paroxysmal nocturnal hemoglobinuria (PNH) | Aplastic Anemia and MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Find Out More:

3rd Annual Rare but Real PNH Golf Tournament

Come out for a good time, a little golf, and many opportunities to take home money and prizes and help Breezy raise money for PNH. Over the last two years we have raised over $16,000 for PNH research and hope to continue this trend! Bring on the sun and the fun!

Event Date: 
Sat, 08/25/2018 - 10:00am
Community Event Type: 

2nd Annual Donna Box Memorial Golf Tournament

Join us for the 2nd Annual Donna Box Memorial Golf Tournament!

  • 8:30am Shotgun Start
  • $100 per golfer
  • 18 hole scramble, cart, range balls, continental breakfast and lunch
  • 1st, 2nd, and 3rd place prizes
  • Door prizes
  • Silent Auction
  • 50/50 Raffles

Please email donnaboxmemorial@gmail.com with questions or registration information.
Please register by August 3, 2018.

Event Date: 
Mon, 08/20/2018 - 8:30am
Community Event Type: 

2018 March for Marrow Walk Miami

Join us for a morning of fun, remembrance, and awareness at our 3rd annual March for Marrow Walk Miami in memory of Jennifer Zighelboim. This year we move to a new walk location - Historic Virginia Key Beach Park! Festivities include a food truck and live music, as well as a day of fun connecting with fellow patients and families affected by

Event Date: 
Sat, 05/12/2018 -
10:00am to 1:00pm
Community Event Type: 

Concurrent treatment of aplastic anemia/Paroxysmal Nocturnal Hemoglobinuria syndrome with immunosuppressive therapy and eculizumab: a UK experience

Author(s): 
Griffin M, Kulasekararaj A, Gandhi S, Munir T, Richards S, Arnold L, Benson-Quarm N, Copeland N, Duggins I, Riley K, Hillmen P, Marsh J, Hill A
Primary Author: 
Griffin M
Journal Title: 
Haematologica
Original Publication Date: 
Mar 2018

2018 Tartan Trailblazers March for Marrow Walk Detroit

Join us for a morning of fun, remembrance, and awareness at our 3rd annual March for Marrow walk Detroit. Registration for the walk will begin at the pavilion. The walk will proceed along the scenic paths of the park. Festivities include a Moment of Remembrance, silent auction,

Event Date: 
Sun, 06/03/2018 -
10:00am to 1:30pm
Community Event Type: 

2018 March for Marrow Walk Milwaukee

Join us for a morning of fun, remembrance, and awareness at our 3rd annual March for Marrow Walk Milwaukee. The walk will proceed along the grounds of the high school and the track. Festivities include a Moment of Remembrance, silent auction, Delete Blood Cancer

Event Date: 
Sat, 05/05/2018 -
9:00am to 12:00pm
Community Event Type: