| Page 28 | Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

2024 Tampa Patient and Family Conference

Due to the impact on the Tampa, Florida community and surrounding areas by Hurricanes Helene and Milton, the AAMDSIF Tampa Patient and Family conference has been cancelled.
 
We will be announcing future webinars so stay tuned for more information from us. 
 
Our thoughts are with all of those impacted by these devastating storms.

Event Date: 
Sat, 10/19/2024 - 7:30am (EDT)
Conference Event Type: 

2024 Philiadelphia, PA, Patient and Family Conference

The conference was held over two days - Friday, July 19 from 2-7 PM ET and Saturday, July 20 from 8AM - 4 PM ET.

Watch these recordings from conference sessions:

High-Risk MDS

A Patient Story

Aplastic Anemia

Event Date: 
Fri, 07/19/2024 - 2:00pm (EDT) to Sat, 07/20/2024 - 4:00pm (EDT)
Conference Event Type: 

2023 New Haven Patient and Family Conference

On October 14, 2023, Patient and Family Hybrid Conference, in Partnership with Yale Cancer Center, was held in New Haven, CT.  Find recordings or materials from this conference here.

Session Recordings:

High-Risk MDS

Managing Low Blood Counts

Event Date: 
Sat, 10/14/2023 - 8:15am (EDT)

2024 Chicago Patient and Family Conference

Watch these sessions 2024 Patient and Family Conference, held in partnership with the University of Chicago.

Aplastic Anemia

Advances in Treating PNH

Fatigue Management

Event Date: 
Sat, 09/14/2024 - 8:30am (EDT)
Conference Event Type: 

2024 Los Angeles Patient and Family Conference

2024 Patient and Family Conference in Los Angeles

Session Recordings:

Transplant for Aplastic Anemia and MDS

Emerging Therapies in High-Risk MDS

Cardiovascular Concerns after HCT

2024 Los Angeles Patient and Family Conference
Event Date: 
Sat, 04/13/2024 - 7:45am (EDT)
Conference Event Type: 

Haploidentical Transplant with Post-Transplant Cyclophosphamide for Acute Myeloid Leukaemia and Myelodysplastic Syndromes Patients: The Role of Previous Lines of Therapy

Author(s): 
Avenoso D, Serpenti F, Slonim LB, Bouziana S, Dazzi F, Hannah G, Kenyon M, Mehra V, Kulasekararaj A, Krishamurthy P, Shah MN, Lionel S, Pagliuca A, Potter V
Primary Author: 
Avenoso D
Journal Title: 
Mediterranean Journal of Hematology and Infectious Diseases
Original Publication Date: 
Jan 2024

Background: Allogeneic haematopoietic stem-cell transplant is an option, potentially curative, for high-risk acute myeloid leukaemia (AML) and myelodysplastic syndrome (MDS) patients. Post-transplant cyclophosphamide administration allows for the selection of haploidentical donors in patients who are eligible for the procedure but do not have a fully matched donor since it can overcome the HLA barrier.

Sabatolimab plus hypomethylating agents in previously untreated patients with higher-risk myelodysplastic syndromes (STIMULUS-MDS1): a randomised, double-blind, placebo-controlled, phase 2 trial

Author(s): 
Zeidan AM, Ando K, Rauzy O, Turgut M, Wang MC, Cairoli R, Hou HA, Kwong YL, Arnan M, Meers S, Pullarkat V, Santini V, Malek K, Kiertsman F, Niolat J, Ramos PM, Menssen HD, Fenaux P, Miyazaki Y, Platzbecker U
Primary Author: 
Zeidan AM
Journal Title: 
Lancet Hematology
Original Publication Date: 
Jan 2024

Background: Sabatolimab is an immunotherapy targeting T-cell immunoglobulin domain and mucin domain-3 (TIM-3), an immuno-myeloid regulator expressed on immune cells and leukaemic

Bone Marrow Disease(s): 

Oral decitabine-cedazuridine versus intravenous decitabine for myelodysplastic syndromes and chronic myelomonocytic leukaemia (ASCERTAIN): a registrational, randomised, crossover, pharmacokinetics, phase 3 study

Author(s): 
Garcia-Manero G, McCloskey J, Griffiths EA, Yee KWL, Zeidan AM, Al-Kali A, Deeg HJ, Patel PA, Sabloff M, Keating MM, Zhu N, Gabrail NY, Fazal S, Maly J, Odenike O, Kantarjian H, DeZern AE
Primary Author: 
Garcia-Manero G
Journal Title: 
Lancet Hematology
Original Publication Date: 
Jan 2024

Background: The DNA methyltransferase inhibitors azacitidine and decitabine for individuals with

Bone Marrow Disease(s):