paroxysmal nocturnal hemoglobinuria (PNH) | Aplastic Anemia and MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

2019 March for Marrow 5K Run & Walk Los Angeles

Join us for the 9th Annual March for Marrow 5K Run & Walk and help us find a cure for

Event Date: 
Sat, 04/27/2019 -
6:30am to 12:00pm
Community Event Type: 

2019 March for Marrow Walk Houston

For 35 years, the

Event Date: 
Sat, 03/30/2019 -
8:00am to 12:00pm
Community Event Type: 

Young Minnesotan Opens Up About Dual Diagnosis and Emphasizes Emotional Wellness

Person's Name: 
Sarah Nesheim

 

 

My Diagnosis

In the summer of 2014 I noticed ongoing bruising all over my body. At first, I thought it might have to do with my diet (low iron), but soon I noticed a new kind of mark on my skin, almost having a bulls-eye appearance. By end of summer I knew I had to do something about this.

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3rd Annual Rare but Real PNH Golf Tournament

Come out for a good time, a little golf, and many opportunities to take home money and prizes and help Breezy raise money for PNH. Over the last two years we have raised over $16,000 for PNH research and hope to continue this trend! Bring on the sun and the fun!

Event Date: 
Sat, 08/25/2018 - 10:00am
Community Event Type: 

2nd Annual Donna Box Memorial Golf Tournament

Join us for the 2nd Annual Donna Box Memorial Golf Tournament!

  • 8:30am Shotgun Start
  • $100 per golfer
  • 18 hole scramble, cart, range balls, continental breakfast and lunch
  • 1st, 2nd, and 3rd place prizes
  • Door prizes
  • Silent Auction
  • 50/50 Raffles

Please email donnaboxmemorial@gmail.com with questions or registration information.
Please register by August 3, 2018.

Event Date: 
Mon, 08/20/2018 - 8:30am
Community Event Type: 

2018 March for Marrow Walk Miami

Join us for a morning of fun, remembrance, and awareness at our 3rd annual March for Marrow Walk Miami in memory of Jennifer Zighelboim. This year we move to a new walk location - Historic Virginia Key Beach Park! Festivities include a food truck and live music, as well as a day of fun connecting with fellow patients and families affected by

Event Date: 
Sat, 05/12/2018 -
10:00am to 1:00pm
Community Event Type: