web exclusive | Page 6 | Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

web exclusive

2014 Matthew Debono Scholarship Winner Thomas Howlett

Person's Name: 
Thomas Howlett

Thomas is thankful he has a future. He wasn’t so sure when in March 2011 he was told as a high school freshman that “he wouldn’t be playing paintball for a while.” Thomas was diagnosed with MDS that quickly progressed into

Content source: 

2014 Matthew Debono Scholarship Winner Annette Lysan

Person's Name: 
Annette Lysan

In March, Annette had the honor of singing a solo for her high school senior show. She chose to sing “I Was Here”, a song recorded by the group Lady Antebellum and others. The lyrics for the chorus start with “I wanna do something that matters – say something different – something that sets the whole world on its ear – I wanna do something better with the time I’ve been given.” She considers it her personal anthem.

Bone Marrow Disease(s): 
Content source: 

An Unusual Route to Diagnosis

Person's Name: 
Jane Massey

Although it sounds strange, I am beginning to believe that breast cancer possibly has saved my life. In October 2015, I was diagnosed with stage 2 lobular carcinoma of the breast. My cancer was found during my routine mammogram. I opted for a bi-lateral mastectomy and then had 33 radiation treatments in early 2016.  I saw my oncologist every month due to my treatment and she ran blood work every time.

Bone Marrow Disease(s): 
Content source: 

I'm Like You: Anna Sobon

Person's Name: 
Anna Sobon

19-year-old Anna Sobon had been a typical college sophomore, active and full of plans about making her dreams come true.
When she began to get increasingly tired, she  thought it was due to her hectic schedule or maybe some lingering after-effects of her bout with mononucleosis the previous summer. Even as her strength was dwindling, Anna stayed determined to keep up with her daily routines while she waited for her symptoms to simply go away.

Bone Marrow Disease(s): 
Content source: 

Battling Aplastic Anemia, Seeking Information

Person's Name: 
Mary Swift

At the age of 3, I became ill with a rare blood disorder. I was bruising easily, and my platelet count was dangerously low. I was diagnosed to have ITP, had my spleen removed, and thought I was cured. However, my disease was either dormant or morphing into something else. My symptoms recurred with pregnancy, and after my second child was born, my disease was never dormant again.

Bone Marrow Disease(s): 
Content source: 

Comedy Became My Drug

Person's Name: 
Colin Powell

It was early April of 2015 when I started getting headaches, weakness and abnormal heart rates simultaneously whenever I exerted myself. Stairs became a nemesis, as I could feel myself about to faint whenever I reached my apartment on the third floor. I thought that now would be a good time to visit the doctor. There I had blood work done and a few hours later they called and told me to go to the ER immediately.  “So…I shouldn’t go hiking right now?” I joked, despite the weakness in my legs.

Bone Marrow Disease(s): 
Content source: