Patient and Family Webinars

In this webinar, Dr. Andrew Matthews discusses Low Risk MDS, current treatments and what's on the treatment horizon. Dr. Matthews took many questions from the live audience.

Pashna N. Munshi, MD, describes the strategies that bone marrow transplant teams use to prevent GVHD, or Graft VS Host Disease.  She also discusses prevalent treatments to help patients who develop this condition.

Gloria F. Gerber, MD, explains the diagnosis and treatment of PNH, or Paroxysmal Nocturnal Hemoglobinuria.  Watch this session to understand what happens to patients who develop PNH, and the options for treatment of this bone marrow failure disease.

Ellen Kalinosky describes her turbulent journey through multiple bone marrow failure diseases in this recording from the 2024 Philadelphia Patient and Family Conference.

Keith W Pratz, MD, explains High-Risk MDS, or Myelodysplastic Syndromes, in this recorded conference session. He details risk categories as well as treatments, plus anticipated research on the disease.

Dr. Daria Babushok explains the medical condition of Aplastic Anemia. She describes symptoms and treatments as well as recent research.

Which bone marrow failure conditions can be inherited?  What is the likelihood of inheriting aplastic anemia, PNH, or MDS?  Find out in this session that features Dr. Sioban Keel.

Dr. Rachel Salit explains the condition, Myeloproliferative Neoplasms, along with treatment options. Her session focuses on bone marrow transplantation as a treatment for this rare disease.
 

Dr. Anna Halpern explains how bone marrow failure diseases can advance into certain leukemias in this session from the 2024 Seattle Patient and Family Conference.

Dr. Anna Halpern describes treatment options for Myeloproliferative Neoplasms for patients who will not be treated by a bone marrow transplant. This recording is a session from the 2024 Seattle Patient and Family Conference, ready for on-demand viewing.
 

Dr. Bart Scott explains the diagnosis bone marrow failure diseases in this session from the 2024 Patient and Family Conference in Seattle, WA.

Dr. Hetty Carraway describes the origin, diagnosis, and treatment of MDS, or Myelodysplastic Syndromes in this session.  Learn which recent treatment approvals are available as well as which may be available next.
 

Dr. Sioban Keel explains the diagnosis and treatment of Aplastic Anemia.  Watch now to learn about this disease.

When is a bone marrow transplant offered as a treatment for MDS?  Which patients are most eligible, and what are possible drawbacks?  Watch this session, presented by Dr. Naveed Ali, from the 2024 Seattle Patient and Family Conference to find the answers, and much more.
 

In this webinar, Dr. Thomas Coates will discuss blood transfusions and the potential side effect, iron overload. You may submit questions in advance by emailing help@aamds.org.

In this webinar, Dr. David Dingli presents the latest research presented the American Society of Hematology meeting on Aplastic Anemia and PNH. This is an advanced presentation. 

In this webinar, Dr. Nathan Punwani discusses the development of secondary AML from high risk MDS, treatment options and the quality of life impact for patients.
 

In this webinar, Dr. Ronald Paquette discusses the latest advances in treating aplastic anemia. This was also recorded from a live session at the Los Angeles Patient and Family Conference in April, 2024, with questions from the live audiences online and in-person.

Finly Zachariah explains how and why treating pain issues during treatment can be beneficial to patients in this session from the 2024 Los Angeles Patient and Family Conference Session.