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aplastic anemia

2021 March for Marrow California - Virtual Walk and 5K

Help us continue to support the patients served by AAMDSIF by registering to run in our 2021 Virtual Walk and 5K or simply by donating. We look forward to walking and running with you the week of April 24 - May 1, 2021, and continuing the celebration of the brave patients and families that are fighting

Event Date: 
Fri, 04/23/2021 - 8:00pm (EDT) to Fri, 04/30/2021 - 8:00pm (EDT)
Community Event Type: 

Epigenetic Aging and Hematopoietic Cell Transplantation in Patients With Severe Aplastic Anemia

Alsaggaf R, Katta S, Wang T, Hicks BD, Zhu B, Spellman SR, Lee SJ, Horvath S, Gadalla SM
Primary Author: 
Alsaggaf R
Journal Title: 
Transplantation and Cellular Therapy
Original Publication Date: 
Apr 2021

Cellular aging in hematopoietic cell transplantation (HCT) is important in the context of immune reconstitution and age-related complications. Recently, several DNA-methylation (DNAm)-based biomarkers of aging known as "epigenetic clocks" have been introduced as novel tools to predict cellular age.

Spring 2021 Virtual Patient & Family Conference

AAMDSIF Spring Virtual Patient & Family Conference was held online on Saturday, April 10, 2021. Below please find links to all of the recorded sessions and presentation materials. 

Event Date: 
Sat, 04/10/2021 - 11:00am (EDT)
Conference Event Type: 

Transplant Virtual Support Group

Event Date: 
Wed, 05/12/2021 - 5:00pm (EDT)

AAMDSIF is pleased to announce that we will host a support group for patients who have been treated with a transplant, or who are considering having a transplant. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants. 

Clinical and prognostic significance of small paroxysmal nocturnal hemoglobinuria clones in myelodysplastic syndrome and aplastic anemia

Fattizzo B, Ireland R, Dunlop A, Yallop D, Kassam S, Large J, Gandhi S, Muus P, Manogaran C, Sanchez K, Consonni D, Barcellini W, Mufti GJ, Marsh JCW, Kulasekararaj AG
Primary Author: 
Fattizzo B
Journal Title: 
Original Publication Date: 
Mar 2021

In this large single-centre study, we report high prevalence (25%) of, small (<10%) and very small (<1%),

Pack your Bags and Head to the Hospital - Hailey's Story

Person's Name: 
Hailey Texeira

“You will need to pack your bags and head to Children’s Hospital, we think it’s leukemia.”

Only a few days after a Complete Blood Count, Christy, Hailey's mom, heard these words from Hailey’s doctor. Hailey had just started kindergarten.

At summer dance camp, Hailey won the award for “Most Tired.” That puzzled her mom. As kindergarten progressed, Christy noticed the fatigue. She assumed that kindergarten must be exhausting for children. Christmas was approaching when she noticed Hailey’s bruises, in odd places on her body.

Bone Marrow Diseases: 
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