Careers at AAMDSIF

Professional Programs Manager

Background

Founded in 1983 by the parents of an Aplastic Anemia patient, the Aplastic Anemia and MDS International Foundation (AAMDSIF) has grown to become the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases.
AAMDSIF’s mission is to empower individuals diagnosed with aplastic anemia, MDS, and PNH and their support network by providing timely information, a community of support, improved treatment through health provider education, and hope for a cure through promotion of research. 

AAMDSIF seeks mission-driven, collaborative professionals to join our team of dedicated employees working to advance our mission and improve the quality of life of those who live with bone marrow failure diseases.

 

Position Summary

The AAMDSIF Professional Programs Manager engages with health professionals and the research community and is a key member of the program team.

This position reports to the Senior Director of Patient and Professional Programs.  The Professional Programs Manager role includes:

• Manage the annual grant application process, reporting requirements and other specific tasks related to the AAMDSIF Research Grant Program
• Manage the review and updating of research and health professional content on the AAMDSIF website 
• Support the Global PNH Patient Registry, including communication with participants, recruitment activities, and outreach to health care professionals
• Maintain AAMDSIF database of health care professionals, including database records and creation of data reports
• Manage AAMDSIF Health Professional educational events, including planning, faculty management, reporting, and onsite logistics in collaboration with the Senior Director of Patient and Professional Programs
• Support AAMDSIF Medical Advisory Board communications, projects, and annual meeting
• Coordinate AAMDSIF health professional communications, including e-blasts, e-newsletters, social media, and professional association outreach
• Develop, implement, and evaluate strategies for reaching health professionals to increase awareness of AAMDSIF resources and services

 

Responsibilities

• Manage the annual grant application process including Proposal Central administration,  reporting, grant payment notifications, record maintenance and communication with grantees to monitor research progress, publications, and career developments
• Maintain research content on the website, including the AAMDSIF Research Grant Program, reports on grantees, monthly PubMed updates, research summaries and video content
• Assist with preparation of health professional program grant submission documents and reports
• Coordinate Global PNH Patient Registry communication with Registry participants to enhance ongoing engagement 
• Manage Global PNH Patient Registry recruitment initiatives with the patient community and health care providers
• Coordinate and maintain the AAMDSIF Map of Specialists on the website 
• Develop messaging, design, and format templates for health professional program promotion and materials, and coordinate with the Communications Manager to ensure social media, email blasts, and website content reflect these templates
• Maintain health professional content on the website, including live and recorded educational programs and provider resources
• Develop and prepare Health Professional Conference registration site, materials, PowerPoints, signage, onsite logistics, faculty documentation, registration reports and evaluation reports
• Coordinate editing of recorded health professional program sessions and interviews for posting on AAMDSIF website and YouTube Channel 
• Manage AAMDSIF Medical Advisory Board membership list and website content
• Support AAMDSIF Medical Advisory Board activities, including annual meeting logistics, special projects/committees, and member communications
• Manage AAMDSIF exhibits at professional conferences 
• Support AAMDSIF awareness week and other organizational awareness campaigns
• Provide backup support as needed for patient education material order fulfillment, patient conferences, and other patient services

 

Qualifications

• Excellent relationship building and networking skills with a diverse audience of stakeholders, including patients, caregivers, health care providers, researchers, health care and research institutions, health information outlets, and partner organizations
• Health education, public health, patient advocacy, and/or patient education experience and understanding of healthcare research principles 
• Outstanding verbal and written communication skills
• Strong problem-solving, priority-setting and project management skills
• Computer proficiency in programs such as Microsoft Office and experience with data management systems preferred
• Proofreading skills with attention to detail for factual and visual consistency
• A minimum of 3 years of experience in health education, public health, health research, patient education, and/or patient advocacy 
• Minimum of a bachelor’s degree, or equivalent in work experience

 

Location & Compensation
AAMDSIF is located in Rockville, MD and the Professional Programs Manager will work in our Rockville, MD office.  The salary range for this position is $65,000 to $75,000 annually, depending on experience. AAMDSIF offers a comprehensive benefits package that includes medical, dental, and vision insurance, health savings account, life insurance, PTO, federal holidays, a 403(b) retirement plan with matching contributions, and transportation subsidy (parking or public transit).

Working Conditions
AAMDSIF is committed to promoting a healthy work-life balance for all employees.  Working conditions are normal for an office environment and the office is currently using a hybrid model (in-office and remote). Work will require some weekend and/or evening work and domestic travel.

Disclaimer
The above is intended to describe the general content of and requirements for the performance of this job. It is not to be construed as an exhaustive statement of essential functions, responsibilities, or requirements. This position is a full-time, exempt position.  The Aplastic Anemia and MDS International Foundation, a 501(c)3, nonprofit organization, is an equal opportunity employer (EOE). 

How to Apply 
Please apply by emailing your resume and cover letter to jobs@aamds.org. Applications received without a cover letter will not be considered. We look forward to receiving your application, but no phone calls please.