Professionals | Aplastic Anemia and MDS International Foundation

Professionals

To help keep health professionals abreast of the latest news in bone marrow failure disease treatment and diagnosis, we offer live programs, webcasts and online learning modules. Most are accredited for continuing medical education requirements. We also hold small live regional meetings so that local professionals can learn from leading experts.   

Recorded Programs

A Brave New World: The Clinical Management of Bone Marrow Failure and Myeloid Malignancy in a Time of Personalized Therapy

Friday, December 8, 2017 – 12:30-4:30 pm
Marriott Marquis Atlanta, Symposium Room A703 – A704
Atlanta, GA

Satellite Symposium organized by the Cleveland Clinic Taussig Cancer Institute Leukemia Program and the Aplastic Anemia and MDS International Foundation, preceding the 59th ASH Annual Meeting.

The complimentary symposium will provide an in-depth and up-to-date review of research related to the biology, prognosis, natural history, and therapeutic management of patients with aplastic anemia, paroxysmal nocturnal hemoglobinuria (PNH), myelodysplastic syndromes (MDS), and acute myeloid leukemia (AML). The program will bring leaders in disease research and clinical practice together to explore solutions to improve the care of patients.

 

ONS Congress Satellite Symposium

 

The Spectrum of Bone Marrow Failure Diseases – Emerging Therapies and Precision Medicine Are Transforming Treatment

This breakfast symposium recorded at the 2018 ONS Annual Congress focused on recent advances in diagnosing and treating myelodysplastic syndromes and related diseases, including AML and MDS/MPN overlap, and the role of nurses in disease management and care coordination. Topics include the latest developments in precision medicine for diagnosing and treating bone marrow failure diseases; emerging treatment options for MDS, AML, and MDS/MPN overlap; symptom management; psychosocial considerations for bone marrow transplantation; quality-of-life issues to improve care of this patient population. Case studies are used to illustrate treatment decision-making and therapeutic challenges.

Advances in Treating MDS and Related Bone Marrow Failure Diseases: The Role of Nurses in Managing Therapy and Personalizing Care

This breakfast symposium recorded at the 2017 ONS Annual Congress focused on recent advances in diagnosing and treating myelodysplastic syndromes and related diseases, including AML and MDS/MPN overlap, and the role of nurses in disease management. Topics include the latest information on the pathophysiology and differential diagnosis of MDS and related bone marrow failure diseases, risk and prognostic scoring systems, treatment options for low-risk and high-risk MDS, AML, and MDS/MPN overlap, and ways to address psychosocial and quality-of-life issues to improve care of this patient population. Case studies are used to illustrate diagnostic and therapeutic challenges.

 

International Scientific Symposium 2018
March 22 – 23, 2018

AAMDSIF sponsored its Sixth International Bone Marrow Failure Disease Scientific Symposium in March 2018, in Rockville, Maryland. The Symposium brought together physicians treating these diseases, laboratory researchers studying the genetics, genomics, and pathophysiology of bone marrow failure, and clinical investigators to discuss current areas of consensus and controversy, share recent research results, and identify the highest-priority directions for basic and clinical research to advance the field.

 

MDS/MPN Overlap Disorders: The Challenges of Diagnosing and Treating

This activity is jointly provided by Medical Education Resources and the Aplastic Anemia and MDS International Foundation. Practitioners participating in this program will be able to select the most appropriate and efficacious treatment for patients with MDS/MPN from this in-depth review and analysis of recent research on the impact of molecular mutations, updated diagnostic tools, and new therapeutic options to improve outcomes.

Speakers:

  • David Steensma, MD, Attending Physician, Hematologic Oncology, Dana-Farber Cancer Institute
    Attending Physician, Medicine, Brigham And Women's Hospital, Associate Professor, Medicine, Harvard Medical School
  • Katherine Edmonds, ARNP, Adult Leukemia Program, Dana-Farber Cancer Institute
  • Robert Hasserjian, MD, Associate Pathologist, Massachusetts General Hospital, Associate Professor of Pathology, Harvard Medical School

 

The Diagnosis of Myelodysplastic Syndromes: Difficulties, Dilemmas, and Decisions

This program focuses on the latest developments in research around the pathology of MDS, and how those findings relate to clinical care of patients. Through case study examples, the speakers discuss common scenarios and potential difficulties encountered by clinicians seeking to diagnose potential MDS cases, and provide treatment and prognostic information to current patients. 

Speakers:

  • Vu Duong, MD, Assistant Professor of Medicine, University of Maryland Greenebaum Comprehensive Cancer Center and School of Medicine; 
  • Carole Miller, MD, Cancer Center Director at Ascension Health St. Agnes Cancer Center in Baltimore, MD
  • Zeba Singh, MD, Associate Professor of Pathology, University of Maryland School of Medicine

 

Assessing Anemia in Older Patients and When to Suspect MDS

AAMDSIF is committed to providing quality and timely educational activities for community hematologists/oncologists, gerontologists, and primary care physicians. This webcast is a studio-based discussion between an academic-based hematologist/oncologist specializing in MDS and a community-based oncologist. These two professionals discuss cases to review the evaluation and work-up of anemia and cytopenias seen in general practice and to review symptoms, clinical presentations, treatment options and post-diagnosis issues common within MDS. 

Speakers:

  • B. Douglas Smith, MD, Professor of Oncology, Johns Hopkins University School of Medicine
  • Eric J. Seifter, MD, Associate Professor of Medicine and Oncology, 
    Johns Hopkins University School of Medicine

 

Myelodysplastic Syndromes in Older Adults: Treatment Options and Support Strategies

Sponsored jointly by the National Marrow Donor Program®/Be The Match® and the Aplastic Anemia and MDS International Foundation.

Allogeneic hematopoietic cell transplantation (HCT) is the only therapy for MDS with curative potential. Of the estimated 15,000 to 20,000 US patients diagnosed annually, >80% are >age 70 years. Care of patients with MDS requires understanding the disease in the context of an older population, and tailoring approaches to both disease risk and patient suitability for therapy.

In this recorded continuing education webinar a physician and nurse practitioner will present current research and case examples to illustrate treatment options and common experiences for older patients with MDS and their families. The goal of this activity is to ensure that members of a multidisciplinary team have the knowledge and skills necessary to apply the standards of care to their practice and healthcare setting for patients with MDS. It is accredited for hematology/oncology nurses; hematology, oncology social workers at intermediate to advanced levels of practice, experience and licensure; and clinical laboratory professionals.

Speakers:

  • Marlise R. Luskin, MD, MSCE, Physician in Dana-Farber’s Adult Leukemia program
  • Ilene Galinsky, NP, Senior Program Research Nurse Practitioner for the Adult Leukemia Program with the Dana Farber Cancer Institute (DFCI) and Brigham and Women’s Hospital /BWH in Boston, Massachusetts

 

Children and Adults with Severe Aplastic Anemia: Treatment Options, Care and Support

Sponsored jointly by the National Marrow Donor Program®/Be The Match® and the Aplastic Anemia and MDS International Foundation.

In this continuing education webinar, a physician and social worker presented current research and case examples to illustrate treatment options and common experiences for patients with aplastic anemia and their families. The goal of this activity is to ensure that members of a multidisciplinary team have the knowledge and skills necessary to apply the standards of care to their practice and healthcare setting for patients with severe aplastic anemia.  This program is accredited for nurses, social workers and medical technologists.

•    Watch the program.

Speakers:

  • David A Margolis, MD, Program Director, Bone Marrow Transplant, Children's Hospital of Wisconsin and Professor, The Medical College of Wisconsin
  • Sheila Dodds, MSW, Pediatric Social Worker, Bone Marrow Transplant Program, Children’s Hospital of Wisconsin

 

Treatment Decision-Making Through the Spectrum of MDS

Explaining MDS to patients can be challenging for healthcare professionals. The disease process is complex, the prognosis variable, and treatment options must be tailored for each patient. This series of three continuing education programs - one each for low risk MDS, high risk MDS, and stem cell transplantation - focuses on effective communication to ensure optimal outcomes when managing patients with MDS.

The target audience for these programs is oncologists, hematologists, oncology nurses, and other healthcare providers who diagnose and manage MDS patients.