eBulletin / eInsider (story of hope) | Aplastic Anemia & MDS International Foundation

eBulletin / eInsider (story of hope)

Young Minnesotan Opens Up About Dual Diagnosis and Emphasizes Emotional Wellness

Person's Name: 
Sarah Nesheim

 

 

My Diagnosis

In the summer of 2014 I noticed ongoing bruising all over my body. At first, I thought it might have to do with my diet (low iron), but soon I noticed a new kind of mark on my skin, almost having a bulls-eye appearance. By end of summer I knew I had to do something about this.

Faith and a fully matched sibling help beat back severe aplastic anemia

Person's Name: 
Valerie Diaz

In October 2017 I was hospitalized for extreme dizziness, vomiting, fatigue, bruising, and shortness of breath. As an active, healthy person, having these symptoms was worrisome. My husband took me to the emergency room, where they performed a series of tests. We waited for my results, and a nurse looked at me and asked if I realized how pale I looked, and neither my husband or I had even noticed.

Bone Marrow Diseases: 

Paige Cranwell: "My Half-Match Miracle"

Person's Name: 
Paige Cranwell

In May 2017, life was good and I was “living the dream”. I had been working full time for about a year after graduating from the University of Kentucky. I was living in Columbus, Ohio, working for an organization that supports children with childhood cancer and catastrophic disease. Everything was on track for my future.

I started to feel sick. At first it seemed like flu-like symptoms of fatigue, racing heartbeat, lack of energy and some bruising that just wouldn’t go away.

Bone Marrow Diseases: 

Ron Carlsen Beats Early Onset MDS; Grapples with Post-Transplant GVHD

Person's Name: 
Ron Carlsen

In August 2004, I was 42 and going through the annual checkup routine. I felt fine and had no reason to suspect anything was starting to go wrong. I was called back twice to have more labs done.

Aplastic Anemia and Treatment-Related Complications Influence Career Choice

Person's Name: 
Bridget Daw

In December 1992, I was an 8-year-old, halfway through second grade, when strep throat and a urinary tract infection just wouldn’t go away. A late-night trip to the emergency room revealed dangerously low levels of platelets, which explained this and the severe bruising all over my body and rashes on my joints. My platelets were under 2,000 and I was supposed to have 250,000.

Bone Marrow Diseases: 

Patient Trusts Her Instincts in Finding the Right Treatment

Person's Name: 
Sherry Pratt

I never thought I would be diagnosed with cancer. I taught exercise classes, walked every day, ate a Mediterranean diet, and paid attention to products I used on my skin.  I became a certified health coach and taught healthy living classes.  

Bone Marrow Diseases: 

I Was Alone With MDS Until I Connected With Others on Social Media

Person's Name: 
Jane Biehl, PhD

I sat quietly in the oncologist’s office. The doctor confirmed that my diagnosis was MDS and calmly stated, “The average survival term for your kind of MDS is 104 months.” I felt the room spin.

 

I never have been healthy, and suffered from upper respiratory infections all my life. Kidney and bladder infections plagued me all through college, and I have had a severe hearing loss since birth. I had been diagnosed in 1986 with an IGA deficiency, meaning that I had insufficient immunity although I was treated symptomatically with antibiotics when needed.

 

Bone Marrow Diseases: 

Confronting Challenges in Finding Matches for Multiracial Patients

Person's Name: 
Krissy Kobata

34-year-old Krissy Kobata is a passionate patient and advocate/activist. Diagnosed in 2008 with MDS, she’s the epitome of resilience as she has waited for years to find a matched donor. She has devoted this time to helping other patients by enlarging the Be The Match® bone marrow registry.

Bone Marrow Diseases: