Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

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There are currently no upcoming webinars scheduled.

Watch Past Webinar Recordings

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Lisa Barbarotta, MSN, APRN-BC, AOCNS
Lisa Barbarotta describes techniques to help manage low blood counts in this session.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Dr. Nicolai Podoltsev describes options available for patients with PNH who could choose non-transplant treatments.

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Topic(s)
Aplastic Anemia
Dr. Nikolai Podoltsev presents this session for Aplastic Anemia non-transplant therapies.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Dr. Mina Xu discusses the steps involved in developing an accurate diagnosis for bone marrow failure diseases.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Catherine Lai, MD, MPH
Dr. Lai discusses the latest research presented at the 2023 EHA and ASCO meetings. This is an advanced educational presentation.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Managing Your Treatment
Learn about biosimilars, biosimilar medications, and their use for bone marrow failure disease treatments from Cate Lockhart, MS, PharmD, PhD.

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Topic(s)
Aplastic Anemia
Presenter(s)
Candido E. Rivera, M.D.
Learn about treatments that may be recommended for the treatment of Aplastic Anemia, excluding bone marrow transplantation, from this Patient and Family Conference Presentation. The presenter is Candido Rivera, MD.

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Topic(s)
Aplastic Anemia
Learn about treatments that may be recommended for the treatment of Aplastic Anemia, exclduding bone marrow transplantation, from this Patient and Family Conference Presentation. The presenter is Candido Rivera, MD.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
PNH patients discuss their PNH journey by sharing their stories and answering questions from other PNH patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
The panelists are individuals who are living with MDS, or Myelodysplastic Syndromes. Watch and learn from their own experiences. #MDS #bloodcancer

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Caroline Piatek, MD
Dr. Caroline Piatek defined PNH, how PNH is diagnosed, the available treatment options, and side effect management. She also answered questions about PNH (Paroxysmal Nocturnal Hemoglobinuria.)

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Topic(s)
Aplastic Anemia
Presenter(s)
Srinivas Tantravahi, MBBS, MRCP
Srinivas Tantravahi, MBBS, MRCP (UK) of Huntsman Cancer Institute explains which non-transplant therapies may be considered for treatment of aplastic anemia.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
PAUL J. SHAMI, MD
Paul J Shami, MD of Huntsman Cancer Institute describes the types of therapies that may be used in treating MDS, or Myelodysplastic Syndromes that do not include a bone marrow transplant.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Charles J. Parker, MD
Charles Parker, MD, AB from Huntsman Cancer Institute explains various treatments for patients with PNH, or Paroxysmal Nocturnal Hemoglobinuria, in this session. Dr. Parker explains why particular therapies are preferred as options for therapies continue to advance.

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Topic(s)
Bone Marrow Transplant
Managing Your Treatment
Presenter(s)
Sagar S. Patel, MD
Sagar Patel, MD, Huntsman Cancer Institute, explains this post-transplant condition and its treatments. Watch to learn more about techniques used to prevent GVHD as well as short-term and long-term complications.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Presenter(s)
Suneet Agarwal, MD, PhD
Michael Pulsipher, MD
Suneet Agarwal, MD, PhD, from Boston Children's Hospital answered parents' questions in this session from the Patient and Family Conference in Salt Lake City, Utah. Find the answers to your most pressing question in this recording.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Watch this informative patient panel from the 2023 Patient and Family Conference in Salt Lake City, Utah. This session was led by Jill Gahlsford, RN, of Huntsman Cancer Institute.

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Topic(s)
Pediatric Bone Marrow Failure Diseases
Bone Marrow Transplant
Aplastic Anemia
Presenter(s)
Michael Pulsipher, MD
Michael Pulsipher, MD, Primary Children's Hospital, explains the details of bone marrow transplant for aplastic anemia in this presentation. He explains how doctors determine when to recommend a transplant and the method of treatment.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Ryotaro Nakamura, MD
Ryotaro Nakamura, MD, City Of Hope, explains the reasons why the specialist may recommend a bone marrow transplant for a patient with MDS. The recording includes questions from the audience.

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Topic(s)
Pediatric Bone Marrow Failure Diseases
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Presenter(s)
Suneet Agarwal, MD, PhD
Suneet Agarwal, MD, PhD from Boston's Children's Hospital provides essential information for families about inherited bone marrow failure disorders in this session from the Patient and Family Conference in Salt Lake City, UT, 2023
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