Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

There are currently no upcoming webinars scheduled.

Watch Past Webinar Recordings

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Ellen Kalinosky describes her turbulent journey through multiple bone marrow failure diseases in this recording from the 2024 Philadelphia Patient and Family Conference.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Keith W Pratz, MD, explains High-Risk MDS, or Myelodysplastic Syndromes, in this recorded conference session. He details risk categories as well as treatments, plus anticipated research on the disease.

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Topic(s)
Aplastic Anemia
Presenter(s)
Daria Babushok, MD, PhD
Dr. Daria Babushok explains the medical condition of Aplastic Anemia. She describes symptoms and treatments as well as recent research.

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Topic(s)
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Presenter(s)
Naveed Ali, MD
When is a bone marrow transplant offered as a treatment for MDS? Which patients are most eligible, and what are possible drawbacks? Watch this session, presented by Dr. Naveed Ali, from the 2024 Seattle Patient and Family Conference to find the answers, and much more.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Presenter(s)
Sioban Keel, MD
Which bone marrow failure conditions can be inherited? What is the likelihood of inheriting aplastic anemia, PNH, or MDS? Find out in this session that features Dr. Sioban Keel.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Rachel B. Salit, MD
Dr. Rachel Salit explains the condition, Myeloproliferative Neoplasms, along with treatment options. Her session focuses on bone marrow transplantation as a treatment for this rare disease.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Anna Halpern, MD
Dr. Anna Halpern explains how bone marrow failure diseases can advance into certain leukemias in this session from the 2024 Seattle Patient and Family Conference.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Bart Scott, MD
Dr. Bart Scott explains the diagnosis bone marrow failure diseases in this session from the 2024 Patient and Family Conference in Seattle, WA.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Anna Halpern, MD
Dr. Anna Halpern describes treatment options for Myeloproliferative Neoplasms for patients who will not be treated by a bone marrow transplant. This recording is a session from the 2024 Seattle Patient and Family Conference, ready for on-demand viewing.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Hetty Carraway, M.D.
Dr. Hetty Carraway describes the origin, diagnosis, and treatment of MDS, or Myelodysplastic Syndromes in this session. Learn which recent treatment approvals are available as well as which may be available next.

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Topic(s)
Aplastic Anemia
Presenter(s)
Sioban Keel, MD
Dr. Sioban Keel explains the diagnosis and treatment of Aplastic Anemia. Watch now to learn about this disease.

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Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
In this webinar, Dr. Thomas Coates will discuss blood transfusions and the potential side effect, iron overload. You may submit questions in advance by emailing help@aamds.org.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Presenter(s)
David Dingli, M.D., Ph.D.
In this webinar, Dr. David Dingli presents the latest research presented the American Society of Hematology meeting on Aplastic Anemia and PNH. This is an advanced presentation.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Nathan Punwani, MD, MPH
In this webinar, Dr. Nathan Punwani discusses the development of secondary AML from high risk MDS, treatment options and the quality of life impact for patients.

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Topic(s)
Aplastic Anemia
Presenter(s)
Ronald Paquette, MD
In this webinar, Dr. Ronald Paquette discusses the latest advances in treating aplastic anemia. This was also recorded from a live session at the Los Angeles Patient and Family Conference in April, 2024, with questions from the live audiences online and in-person.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Patient Ruth Cuadra describes her journey facing the challenges of aplastic anemia and MDS in this recording from the 2024 Los Angeles Patient and Family Conference.

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Topic(s)
Bone Marrow Transplant
Presenter(s)
June-Wha Rhee, MD
Dr. June-Wha Rhee describes the potential for cardiovascular complications after HCT, or hematopoietic stem cell transplantation, in this session from the 2024 Los Angeles Patient and Family Conference.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Brian Ball, MD
Learn about recent research and clinical advances for treating Low-Risk MDS, or Myelodysplastic Syndromes in this session from Dr. Brain Ball.

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Topic(s)
Managing Your Treatment
Presenter(s)
Erin Kopp, DNP
Erin Kopp explains strategies for dealing with pain and other issues for patients with bone marrow failure diseases in this session from the 2024 Los Angeles Patient and Family Conference.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Vinod Pullarkat, MD, MRCP
Dr. Vinod Pullarkat explains how the treatments and therapies for PNH, or Paroxysmal Nocturnal Hemoglobinuria, have changed and which new therapies may be available soon.
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