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Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

Tue, 10/19/2021 - 2:00pm (EDT) Male Fertility Preservation for Bone Marrow Failure Patients
Mon, 10/25/2021 - 9:00am (EDT) Ask The MDS Expert
Fri, 11/05/2021 - 1:00pm (EDT) Understanding GVHD

Watch Past Webinar Recordings

Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Joshua Sasine, MD, PhD discusses CAR-T cells and how they are used in transplant.  

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)

Dr. Steensma explains the relationship between Agent Orange and Myelodysplastic Syndromes in this webinar.

Recorded on October 16, 2018

Topic(s): Aplastic Anemia, Myelodysplastic Syndromes (MDS)

Dr Navada explains how healthcare professionals diagnosis and treat the overlapping conditions of aplastic anemia and MDS, outlining the decisionmaking process and key factors relevant to effective treatment. 

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)

This webinar provides the viewer with a basic understanding of myeloproliferative neoplasms (MPNs) as well as a review of how MPNs overlap with other bone marrow failure diseases, especially MDS. 

Topic(s): Bone Marrow Transplant

Steven Devine, MD walks potential donors through all of the steps to becoming a bone marrow donor from screening to donation and everything in between. This webinar was a joint project between Be the Match and AAMDSIF. 

Topic(s): Managing Your Treatment

Reducing the stress of diagnosis and treatment for rare bone marrow failure diseases is the topic of this webinar. K. Stolar explains in-depth in the full webinar, recorded 8-23-2018.

Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

This webinar discusses the diagnosis and treatment options for pedaitric AML patients and their families. 

Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr Mattison provides an overview of the two primary diagnosis tools for patients with MDS (myelodysplatic syndromes).  

Topic(s): Bone Marrow Transplant

Dr Malone explains the key issues for transplant patients during the first 100 days, focusing on Acute GVHD (graft-versus-host-disease). 

Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Dr Foran explains how blood transfusions are used for bone marrow failure disease patients and how hematologists/oncologists deal with iron overload

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

A look to the future of treatment for patients with PNH (paroxysmal nocturnal hemoglobinuria). 

Topic(s): Aplastic Anemia

Dr DeZern provides a thorough review of the three major classificiations of aplastic anemia including diagnosis, treatment and prognosis. 

Topic(s): Pediatric Bone Marrow Failure Diseases

Dr Michael Pulsipher discusses the cognitive, social and physical side effects for children dealing with bone marrow failure diseases. 

Topic(s): Acute Myeloid Leukemia (AML)

Dr Savona explains what options are available for patients with AML outside of transplant. 

Topic(s): Managing Your Treatment

All bone marrow failure disease patients and their families need to understand how to read lab results. This webinar covers all of the basics and answers some of the most common questions. 

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

This webinar discusses issues related to PNH. 

Topic(s): Acute Myeloid Leukemia (AML)

Dr. Jacqueline Garcia describes diagnostic and therapeutic options for AML, or Acute Myeloid Leukemia.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies

Dr Keng explains myelofibrosis and how it overlaps with other bone marrow failure diseases. 

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Dr Catherine Broome provides a comprehensive overview of PNH for newly diagnosed patients and their families. This is a recorded webinar so you will not be able to ask questions. If you do have questions, please send an email to help@aamds.org or use the Chat option on the bottom right of your screen. 

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