Paroxysmal Nocturnal Hemoglobinuria (PNH)

Managing Quality of Life Considerations for Patients with Bone Marrow Failure

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Erin Kopp, DNP

This 30-minute webinar reviews the range of opportunities for health care providers to incorporate quality of life considerations with bone marrow failure patients and their caregivers. Assessing resources needed for patients and communicating with the entire health care team…

Coordinating Care for Patients With Bone Marrow Failure

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Beena Mathew, MSN, OCN, RN

This informative 30-minute webinar provides practical recommendations for how health care providers can coordinate care for their bone marrow failure patients. Communication among members of the entire health care team managing these patients will also be discussed. This webinar…

AAMDSIF Resources for Health Professionals

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Bhumika Patel, MD

Dr. Patel discusses how health care providers, especially those in community settings, can connect patients with aplastic anemia, MDS, or PNH with AAMDSIF patient education resources and support. View, download, or order AAMDSIF patient guides and fact sheets here: https://www…

ASH 2024 Research Summaries (Aplastic Anemia and PNH)

Graphic for 2024 ASH Summary for Patients on Aplastic Anemia and P-N-H

This publication offers summaries of selected abstracts presented at the Annual Meeting of the American Hematology Society held in December 2024. It provides new and updated information about research into the diagnosis…

ASH 2025 Updates: Aplastic Anemia and PNH Webinar

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Topic(s)
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Taha Bat, MD
In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment for Aplastic Anemia and PNH. The studies were presented at the American Society of Hematology (ASH) 2025 meeting. These findings will be explained…

Understanding Clinical Trials

Fact Sheet - Understanding Clinical Trials

This guide provides information about clinical trials and gives you some things to consider when deciding whether to take part

What is Biosimilar?

Fact Sheet - Biosimilar

A Biosimilar is a type of biologic medication. The term “biosimilar” means that the medication is highly similar to the already approved brand name biologic (“originator” medication)

Student Guide

Fact Sheet - Student Guide

Supporting students with Bone Marrow Failure Diseases, a guide for parents and school personnel

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