Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

PNH Patient Panel 2026 Webinar: P-N-H Patient Panel
The MDS Spectrum - Lower Risk MDS, Higher Risk MDS and MDS/MPN Overlap 2026 Webinar: The MDS Spectrum - Lower Risk M-D-S, Higher Risk M-D-S and M-D-S/M-P-N Overlap

Watch Past Webinar Recordings

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Topic(s)
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Sandrine Niyongere, MD
Dr. Sandrine Niyongere will gives a brief MDS overview and then answer questions from participants. This interactive webinar recorded patients asking questions that are answered directly by a MDS Expert. #MDS #myelodysplasia #bloodcancer

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Topic(s)
Acute Myeloid Leukemia (AML)
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Patient panel discussions are a chance to meet some of the inspiring patients, caregivers and parents who are dealing with a bone marrow failure disease. Panel discussions are a bit different from our regular educational webinars so please plan to participate via the Q & A window…

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Mikhail Kogan, MD
Dr. Mikhail Kogan, Medical Director of the GW Center for Integrative Medicine, discusses the differences between integrative, holistic and functional medicines and how they can be used to treat patients. The end of the webinar features questions from patients in the audience.

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Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
Presenter(s)
Jadee Neff, M.D., Ph.D., FCAP
In this webinar, Dr. Jadee Neff discusses how genetic testing used in the diagnostic process, how it can help identify possible causes of disease that inform decisions regarding appropriate therapies, identify potential donors for bone marrow transplant, and potential risk for…

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Topic(s)
Aplastic Anemia
Presenter(s)
Taha Bat, MD
Patients may learn about a variety of treatments for aplastic anemia. Sometimes the preference will be a non-transplant treatment. This webinar, which includes questions from the live audience at the end, describes the types of treatments and why each may be considered.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)

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Topic(s)
Living Well with Bone Marrow Failure
Program participants will learn the basics of Medicare including how and when to enroll, the different parts of Medicare, the difference between Advantage and Supplement plans and what original Medicare does not cover, eligibility, how to avoid penalties, when to qualify for…

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Topic(s)
Aplastic Anemia
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
Megan Pailler, PhD, Assistant Professor of Oncology, provides clinical assessment and intervention services to oncology patients on both an inpatient and outpatient basis. Her area of focus has been the hematological services, including leukemia, lymphoma, and bone marrow…

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Topic(s)
Bone Marrow Transplant
Presenter(s)
George Chen, MD
Has a bone marrow transplant been suggested as a treatment for aplastic anemia, MDS, or PNH? George Chen, MD, explains why your specialists may recommend this treatment, along with risks and benefits. He takes questions at the end of the recording from the attendees.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Ilene Weitz, MD
Satheesh Chonat, MD
These three experts discuss new and upcoming treatments for PNH, or Paroxysmal Nocturnal Hemoglobinuria.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Eunice Wang, MD
Eunice Wang, MD of Roswell Park Comprehensive Cancer Center explains the challenges of living with High-Risk MDS during this recorded session. Watch now for her presentation and the answers she gives to the attendees' questions.

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Topic(s)
Managing Your Treatment
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bart Scott, MD
This session features Dr. Bart Scott. He describes how PNH patients can live their best lives with treatments and disease management. Dr. Scott presented this session at the 2022 Buffalo Patient and Family Conference.

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Topic(s)
Aplastic Anemia
Presenter(s)
Elizabeth Griffiths, MD
This session, recorded at the 2022 Buffalo Patient and Family Hybrid Conference, answers your many questions about aplastic anemia. The featured speaker is Dr. Elizabeth Griffiths.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Amanda Przespolewski, DO, Roswell Park Comprehensive Cancer Center explains Low-Risk MDS challenges and treatments for patients. Watch now to learn all about Low-Risk Myelodysplastic Syndromes.

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Hemant Murthy, MD
Dr. Hemant Murthy provides brief transplant overview and then answers questions from participants. He tackles common and uncommon questions during this presentation, essential for all potential transplant patients and families to learn.

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Topic(s)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Joseph Oved, MD
Dr. Joseph Oved answers questions from participants. The webinar covers most of the most pressing questions from parents about the disease and treatment of their child with bone marrow failure disease.

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Topic(s)
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Daria Babushok, MD, PhD
Dr. Daria Babushok discusses the significance of PNH clones in the diagnostic assessment of patients with bone marrow failure and recognized indications for starting complement inhibitor therapy in PNH (Paroxysmal Nocturnal Hemoglobinuria). The question and answer session is…

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Topic(s)
Bone Marrow Transplant
Pediatric Bone Marrow Failure Diseases
In this conference session, Dr. Sharma discusses what causes severe aplastic anemia, bone marrow transplants for it and other forms of treatment when bone marrow transplants aren't the best solution.

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
In this two-part conference session, Dr. Brion Randolph discusses the process of transplant as a modality for treating aplastic anemia, MDS and PNH. In the second part of the session, Dr. Salil Goorha discusses possible complications and side effects of transplant as well as best…
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