AAMDSIF patient guides are complete resources, written and reviewed by recognized medical professionals who are experts in bone marrow failure disease.
Emergency Health Information Card
Not all healthcare professionals or emergency responders will understand your rare diagnosis and unique needs. The emergency health information card communicates to others what they need to know about you to help you during a medical emergency.
Your Guide to Understanding AML (Acute Myeloid Leukemia)
This patient guide on AML begins with blood basics, AML diagnosis, and then specifics on symptoms, tests, actively managing your AML-related healthcare, and treatment options.
Your Guide to Understanding Aplastic Anemia
This essential primer for patients and families on aplastic anemia covers causes, symptoms, classifications, treatments, and much more. With easy-to-read text and charts, and section review content, newly diagnosed patients and any needing to know more about aplastic anemia should request this free AAMDSIF patient guide.
Your Guide to Understanding MDS (Myelodysplastic Syndromes)
This patient guide on myelodysplastic syndromes (MDS) begins with blood basics, MDS classifications, and then specifics on symptoms, tests, actively managing your MDS-related healthcare, and treatment options. As a highly variable disease, learn about all types of MDS with Your Guide to Understanding MDS.
Your Guide to Understanding PNH (Paroxysmal Nocturnal Hemoglobinuria)
Get the facts and information you need on paroxysmal nocturnal hemoglobinuria (PNH) in this patient guide. Learn about the several types of PNH blood cells, treatments, how to take an active role in your care, and tips for living well with PNH.
Important Patient Information and Fact Sheets
Our Fact Sheets are one or two page sources of information on diverse subjects related to bone marrow failure disease as well as other important topics like transplants.
Research Summaries for Patients
AAMDSIF Research Summaries are clearly written summaries of the most recent research on rare blood cancers and bone marrow failure diseases presented at the most prestigious and important international scientific gatherings.
MDS Toolkit - Patient Information
Downloadable pages about disease basics, MDS risk level, treatment options, side effect management and communicating with your health care team. To learn more, see our MDS Toolkit page.
MDS Toolkit - Disease Management Tools
Forms you can use to keep track of your treatment information and medical care. To learn more, see our MDS Toolkit page.