Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

There are currently no upcoming webinars scheduled.

Watch Past Webinar Recordings

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Bart Scott, MD
Dr. Bart Scott explains the diagnosis bone marrow failure diseases in this session from the 2024 Patient and Family Conference in Seattle, WA.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Anna Halpern, MD
Dr. Anna Halpern describes treatment options for Myeloproliferative Neoplasms for patients who will not be treated by a bone marrow transplant. This recording is a session from the 2024 Seattle Patient and Family Conference, ready for on-demand viewing.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Hetty Carraway, M.D.
Dr. Hetty Carraway describes the origin, diagnosis, and treatment of MDS, or Myelodysplastic Syndromes in this session. Learn which recent treatment approvals are available as well as which may be available next.

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Topic(s)
Aplastic Anemia
Presenter(s)
Sioban Keel, MD
Dr. Sioban Keel explains the diagnosis and treatment of Aplastic Anemia. Watch now to learn about this disease.

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Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
In this webinar, Dr. Thomas Coates will discuss blood transfusions and the potential side effect, iron overload. You may submit questions in advance by emailing help@aamds.org.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Presenter(s)
David Dingli, M.D., Ph.D.
In this webinar, Dr. David Dingli presents the latest research presented the American Society of Hematology meeting on Aplastic Anemia and PNH. This is an advanced presentation.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Nathan Punwani, MD, MPH
In this webinar, Dr. Nathan Punwani discusses the development of secondary AML from high risk MDS, treatment options and the quality of life impact for patients.

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Topic(s)
Aplastic Anemia
Presenter(s)
Ronald Paquette, MD
In this webinar, Dr. Ronald Paquette discusses the latest advances in treating aplastic anemia. This was also recorded from a live session at the Los Angeles Patient and Family Conference in April, 2024, with questions from the live audiences online and in-person.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Patient Ruth Cuadra describes her journey facing the challenges of aplastic anemia and MDS in this recording from the 2024 Los Angeles Patient and Family Conference.

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Topic(s)
Bone Marrow Transplant
Presenter(s)
Karamjeet Singh Sandhu, MD
Dr. Karamjeet Singh explains the condition of Chronic GVHD, or Graft Versus Host Disease in this recorded session from the 2024 Los Angeles Patient and Family Conference.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Zahra Pakbaz, MD
Discover the most recent treatments and therapies available for High-Risk MDS, or Myelodysplastic Syndromes, in this recorded session featuring Dr. Zahra Pakbaz.

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Topic(s)
Managing Your Treatment
Presenter(s)
Erin Kopp, DNP
Erin Kopp explains strategies for dealing with pain and other issues for patients with bone marrow failure diseases in this session from the 2024 Los Angeles Patient and Family Conference.

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Topic(s)
Bone Marrow Transplant
Presenter(s)
June-Wha Rhee, MD
Dr. June-Wha Rhee describes the potential for cardiovascular complications after HCT, or hematopoietic stem cell transplantation, in this session from the 2024 Los Angeles Patient and Family Conference.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Brian Ball, MD
Learn about recent research and clinical advances for treating Low-Risk MDS, or Myelodysplastic Syndromes in this session from Dr. Brain Ball.

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Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
Presenter(s)
Finly Zachariah, MD
Finly Zachariah explains how and why treating pain issues during treatment can be beneficial to patients in this session from the 2024 Los Angeles Patient and Family Conference Session.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Paibel Aguayo-Hiraldo, MD
Dr. Paibel Aguayo-Hiraldo, MD, anticipates your questions about inherited bone marrow failure syndromes in this recording from the 2024 Los Angeles Patient and Family Conference.

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Presenter(s)
Ryotaro Nakamura, MD
Dr. Ryotaro Nakamura explains the entire process for bone marrow transplantation in this recorded session from the 2024 Los Angeles Patient and Family Conference. Learn the potential ways transplants can help patients with aplastic anemia or MDS.

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Topic(s)
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
In this webinar, Dr. Akriti Jain will explains the latest research presented the American Society of Hematology meeting on MDS and secondary AML. This is an advanced presentation.

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Topic(s)
Myelodysplastic Syndromes (MDS)
In this webinar, patients diagnosed with MDS discuss their patient journey and share their personal experiences.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
In this webinar, patients diagnosed with PNH discuss their patient journey and share their personal experiences.
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