The
Aplastic Anemia
Aplastic Anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most…
and MDS International Foundation (AAMDSIF) is dedicated to amplifying Voices of Strength, Love, and Hope—a heartfelt celebration of the compassion, commitment, and unwavering support caregivers bring to the journey of living with
bone marrow failure
bone marrow failure:
A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be…
diseases. Caregiver Awareness Week is November 1–7, and we honor the individuals who stand beside patients through every challenge, remind them they are not alone, and make a meaningful difference every day.
Download the Caregivers Awareness Week graphic and share it across your social media channels.
Activities:
Take care of yourself by learning about how to care for your loved one while also practicing self-care with this informative webinar.
Connect with others who understand during our virtual support groups. Share experiences, exchange advice, and find encouragement.
Pay it forward and help the next family diagnosed. Email us to request a free information packet for your loved one’s doctor to share with patients and their families. The packet includes educational resources about the disease, treatment options, and support services available to patients and caregivers. We can send the packet directly to the doctor or mail it to you to deliver.
You matter, too. Explore these helpful caregiver tips to find ways to support your loved one while caring for your own well-being.
Other AAMDS resources to help and share: Podcast for Patients, Educational Materials, Find a Specialist webpage, Patient and Family Webinars, Patient and Family Conferences, AAMDSIF PNH Travel Grant, and the AAMDSIF Global PNH Patient Registry.
