on Aplastic Anemia and...

Podcast Episodes »

AAMDSIF Podcast for Patients

Dr. Caroline Piatek describes the purpose and use of this new drug approval for some patients with PNH, or Paroxysmal Nocturnal Hemoglobinuria.

Conference Materials »

Saturday, October 14, 2023 - 8:15am

On October 14, 2023, Patient and Family Hybrid Conference, in Partnership with Yale Cancer Center, was held in New Haven, CT.  Find recordings...

Research Articles »

Originally published: May 16, 2024

Paroxysmal nocturnal hemoglobinuria (PNH) is a rare, acquired disease in which blood cells lack anchored proteins that regulate the complement system...
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Together, We are Impacting the Lives of Patients and Families

"The AAMDSIF community has been a safe space to land in a turbulent and often unpredictable storm. Patients with bone marrow failure disease and their families need all the support they can get. AAMDSIF provides patients and their families with critical resources like educational webinars, conferences, and support groups."

Your donation supports our mission »