pediatric | Aplastic Anemia & MDS International Foundation

pediatric

David Jacobsohn, MD, ScM

Jacobsohn, David
Division Chief, Blood and Marrow Transplanation
Children's National

David Jacobsohn, MD, ScM is the Division Chief, Blood and Marrow Transplanation at Children's National Hospital in Washington, D.C.   Previously, he was at Children’s Memorial Hospital in Chicago, where he served as a member of the Stem Cell Transplant Program staff and as the Director of the Chronic Graft-versus-Host Disease Clinic. He has lectured widely on GvHD/BMT in Europe, Latin America, and the United States. Dr.

Seth Rotz, MD

Rotz, Seth
Physician
Cleveland Clinic Children's Hospital

Dr. Rotz is a physician, Pediatric Hematology, Oncology, and Blood and Marrow Transplantation, Cleveland Clinic Children’s Hospital and Assistant Professor of Pediatrics, Cleveland Clinic Lerner College of Medicine of Case Western Reserve University and Member, Cancer Prevention Control & Population Research Program, Case Comprehensive Cancer Center.

A Phase III Study Evaluating The Efficacy And Safety Of Crovalimab Versus Eculizumab In Adult And Adolescent Participants With Paroxysmal Nocturnal Hemoglobinuria (PNH) Not Previously Treated With Complement Inhibitors. (COMMODORE 2)

This study will enroll participants aged 12 years or older with a body weight >= 40 kg diagnosed with PNH who have not been previously treated with complement inhibitor therapy. Approximately 200 participants will be randomized in a 2:1 ratio into the following regimens: [1] Crovalimab; [2]

Diagnosis and treatment of pediatric myelodysplastic syndromes: A survey of the North American Pediatric Aplastic Anemia Consortium

Author(s): 
Nakano TA, Lau BW, Dickerson KE, Wlodarski M, Pollard J, Shimamura A, Hofmann I, Sasa G, Elghetany T, Cada M, Dror Y, Ding H, Allen SW, Hanna R, Campbell K, Olson TS
Primary Author: 
Nakano TA
Journal Title: 
Pediatric Blood & Cancer
Original Publication Date: 
Aug 2020

Background: 

A study assessing the feasibility of randomization of pediatric and young adult patients between matched unrelated donor bone marrow transplantation and immune-suppressive therapy for newly diagnosed severe aplastic anemia: A joint pilot trial of the Nort

Author(s): 
Pulsipher MA, Lehmann LE, Bertuch AA, Sasa G, Olson T, Nakano T, Gilio A, Burroughs LM, Lipton JM, Huang JN, Dickerson K, Bertaina A, Zhuang C, Malsch M, Fleming M, Weller E, Shimamura A, Williams DA
Primary Author: 
Pulsipher MA
Journal Title: 
Pediatric Blood & Cancer
Original Publication Date: 
Aug 2020

Background: Recent data show survival after matched unrelated donor (MUD)

Bone Marrow Diseases: 

Sarah Bannon, MS, CGC

Bannon, Sarah
Senior Genetic Counselor
University of Texas MD Anderson Cancer Center

Sarah Bannon is a Senior Genetic Counselor in the Department of Clinical Cancer Genetics at the UT MD Anderson Cancer Center. Her clinical responsibilities include providing risk assessment and genetic counseling services to individuals at risk for an inherited predisposition to hematologic malignancies (leukemia). She is the Genetic Counselor for the Hereditary Hematologic Malignancies Clinic (HHMC).

2020 National Virtual Patient & Family Conference

AAMDSIF hosted the 2020 National Patient & Family Conference ONLINE over three days, July 17 - 19, 2020. The Conference featured three days of educational workshops, panels and speakers for patients, families and caregivers with

Event Date: 
Fri, 07/17/2020 to Sun, 07/19/2020

National March for Marrow 2020 - Virtual Walk/5K

We've gone VIRTUAL!
With the health and well-being of our patients, family members, friends and faculty as our top priority, AAMDSIF is holding our National March for Marrow as a VIRTUAL WALK! 

Event Date: 
Sat, 07/18/2020
Community Event Type: