Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

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There are currently no upcoming webinars scheduled.

Watch Past Webinar Recordings

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Topic(s)
Managing Your Treatment
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bart Scott, MD
This session features Dr. Bart Scott. He describes how PNH patients can live their best lives with treatments and disease management. Dr. Scott presented this session at the 2022 Buffalo Patient and Family Conference.

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Topic(s)
Aplastic Anemia
Presenter(s)
Elizabeth Griffiths, MD
This session, recorded at the 2022 Buffalo Patient and Family Hybrid Conference, answers your many questions about aplastic anemia. The featured speaker is Dr. Elizabeth Griffiths.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Amanda Przespolewski, DO, Roswell Park Comprehensive Cancer Center explains Low-Risk MDS challenges and treatments for patients. Watch now to learn all about Low-Risk Myelodysplastic Syndromes.

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Hemant Murthy, MD
Dr. Hemant Murthy provides brief transplant overview and then answers questions from participants. He tackles common and uncommon questions during this presentation, essential for all potential transplant patients and families to learn.

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Topic(s)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Joseph Oved, MD
Dr. Joseph Oved answers questions from participants. The webinar covers most of the most pressing questions from parents about the disease and treatment of their child with bone marrow failure disease.

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Topic(s)
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Daria Babushok, MD, PhD
Dr. Daria Babushok discusses the significance of PNH clones in the diagnostic assessment of patients with bone marrow failure and recognized indications for starting complement inhibitor therapy in PNH (Paroxysmal Nocturnal Hemoglobinuria). The question and answer session is…

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Topic(s)
Bone Marrow Transplant
Pediatric Bone Marrow Failure Diseases
In this conference session, Dr. Sharma discusses what causes severe aplastic anemia, bone marrow transplants for it and other forms of treatment when bone marrow transplants aren't the best solution.

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
In this two-part conference session, Dr. Brion Randolph discusses the process of transplant as a modality for treating aplastic anemia, MDS and PNH. In the second part of the session, Dr. Salil Goorha discusses possible complications and side effects of transplant as well as best…

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Catherine Lai, MD, MPH
In this conference session, Dr. Lai discusses how to manage MDS in adults such as how it impacts a patient's life, treatment options, and additional topics.

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Topic(s)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Marcin Wlodarski, MD, PhD
In this conference session, Dr. Wlodarski discusses the basics of Pediatric MDS, the differences between MDS in children and adults, and practical examples on GATA2 and SAMD9/9L.

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Topic(s)
Bone Marrow Transplant
Pediatric Bone Marrow Failure Diseases
In this conference session, Dr. Ashkay Sharma discusses what causes severe aplastic anemia, bone marrow transplants for it and other forms of treatment when bone marrow transplants aren't the best solution.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bhumika Patel, MD
In this conference session, Dr. Patel discusses the review of a PNH diagnosis, complications, and treatments for the disease.

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Topic(s)
Aplastic Anemia
Presenter(s)
Swapna Thota, MD
In this conference session, Dr. Thota discusses what a patient may experience and expect when diagnosed with aplastic anemia and also what questions to ask your doctor.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
David Beck, MD, PhD
In this webinar, Dr. David Beck, MD, PhD and Anna Cantor, MA, MS, CGC, discuss VEXAS syndrome which is a newly discovered auto-inflammatory condition affecting older adults. VEXAS syndrome often overlaps with myelodysplastic syndromes (MDS) with autoimmune disorders (AD). The…

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Jaroslaw Maciejewski, MD, PhD
In this webinar, Dr. Jaroslaw Maciejewski discusses the recent advances in treating PNH including treatments recently approved as well as what's in the pipeline. The recording includes the question and answer section.

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Topic(s)
Acute Myeloid Leukemia (AML)
Presenter(s)
Firas El Chaer, MD
In this webinar, Dr. Firas El Chaer discusses the diagnosis of secondary AML and how treatment options are decided . Secondary acute myeloid leukemia (AML) refers to a condition in patients who have had prior myelodysplasia (MDS), myeloproliferative disorder, or aplastic anemia…

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Topic(s)
Acute Myeloid Leukemia (AML)
Presenter(s)
Elizabeth Griffiths, MD
In this webinar, Dr. Elizabeth Griffiths discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and secondary AML. These studies were presented at the American Society of Hematology (ASH) 2021 meeting in Atlanta, GA. Research…

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Topic(s)
Aplastic Anemia
Presenter(s)
Emma Groarke, MD, FRCPath
In this webinar, Dr. Emma Groarke will discuss what is clonal evolution and potential impact for patients with aplastic anemia. She will answer questions from participants at the end of the presentation.

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Topic(s)
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Managing Your Treatment
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Edward W. Cowen, M.D., M.H.Sc
In this webinar, Dr. Edward Cowen will discuss cutaneous (skin) graft v host disease (GvHD) - a common post-transplant complication. GvHD can affect different layers of the skin as well as the mouth, genitals, hair and sweat glands. Dr. Cowen will discuss diagnosis, the symptoms…

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Topic(s)
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Amer Zeidan, MBBS
In this conference session, Dr. Amer Zeidan, MD discusses understanding the management options for higher risk MDS, the evolution of MDS to AML and more.
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