Paroxysmal Nocturnal Hemoglobinuria (PNH)
Living with PNH: Workplace Rights & Responsibilities
Information on workplace rights & responsibilities for individuals with Paroxysmal Nocturnal Hemoglobinuria (PNH)
Understanding Bone Marrow & Stem Cell Transplants
This guide provides important information about bone marrow and stem cell transplantation
Understanding Clinical Trials
This guide provides information about clinical trials and gives you some things to consider when deciding whether to take part
What is Biosimilar?
A Biosimilar is a type of biologic medication. The term “biosimilar” means that the medication is highly similar to the already approved brand name biologic (“originator” medication)
Student Guide
Supporting students with Bone Marrow Failure Diseases, a guide for parents and school personnel
MarrowForums
MarrowForums provides free discussion forums for patients with bone marrow failure diseases
Financial Resources
A list of organizations & programs that may provide financial resources & other assistance
ASH 2018 (Aplastic/PNH)
Aplastic Anemia and PNH Research Summaries for Patients from the 2018 American Society of Hematology Annual Meeting
AAMDS Scientific Symposium 2020
Summary for patients from the seventh International Bone Marrow Failure Disease Scientific Symposium
