Aplastic Anemia Toolkit

Aplastic anemia Aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most… is challenging for both health care providers and patients to understand and explain. It can be overwhelming to be faced with the diagnosis of a rare disease like aplastic anemia, so it’s important to have clear descriptions of the disease information you need wherever you are in your aplastic anemia journey.

The resources in this toolkit will help you learn more about all aspects of aplastic anemia and manage your health care. There are printable patient information pages about disease basics, treatment options, managing side effects, and preparing for your medical appointments.

In addition, there are printable forms you can use to keep track of your treatment information and medical care – these include a symptom tracker, a medical appointment record, a blood transfusion blood transfusion: A procedure in which whole blood or one of its components is given to a person through an intravenous (IV) line into the bloodstream. A red blood cell transfusion or a platelet transfuson can help some patients with low blood counts. record, and a chart for your health care team.

There are also short videos about aplastic anemia and links to many other AAMDSIF resources like webinars, booklets and fact sheets, a Map of Specialists and other informative content.

If you are a patient, you can select which of the aplastic anemia toolkit resources are most useful for you as well as for your caregivers and loved ones. You can also order a 3-ring binder that includes all of the patient information pages, disease management tools and AAMDSIF booklets and fact sheets related to aplastic anemia.

If you are a health care provider, you can print out the information sheets and share the other toolkit resources you think would be best for your aplastic anemia patients based on their diagnosis and where they are in their treatment journey. You can also order a “starter kit” in an expandable file folder that includes multiple copies of all patient information pages, disease management tools and AAMDSIF booklets and fact sheets related to aplastic anemia.