Pediatric Aplastic Anemia to Coast Guard Officer: Drew Daniels
Person's Name:
Drew Daniels
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MY 12-YEAR BATTLE WITH MDS - By Jane Biehl PhD
Person's Name:
Jane Biehl, Ph.D.
I had an article published in 2017 by AAMDSIF and was asked to update everyone. I will briefly reiterate the first part of my journey and then move forward!
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“Everything is going to be okay:” Jocelyn’s Story of Aplastic Anemia, PNH, and Survivorship
Person's Name:
Jocelyn Boyer
Before diagnosis, Jocelyn’s life was normal, predictable. She was thriving her senior year in college, studying Public Relations. In 2008, she was working, volunteering, attending classes---all the normal activities for a 20-year-old.
But one day that changed. Extreme fatigue set in, making it difficult to walk a single flight of stairs. At first, she dismissed the fatigue to her rigorous schedule.
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How a Delay in Treatment nearly Cost her Life - Veronica's Story
Person's Name:
Veronica Ruiz
Veronica learned that delaying treatment was not a good idea.
That delay nearly ended her life.
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Ashley and Alayna: A Mother's Story
Person's Name:
Ashley Numbers
September 16 through December 20 will stand out in Ashley’s mind.
Forever.
These are the days she spent in the hospital with her feisty three-year-old, Alayna, for conditioning and bone marrow transplant.
The summer of 2019 was already big with a wedding to plan. The toddler and her baby brother were enjoying everything that small ones do, including riding dirt bikes with Daddy.
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Mark lives symptom-free with MDS, but it's still "like an albatross"
Person's Name:
Mark
Mark had no symptoms common to bone marrow failure patients.
Not one.
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2019 update! My Son, the Athlete and Survivor - Sam Thrives Years after Transplant
Person's Name:
Samuel Meidinger
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Soldier faces down Aplastic Anemia in 1980, paving the way for ATG treatment!
Person's Name:
Johnnie Burford
Johnnie Burford was deployed in Korea. He was a muscular 195-lb athlete, a proud member of the US Army Second Division. Nothing stopped him from performing his duty. Yet a rapid weight loss of 100 pounds, coupled with unusual bruising, alerted him that something was very wrong.
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Two transplants mean new life for Derek: a story of high-risk MDS, perseverance, and advocacy
Person's Name:
Derek Fakehany
Derek was turning 45 and had noticed occasional swelling in his legs. Due to a family history of heart disease, his wife, Amy, was uneasy, noticing this symptom. She encouraged Derek to see his doctor for more thorough testing.
Bone Marrow Disease(s):
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High Hopes Fulfilled for MDS Survivor
Person's Name:
Karen Woys
I was diagnosed with MDS (RAEB-2 - Refractory
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