Five Years Later: Stefania Shares Lingering Effects after Treatment
It has been five years since my bone marrow transplant bone marrow transplant: A bone marrow transplant (BMT) is also called a stem cell transpla
Paroxysmal Nocturnal Hemoglobinuria (PNH)
High Proportion of PNH Type II Neutrophils Is Associated With Thrombosis in Patients Displaying a PNH Clone ≥ 1
The clinical significance of PNH Type II white blood cells (WBCs) remains unclear. We assessed the relative percentage (rel%) of Type II neutrophils in 355 patients with a PNH clone clone:
Safety of Lowering the Platelet Transfusion Threshold Before Central Venous Catheterisation in Patients With Haematological Diseases
Original Publication Date
Article Source
External Web Content
ABSTRACT Introduction Central venous catheter (CVC) insertion is frequently required in patients with haematological diseases. Despite limited evidence, thrombocytopenia often prompts prophylactic platelet transfusion before catheterisation. Methods We conducted an observational…
Patient and Caregiver Involvement With Prior Authorization and Care Delivery and Delays
Original Publication Date
Article Source
External Web Content
Introduction Payers employ health care utilization–management strategies, including prior authorization (PA), to limit costs and promote evidence-based, guideline-concordant care. However, PA may be inconsistently applied and associated with patient confusion and frustration.1-3…
PNH, Treatment and Management, from the 2026 New Brunswick Patient and Family Conference
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Jamie L Koprivnikar, MD
Dr. Jamie Koprvinikar discusses the signs and symptoms of PNH, current diagnostic approaches, available treatment options, and the latest advances in patient care. This session was recorded at the 2026 AAMDSIF New Brunswick Patient and Family Conference.
Getting the Right Diagnosis, from the 2026 AAMDSIF New Brunswick Patient and Family Conference
Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Dr. Virian Serei discusses how bone marrow failure is diagnosed, including the tests and evaluations used to receive a diagnosis of of aplastic anemia, myelodysplastic syndromes (MDS), or paroxysmal nocturnal hemoglobinuria (PNH).
Is a Transplant Right for Me? Session from the 2026 AAMDSIF New Brunswick Patient-Family Conference
Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD
Dr. Srinivasa Samikommu discusses bone marrow transplant, the transplant process, how doctors determine if it may be right for a patient and what you as a patient need to consider before moving forward with a transplant. The session was recorded at the 2026 AAMDSIF New Brunswick…
2026 Houston Patient and Family Conference
CONFERENCE AGENDA - November 7, 2026
8:00 - 2:45 (Central Time Zone)
Health Professionals as Patients with Aplastic Anemia, MDS, PNH -2026 October
AAMDSIF is pleased to announce that we will host a support group exclusively for Health Care Professionals diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_
PNH Patient Panel
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Patient panel discussions are a chance to meet inspiring people who are living with PNH . Hear firsthand perspectives on the patient journey, challenges, treatment experiences, and what matters most to those living with PNH. Please send your questions in advance to help@aamds.org…