Webinars | Page 3 | Aplastic Anemia & MDS International Foundation Return to top.

Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

Tue, 10/19/2021 - 2:00pm (EDT) Male Fertility Preservation for Bone Marrow Failure Patients
Mon, 10/25/2021 - 9:00am (EDT) Ask The MDS Expert
Fri, 11/05/2021 - 1:00pm (EDT) Understanding GVHD

Watch Past Webinar Recordings

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Aplastic Anemia, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Sioban Keel, M.D., is a board certified hematologist at SCCA and a UW associate professor of Hematology and Medicine.

Dr. Keel believes that excellent medical care requires a combination of up-to-date knowledge and compassionate, individualized patient care. She recognizes that excellent care requires physicians who communicate effectively with and educate each patient so that they understand their condition and can be a partner in determining the best treatment plan.

Dr. Keel earned her M.D. at the University of Minnesota. Her clinical and research interests include benign red blood cell disorders, iron metabolism, acquired aplastic anemia, congenital marrow failure syndromes, neurovisceral porphyrias, hemostasis and thrombosis disorders.

This session discusses how some bone marrow failure diseases can be inherited and what that means for patient care. 

Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS)

Dr. Bart Scott specializes in treating patients with myelodysplastic syndromes, or MDS, and myeloproliferative neoplasms, or MPN. These are a collection of diseases in which the bone marrow produces either too many or too few mature blood cells. Dr. Scott studies ways to improve treatment strategies for these patients, in particular new combinations of conditioning regimens prior to blood stem cell transplant.

This session focuses on transplant options for MDS patients. 

Topic(s): Pediatric Bone Marrow Failure Diseases, Aplastic Anemia

Dr. Kanwaldeep Mallhi is a pediatric oncologist and hematologist who specializes in nonmalignant blood disorders in children. These disorders include immunodeficiencies, bone marrow failure and metabolic errors. She is an expert in pediatric blood stem cell transplants, and her research focuses on alternative donor sources and the development of reduced-intensity conditioning regimens, which use radiation, chemotherapy or other procedures to remove diseased or failing cells prior to transplant.

Dr. Mallhi discusses severe aplastic anemia (SAA) and how it is treated based on the age and health condition(s) of the patient.

Topic(s): Aplastic Anemia

Patient panel discussions are a chance to meet some of the inspiring patients, caregivers and parents who are dealing with a bone marrow failure disease.  Panel discussions are a bit different from our regular educational webinars so please plan to participate via the Q & A window.  

This is a great recorded webinar for people diagnosed with aplastic anemia or those who are providing care to someone with the disease.  

As always, our panelists cannot provide you with medical advice and we encourage you to ask your treating hematologist or oncologist about your specific health needs. 

Topic(s): Myelodysplastic Syndromes (MDS)

Dr. Carraway does a deep dive into the most promising MDS treatments and research presented at the December 2020 ASH meeting including drugs that are in the development pipeline and will soon be available for patients. 

You can download the companion publication Research Summary - ASH 2020 MDS AML here:  https://www.aamds.org/education/patient-guides-and-fact-sheets 

Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS)

Dr. Shaffer provides an overview of the haploidentical transplant process and discusses how this treatment option might be right for some MDS patients. 

Dr. Brian Shaffer is a board certified hematologist specializing in bone marrow transplantation for leukemia, myelodysplastic syndromes (MDS), lymphoma and other bone marrow disorders.  He works with a team at Memorial Sloane Kettering Cancer Center to provide comprehensive cancer care to patients.  

Dr. Shaffer is a researcher as well as a clinician who focuses on the role of Natural Killer (NK) cells in outcomes after transplant.  NK cells are white blood cells that have anti-tumor and anti-infection properties.  Dr. Shaffer is also focused on improving outcomes for transplant patients without a matched sibling donor through his work as a principal investigator for a number of ongoing clinical trials. 

Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. Ivana Gojo, Associate Professor of Oncology at Johns Hopkins Medicine, discusses the current treatment options for patients with relapsed/refractory AML as well as some of the most promising treatment options that are in clinical trial

Topic(s): Myelodysplastic Syndromes (MDS)

Lucy Godley, MD, PhD, (UChicago Medicine) discusses the connection between heredity and MDS. While MDS is most often not inherited, there are some genetic mutations and other genetic conditions that can lead to a diagnosis of MDS.

Topic(s): Myelodysplastic Syndromes (MDS)

This recorded session includes expert clinicians, a patient advocate, and a patient for “Establishing Goals of Therapy While Managing Myelodysplastic Syndromes,” an interactive discussion of MDS and potential treatment approaches.

This hour-long educational session helps patients and caregivers develop a clearer understanding of treatment options, side effects, quality-of-life changes, and financial impacts associated with myelodysplastic syndromes (MDS), as well as improving communication with the care team to set realistic expectations for treatment and access informative resources.

This program may help patients with MDS cope with feelings of anger, stress, and anxiety when diagnosed and throughout their disease course. It also provides guidelines for maintaining open communication among patients, caregivers, and the healthcare team, all essential for managing treatment.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

Tanya M. Bass, MS, MEd, CHES®, CSE, is a national award winning sexuality educator and a subject matter expert in the areas of health equity and sexual health. She is an alumna of North Carolina Central University’s (NCCU) Department of Public Health Education, where she has served as an adjunct instructor for the past 10 years. Currently, Tanya is the lead instructor for Human Sexuality and will be defending her PhD in early 2021. 

Ms. Cook provides an overview of the concerns that patients with bone marrow failure diseases should consider related to sexual intimacy.   

Please note that the content of this webinar may not be suitable for all ages. 

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Ilene Weitz, MD (Keck Medicine, USC) talks about the latest thinking in PNH treatment and will announce a new AAMDSIF opportunity for PNH patients, family members and caregivers. 

Recorded at the Spring 2021 Patient & Family Conference. 

Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS)

Tiffany Tanaka, MD (UC San Diego Health) helps MDS patients understand the most common mutations and how genetic testing can help patients get the best possible treatment. 

Session recorded as part of the Spring 2021 Virtual Patient & Family Conference. 

Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Nathan Punwani, MD, (Cedars-Sinai) provides an overview of the treatment options for patients with higher risk MDS or who have transitioned to AML.  

Recorded during the Spring 2021 Virtual Patient & Family Conference. 

Topic(s): Bone Marrow Transplant

Ryotaro Nakamura (City of Hope) facilitates this session on the rapidly changing thinking about transplant options for patients with aplastic anemia, MDS and other bone marrow failure diseases.

Topic(s): Aplastic Anemia

Ronald Paquette, MD (Cedars-Sinai) presents an informative session on aplastic anemia and the overlapping conditions that are frequently part of the diagnosis and treatment journey. Recorded during the Spring 2021 Patient & Family Conference.

Topic(s): Bone Marrow Transplant

Dr. Cutler will discuss the many new advances in transplantation for patients with bone marrow failure diseases including treating GVHD post-transplant, the criteria by which patients are advised to consider transplant and the outcomes that patients who go to transplant can expect.  This is an especially relevant topic for those patients who are considering transplant now or in the near future. 

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, COVID-19, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. DeZern and Dr. Dioverti will provide a update on the global pandemic and the impact on patients with bone marrow failure conditions. 

This session will focus on answering the questions that patients, family members and caregivers have about vaccinations against COVID-19 for those living with bone marrow failure conditions.  

Participants will be able to submit their questions during the session via the Q & A window and we will do our best to get to all live questions.  To submit a question in advance, please send an email to help@aamds.org

Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr.DiNardio provides a review of the most important papers and studies presented at the 62nd American Society of Hematology Annual Meeting for patients with AML secondary to MDS.  We will have a follow up webinar with a direct focus on lower and intermediate risk MDS papers and studies. 

Courtney D. DiNardo is an Associate Professor, Department of Leukemia, Division of Cancer Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX.  Dr. DiNardo is a clinical researcher with a specialized focus on prognostication and personalized therapeutics for patients with myeloid malignancies. She has completed formal training in epidemiology and biostatistics, with a Master's of Science in Clinical Epidemiology (2012). She is the principal investigator for multiple novel therapeutic agents currently in clinical trial and was involved in the clinical development of venetoclax for myeloid malignancies.  Dr. DiNardo is an internationally recognized researcher and clinician. 

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. Cook gives a broad overview of bone marrow disorders including what causes them, how they are diagnosed and what treatment paths are available to patients.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

Dietician Joanna Myers Casale provides a brief overview of recommended dietary needs for bone marrow failure patients and then answers questions posed by the audience.   

Joanna Myers Casale is a registered dietician who serves as Oncology Dietician at the MD Anderson Cancer Center at Cooper in Camden, New Jersey.  She earned a B.S. in Clinical Dietetics & Nutrition from the University of Pittsburgh where she graduated magna cum laude. Ms. Casale is a board certified specialist in oncology nutrition by the Commission on Dietetic Registration. 

At the MD Anderson Cancer Center at Cooper, Ms. Casale works with hematology and oncology patients to support them during their treatment and reduce side effects. She also educates her patients on foods to support their immune system and recovery.  

She is a member of the American Society for Parenteral and Enteral Nutrition and the Academy of Nutrition and Dietetics, including the Oncology Nutrition Practices Group.  

 

 

Share with addtoany.com.