Paroxysmal Nocturnal Hemoglobinuria (PNH)
Expert guidance on when to screen, monitor, and initiate complement inhibition therapy in patients without classical PNH
2026 Virtual Patient and Family Conference
Join AAMDSIF for a virtual Patient and Family Conference, an educational program designed for patients and caregivers impacted by aplastic anemia aplastic anemia: (ay-PLASS-tik
PNH Virtual Support Group - 2026 November
AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with PNH. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants.
Fatigue, Symptom Burden and Health-Related Quality of Life Concerns
In this webinar, you will gain an understanding of symptom burden, recognizing how symptoms affect your daily activities, and exploring strategies to help manage fatigue and other challenges. Learn how to communicate your concerns with your healthcare team and take an active role…
Five Years Later: Stefania Shares Lingering Effects after Treatment
It has been five years since my bone marrow transplant bone marrow transplant: A bone marrow transplant (BMT) is also called a stem cell transpla
High Proportion of PNH Type II Neutrophils Is Associated With Thrombosis in Patients Displaying a PNH Clone ≥ 1
The clinical significance of PNH Type II white blood cells (WBCs) remains unclear. We assessed the relative percentage (rel%) of Type II neutrophils in 355 patients with a PNH clone clone:
Safety of Lowering the Platelet Transfusion Threshold Before Central Venous Catheterisation in Patients With Haematological Diseases
Patient and Caregiver Involvement With Prior Authorization and Care Delivery and Delays
PNH, Treatment and Management, from the 2026 New Brunswick Patient and Family Conference
Dr. Jamie Koprvinikar discusses the signs and symptoms of PNH, current diagnostic approaches, available treatment options, and the latest advances in patient care. This session was recorded at the 2026 AAMDSIF New Brunswick Patient and Family Conference.
