Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

Fueling Your Journey: Nutrition Support for Aplastic Anemia, MDS, and PNH 2026 Webinar: Fueling your Journey: Nutrition support for aplastic anemia, M-D-S, and P-N-H
Cord Blood Transplant Graphic for webinar: Cord Blood Transplant

Watch Past Webinar Recordings

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Topic(s)
Myelodysplastic Syndromes (MDS)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Marcin Wlodarski, MD, PhD
Dr. Marcin Wlodarski explains diagnosis and treatment for pediatric patients with MDS, or Myelodysplastic Syndromes.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Satheesh Chonat, MD
Dr. Satheesh Chonat explains the presentation of PNH, or Paroxysmal Nocturnal Hemoglobinuria, in children as well as its treatment.

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Topic(s)
Aplastic Anemia
What do you go through to treat of Aplastic Anemia? What is life like afterwards? What kind of life can you lead? Kinsey describes her journey in this recording from the 2025 San Francisco Bay Area Patient and Family Conference.

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Topic(s)
Aplastic Anemia
Presenter(s)
Anju Goyal, MD
Dr. Anju Goyal explains Aplastic Anemia and answers questions from the audience.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
David Sallman, MD
In this webinar, Dr. David Sallman discusses the diagnosis of MDS and MPN, treatment options available to patients and symptom management.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Judy talks about her PNH journey from diagnosis, treatment decisions and moving forward.

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Topic(s)
Bone Marrow Transplant
In this recording, Dr. Anurag Singh discusses transplant and potentials complications such as GVHD and treatment options. Recording includes the question-and-answer session.

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Topic(s)
Aplastic Anemia
Presenter(s)
Taha Bat, MD
In this recording, Dr. Taha Bat discusses the diagnosis of aplastic anemia along with treatment options for patients. Recording includes the question-and-answer session.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD
In this recording, Dr. Srinivasa Sanikommu discusses PNH complications that can impact a patient - extravascular hemolysis, intravascular hemolysis, Budd-Chiari Syndrome and blood clots. Recording includes the question-and-answer session.

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Topic(s)
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
In this recording, Dr. Jesus Gonazlez Lugo discusses the diagnosis of High Risk MDS and the evolution to AML along with treatment options for patients. Recording includes the question-and-answer session.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD
In this recording, Dr. Srinivasa Sanikommu discusses current thinking on PNH and therapies that are available to patients. Recording includes the question-and-answer session.

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Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
In this recording, Dr. Furha Cossor discusses living with bone marrow failure and fatigue management. Recording includes the question-and-answer session.

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Topic(s)
Acute Myeloid Leukemia (AML)
In this webinar, Drs. Fadi Haddad and Jayastu Senapati discuss the diagnosis secondary AML from MDS, treatment options available to patients and symptom management.

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Presenter(s)
Amy E. DeZern, MD, MHS
In this webinar, Dr. Amy DeZern discusses the latest in transplantation and GVHD for aplastic anemia. The presentation will include information on clinical trials available to patients considering a transplant. The recording includes the question and answer session.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Catherine Lai, MD, MPH
In this recording, Dr. Catherine Lai discusses MDS and how patients can also be diagnosed with MPN's. Her presentation discusses the treatment options available to patients and resources.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bhumika Patel, MD
In this recording, Dr. Bhumika Patel discusses what is new in PNH and current treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Brian Ball, MD
In this recording, Dr. Ball Brian discusses low risk MDS and current treatment options.

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Topic(s)
Aplastic Anemia
Living Well with Bone Marrow Failure
Debra shares both her experiences and how she maintained hope with Aplastic Anemia and its treatment.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Parveen Shiraz, MD
In this recording, Dr. Parveen Shiraz discusses transplant for MDS and potentials complications such as GVHD and treatment options.

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Topic(s)
Aplastic Anemia
Presenter(s)
Phil Scheinberg, MD
In this recording, Dr. Phillip Scheinberg discusses aplastic anemia and current treatment options available to patients.
Displaying 41 - 60 of 218

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