paroxysmal nocturnal hemoglobinuria (PNH) | Aplastic Anemia & MDS International Foundation Return to top.

paroxysmal nocturnal hemoglobinuria (PNH)

2021 March for Marrow California - Virtual Walk and 5K

Help us continue to support the patients served by AAMDSIF by registering to run in our 2021 Virtual Walk and 5K or simply by donating. We look forward to walking and running with you the week of April 24 - May 1, 2021, and continuing the celebration of the brave patients and families that are fighting

Event Date: 
Fri, 04/23/2021 - 8:00pm (EDT) to Fri, 04/30/2021 - 8:00pm (EDT)
Community Event Type: 

Virtual March for Marrow 5K Run & Walk Washington DC 2021

Patients, family members, friends and advocates, sign up, tell your story, create a team, and set a goal to support AAMDSIF!

Anywhere you and your friends choose to, walk, run, cycle – in a park, through your neighborhood, or on a treadmill – anytime leading up to or during the day of the 24th.

Event Date: 
Sun, 10/24/2021 - 10:00am (EDT)
Community Event Type: 

March for Marrow Walk for PNH - NYC/NJ 2021

Join us in Verona Park, NJ on October 17th for a day of remembrance and awareness in celebration of the 15th Annual Walk for PNH.

The Walk for PNH is the nation's largest event to raise awareness and funds for PNH education and research. This inspiring event calls on participants of all ages and abilities to join in the fight against PNH.

Event Date: 
Sun, 10/17/2021 - 9:00am (EDT)
Community Event Type: 

Dr. Swapna Thota

Thota, Swapna
Assistant Professor of Medicine
University of Tennessee

As a physician caring for patients with acute leukemias and related disorders, I have a sustained focus on translational research in hematologic malignancies. Genomic sequencing technology revolutionized our understanding of cancer biology. My research focuses on exploring the dynamic changes of tumor immune microenvironment with clonal evolution of myeloid malignancies. Targeting inflammaging of

Teen Support Group for Bone Marrow Failure Diseases

Event Date: 
Thu, 08/26/2021 - 5:30pm (EDT)

AAMDSIF is pleased to announce that we will host a support group for patients and siblings ages 13-17. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants. Parent/Guardian permission is required to participate in the group. 

Constandina Herbert, MN, RN, BMTCN

Herbert, Constandina
Nursing Supervisor
Fred Hutchinson Cancer Research Center

Constandina Herbert, MN, RN, BMTCN is the Nursing Supervisor, Blood and Marrow Transplant Clinic at the Seattle Cancer Care Alliance/Fred Hutchinson Cancer Research Center. Ms. Herbert works with patients, families, and caregivers as they navigate the transplant process. 

Share with addtoany.com.