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Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

Wed, 09/21/2022 - 4:00pm (EDT) Living with PNH: Patient Panel Discussion Living with P-N-H - a patient panel discussion
Thu, 09/29/2022 - 2:00pm (EDT) Life after Transplant: Patient Panel Discussion Life after Transplant - Patient Panel Discussion
Tue, 10/11/2022 - 2:30pm (EDT) Aplastic Anemia and Non-Transplant Therapies Graphic for Aplastic Anemia and Non-Transplant Therapies with Taha Bat, M-D
Wed, 10/12/2022 - 2:00pm (EDT) Genetic Testing for Bone Marrow Failure Diseases

Watch Past Webinar Recordings

Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Firas El Chaer discusses the diagnosis of secondary AML and how treatment options are decided. Secondary acute myeloid leukemia (AML) refers to a condition in patients who have had prior myelodysplasia (MDS), myeloproliferative disorder, or aplastic anemia that converts to myeloid leukemia. It can occur with or without treatment for those conditions, or as a result of previous exposure to a chemotherapy or radiation. Patients with secondary AML need treatment soon after diagnosis because the disease often progresses fast. This recording includes a question and answer section.

Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Elizabeth Griffiths discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and secondary AML. These studies were presented at the American Society of Hematology (ASH) 2021 meeting in Atlanta, GA. Research findings are explained along with the potential impact of this research on understanding and treating MDS and AML. This is an advanced scientific presentation.

Topic(s): Aplastic Anemia

In this webinar, Dr. Emma Groarke will discuss what is clonal evolution and potential impact for patients with aplastic anemia. She will answer questions from participants at the end of the presentation.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Bone Marrow Transplant, Living Well with Bone Marrow Failure, Managing Your Treatment

In this webinar, Dr. Edward Cowen will discuss cutaneous (skin) graft v host disease (GvHD) - a common post-transplant complication.  GvHD can affect different layers of the skin as well as the mouth, genitals, hair and sweat glands. Dr. Cowen will discuss diagnosis, the symptoms of skin GvHD and current treatment options. There will be a Q & A session at the end of the presentation. Questions can be submitted in advance to help@aamds.org

PLEASE NOTE: The slide presentation contains images that are graphic. Some of the images illustrate adult male and adult female genital GVHD which will be discussed in the presentation. This webinar is not recommended for children to participate. 

Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

In this conference session, Dr. Amer Zeidan, MD discusses understanding the management options for higher risk MDS, the evolution of MDS to AML and more.

Topic(s): Myelodysplastic Syndromes (MDS)

In this conference session, Dr. Ruben Mesa, MD discusses the different features between MDS and MPN and their overlap syndromes.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

In this conference session, Dr. Anand Karnad, MD discusses best practices for treatment of PNH.

Topic(s): Aplastic Anemia

In this conference session, Dr. Elizabeth Cowhay Barnes discusses diagnosis and treatment of aplastic anemia.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In this conference session, Dr. Krisstina Gowin DO discusses best practices when living with bone marrow failure diseases.

Topic(s): Managing Your Treatment

In this webinar, Dr. Sandeep Jain will discuss the diagnosis and treatment of ocular GvHD which occurs in 40-60% patients following an allogenic transplant. Ocular GVHD may lead to severe ocular surface disease, which can significantly diminish quality of life and restrict daily activities. He will answer questions from participants at the end of the presentation.

Topic(s): Bone Marrow Transplant

In this webinar Drs. Linda Burns and Nandita Khera will discuss the advances in transplantation for older patients with MDS. Stem cell transplants are not frequently offered to older patients with high-risk myelodysplastic syndromes (MDS). According to a study from the Blood and Marrow Transplant Clinical Trials Network (BMTCTN 1102), older patients with MDS may indeed achieve a survival benefit from stem cell transplant. At the end of the webinar, there will be a questions and answer session. Questions can be submitted in advance at help@aamds.org.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

In this webinar, Dr. Satheesh Chonat will discuss what is PNH, how PNH is diagnosed and what treatment options are available to pediatric patients.  After the presentation, Dr. Chonat will answer questions from participants. Advance questions can be submitted to help@aamds.org

Topic(s): Bone Marrow Transplant, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS)

In this discussion, Dr. Nandita Khera of Associate Professor of Mayo Clinic and Dr. Linda Burns Sr. Scientific Director of CIBMTR discuss what treatments are available to older MDS patients. 

Topic(s): Bone Marrow Transplant

This session will focus on how and when transplant is an option for bone marrow failure patients, including the risks and benefits of various approaches to transplantation.

Topic(s): Managing Your Treatment

Being a caregiver can be physically and emotionally stressful. Caregivers do not often realize their own emotional and physical health is compromised. This session will help caregivers understand the impact of caregiving and offer tips on how to maintain their own health.

Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

This session will provide a comprehensive overview of high risk MDS and the transition to MDS, from diagnosis to treatment.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

This session will provide a comprehensive overiew of PNH, from diagnosis to treatment.

Topic(s): Aplastic Anemia

This session will provide a thorough overview of aplastic anemia, from diagnosis to treatment

Topic(s): Myelodysplastic Syndromes (MDS)

This session provide a comprehensive overview of low risk myelodsyplastic syndromes (MDS).

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Andrew Brunner will present the most promising research presented at the 2021 European Hematology Association (EHA) and American Society of Clinical Oncology (ASCO) meetings for MDS.

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