To better understand the impact of bone marrow failure, we present stories told by the patients, parents, family members, and spouses who are living with these illnesses. Our entire community benefits from the insightful stories patients and family members share with us about their personal journeys.
We Made It! – Kristy Shares her Perspective in January 2021
A Caregiver's Story: MDS Diagnosis Changes their Lives
Severe Aplastic Anemia and PNH Diagnoses Came out of Nowhere - Marianna's Story
Update on Miss Alayna!
PNH - Traveling with a Rare Disease - Update from Josh
Stacy's Aplastic Anemia Journey Part 3: Disappointing Results from First Treatment
Undiagnosed for Years, Josh Finally Finds both a Diagnosis and a Treatment!
Mychaela Dances Again, Thanks to her Mother's Advocacy
From Crisis to Career: Behnoush Babzani Triumphs over Aplastic Anemia
Community Rallied around Braeden's Family as he Fought Aplastic Anemia --- Now Family "Pays it Forward"