Aplastic Anemia
Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
11th AAMDSIF and Fred Hutch Cancer Center Conference on Aplastic Anemia, MDS/AML, MPN and PNH 9:05 AM PT - 4:15 PM PT AAMDSIF and Fred Hutch Cancer Center are pleased to present the 11th Patient Conference, focusing on Aplastic Anemia, MDS, MPN, and PNH. After the presentations…
Is a Transplant Right for me? - Making Decisions
Topic(s)
Bone Marrow Transplant
During this webinar, Dr. Joseph Pidala will discuss how patients and the medical team work together to make transplant decisions. After the presentation, there will be a panel Q & A session. Questions can be submitted in advance to help@aamds.org.
Treatment and Management of Aplastic Anemia and PNH
Topic(s)
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
In this webinar, Catherine Bryne and Kathryn Herricks will discuss the treatment and management of aplastic anemia and PNH. At the end of the presentation, there will be a question-and-answer session. Questions can be submitted in advance at help@aamds.org.
Good job, Good health, Good life. Then: Aplastic Anemia, Followed by PNH. Daniel’s Story
In 2009, Daniel had a good job in accounting in Sydney, Australia. He had a structured, organized, healthy lifestyle. He had a devoted partner (whom he later married) and was studying for the Chartered Accountancy qualification. He rode his bike to work and played soccer. He was planning a good life ahead.
One day at the office, the receptionist pinched his arm. The next day, he saw a huge welt in the same spot. Because a colleague urged him to get it checked out, he did.
Health-Related Quality of Life, AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium
Presenter(s)
Namrata Chandhok, MD
Thomas LeBlanc, MD, MA
Fabio Efficace, PhD
Alison R. Kavanaugh
Pamela C. Egan, MD
Wil L. Santivasi, MD
The session was recorded at the AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium, Co-Chairs Namrata Chandhok, MD, and Thomas LeBlanc, MD, MA Topics and speakers included: How can we measure quality of life in MDS, to inform interventions? - Fabio Efficace, PhD…
Transplantation for Bone Marrow Failure, AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium
Topic(s)
Bone Marrow Transplant
Presenter(s)
Richard Childs, MD
Amy E. DeZern, MD, MHS
Neal Young, MD
Nicolaus Kroger, MD
The session was recorded at the AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium, Co-Chairs Rick Childs, MD, and Amy DeZern, MD, MHS. Session topics included: Two options for patients are better than one: - Upfront alternative transplant for SAA - Amy DeZern…
Non-Transplant Therapies for Marrow Failure, AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium
Presenter(s)
Carlos DeCastro, MD
Phil Scheinberg, MD
Regis Peffault de Latour, MD, PhD
Julian Sevilla, MD, PhD
Kasiani Myers, MD
Suneet Agarwal, MD, PhD
This session was presented at the AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium; Co-Chairs Carlos DeCastro, MD, and Phil Scheinberg, MD, PhD. Session topics included: -Androgens, alemtuzumab, anti-cytokine therapies (anti-IL2R, anti-IFN gamma), daratumumab…
Clonality in Acquired Bone Marrow Failure, PNH, and VEXAS, AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium
Topic(s)
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Emma Groarke, MD, FRCPath
Yoshitaka Zaimoku, MD, PhD
Hiroki Mizumaki, MD
Martina Fiumara, PhD
Austin Kulasekararaj, MBBS, MD
Bhavisha Patel, MD
Thibault Comont, MD
This session, Clonality in Acquired Bone Marrow Failure, PNH, and VEXAS, was recorded at the AAMDSIF 2026 International Scientific Symposium; session Co-Chairs Emma Groarke, MD, and Yoshitaka Zaimoku, MD, PhD Session topics and speakers included: -Insights of PNH using single…
Urge Your U.S. Senators to Support the Bipartisan Letter to Increase Medical Research Accounts in the DoD
Original Publication Date
Article Source
Take Action
DEADLINE MAY 8 Senators Roger Wicker (R-MS) and Dick Durbin (D-IL) are circulating a bipartisan letter to the Senate in support of increased funding for the Department of Defense’s medical research accounts, including CDMRP and BMFRP. You can help by asking Your Senators to Sign…