Disease Won't Run My Life
Person's Name:
Gloria Winter
Bone Marrow Disease(s):
Content source:
IMPORTANT: UPDATED Guidance for Patients on COVID-19 including Vaccine Information»
I believe that a story is the shortest distance between two people. While this is my story, it is not just mine, and I did not do any of this alone. In April 1983, my husband Joe and I were 25 years old and attending to the required pre-marital blood work. Next thing we knew, we were sitting in a doctor’s office because my blood counts were abnormally low. They told us there was something wrong, but they didn’t know what it was.
“I was fortunate to have a medical background, because with it I was able to help diagnose myself with
“Faith, hope and endurance are imperative to living a life full of possibilities with PNH,” says Emma Pritchett, who has lived with
My journey with MDS (
For so long, I have been quietly racking up the years - 33 in all - since my diagnosis and transplant. I have done so well and had so few problems that I felt I had nothing to share. But as the years have gone by, I have begun to realize how few of us long-term survivors there are and how truly blessed I am to just be alive! By reading the comments when I post a milestone birthday, I am overwhelmed with the response from others who have walked this path, who are just beginning the journey, or are fearful for their loved one’s future.
My name is Yajaira and I am 24-years-old, and live in Victorville, California. It has been about two years since I was diagnosed with
On July 4th, 2014, my 23-year-old son, Jordan, coming from the Washington DC suburbs, visited us (Barnett and Nelda Brown) in La Place, Louisiana. He wasn’t feeling well, so I convinced him to go to urgent care before leaving to return home. He was given antibiotics because he appeared to have three cysts in his left arm. He made a second trip to urgent care in Virginia to have the cysts lanced and was given a blood test during the procedure.
In February 2012, I was diagnosed with myelodysplastic syndrome (MDS), a disease that has no cure except for a stem cell transplant. Because I was in my mid-70s, a bone marrow transplant wasn’t the best option.
"I discovered that I might not live to my 40th birthday."