eBulletin / eInsider (story of hope)
Biting into the Elephant
I believe that a story is the shortest distance between two people. While this is my story, it is not just mine, and I did not do any of this alone. In April 1983, my husband Joe and I were 25 years old and attending to the required pre-marital blood work. Next thing we knew, we were sitting in a doctor’s office because my blood counts were abnormally low. They told us there was something wrong, but they didn’t know what it was.
Doctor Helps Determine Her Own Aplastic Anemia and PNH Diagnosis
A Story of Hope
Since my diagnosis, my mission has been to fight back
Aplastic Anemia Patient Meets Physician Who Treated Her 30 Years Ago
For so long, I have been quietly racking up the years - 33 in all - since my diagnosis and transplant. I have done so well and had so few problems that I felt I had nothing to share. But as the years have gone by, I have begun to realize how few of us long-term survivors there are and how truly blessed I am to just be alive! By reading the comments when I post a milestone birthday, I am overwhelmed with the response from others who have walked this path, who are just beginning the journey, or are fearful for their loved one’s future.
Young Aplastic Anemia Patient Grateful That Life is Returning to Normal
Family’s Support Spurs Recovery
On July 4th, 2014, my 23-year-old son, Jordan, coming from the Washington DC suburbs, visited us (Barnett and Nelda Brown) in La Place, Louisiana. He wasn’t feeling well, so I convinced him to go to urgent care before leaving to return home. He was given antibiotics because he appeared to have three cysts in his left arm. He made a second trip to urgent care in Virginia to have the cysts lanced and was given a blood test during the procedure.
A Remarkable Response in a Clinical Trial
In February 2012, I was diagnosed with myelodysplastic syndrome (MDS), a disease that has no cure except for a stem cell transplant. Because I was in my mid-70s, a bone marrow transplant wasn’t the best option.
Bridget Casey – PNH Survivor and Scholarship Recipient Uses Her Faith To Help Others
"I discovered that I might not live to my 40th birthday."