Patient and Family - Regional One Day | Aplastic Anemia & MDS International Foundation

2023 Phoenix, Jacksonville, Rochester Patient and Family Conference

The unique conference was held simultaneously in three cities. The recordings here are from the Phoenix, AZ location.

Aplastic Anemia and Non-Transplant Therapies

Patient and Family Conference from Phoenix, Rochester, and Jacksonville

Event Date:

Sat, 09/23/2023 - 8:00am (EDT)

Bone Marrow Disease(s):

Conference Event Type:

Patient and Family - Regional One Day

2023 Salt Lake City Patient and Family Conference

Thank you for attending the 2023 Salt Lake City Patient and Family Conference. We will keep uploading presentations as we receive them, please keep checking back for updates.

Presentation Materials:

Predisposition to Inherited Bone Marrow Failure Syndromes

Event Date:

Sat, 07/15/2023 - 8:00am (EDT)

Conference Materials:

Predisposition to Bone Marrow Failure Syndromes

P-N-H and Non-Transplant Therapies

M-D-S and Non-Transplant Therapies

Aplastic Anemia and Transplant SLC.pptx

Transplant for M-D-S

Bone Marrow Disease(s):

Conference Event Type:

Patient and Family - Regional One Day

2023 AAMDSIF Patient and Family Conference in Dallas, TX

Join patients, families and caregivers for the 2023 Dallas, TX Patient and Family Conference This event is chaired and organized by Dr. Taha Bat from UT Southwestern.

Event Date:

Sat, 11/04/2023 - 3:06am (EDT)

2023 Patient and Family Conference - Dallas, Texas

Bone Marrow Disease(s):

Conference Event Type:

Patient and Family - Regional One Day

2023 Omaha Patient and Family Hybrid Conference

Here are the session recordings and the presentations for the 2023 Omaha Patient and Family Hybrid Conference.

Event Date:

Sat, 04/15/2023 - 9:30am (EDT)

Conference Materials:

High-Risk MDS and Non-Transplant Therapies

PNH Non-Transplant Therapies

Managing PNH and Complications

Survivorship: Life after Diagnosis

Bone Marrow Disease(s):

Conference Event Type:

Patient and Family - Regional One Day

2022 Memphis Patient and Family Hybrid Conference

Find the recordings for the 2022 Memphis Patient and Family Hybrid Conference here:

Living with PNH

Living with Aplastic Anemia (Adults & Pediatric)

Predisposition to MDS (Pediatric)

Event Date:

Sat, 07/23/2022 - 8:30am (EDT)

Conference Materials:

Living with MDS (Adults)

Living with Aplastic Anemia - Adults and Children

Transplant for Patients with Aplastic Anemia, PNH, or MDS

Living Well During and After Transplant

Bone Marrow Disease(s):

Conference Event Type:

Patient and Family - Regional One Day

2022 Seattle, WA, Patient and Family Virtual Conference

Please find the presentation materials below.

Event Date:

Sat, 06/18/2022 - 9:00am (EDT)

Conference Materials:

What is My Diagnosis? - Bart L. Scott, MD

Inherited Disorders - Sioban Keel, MD

Aplastic Anemia - Amy De Zern, MD, MHS

PNH - Bart L. Scott, MD

MDS Non-Transplant Therapies - Rami Komrokji, MD

MPN Non-Transplant Therapies - Ruben Mesa, MD

A Nurse’s Perspective - Costandina Herbert, RN

Leukemic Transformation - Anna Halpern, MD

MDS/MPN Transplant Therapies - H. Joachim Deeg, MD

Living Well with Disease - Krisstina Gowin, DO

Bone Marrow Disease(s):

Conference Event Type:

Patient and Family - Regional One Day

2022 San Antonio, TX, Patient and Family Virtual Conference

View each session from the San Antonio Patient and Family Virtual Conference with the links below:

Event Date:

Sat, 03/26/2022 - 9:00am (EDT)

Conference Materials:

Final-3-26-22 MDS to AML -AAMDIF talk (1).pdf

Paroxysmal Nocturnal Hemoglobinuria (PNH) Karnad (2) San Antonio.pdf

MPN-MDS Overlap R Mesa 2022 (1).pdf

Aplastic Anemia San Antonio Conference.pdf

UT San Antonio March 2022 Wellness (1).pdf

Bone Marrow Disease(s):

Conference Event Type:

Patient and Family - Regional One Day

Winter Patient and Family Virtual Conference, November 13, 2021

Sessions

Understanding Low Risk MDS 2021 Winter Patient Family Conference
Adrienne Phillips, MD, MPH

Understanding Aplastic Anemia 2021 Winter Patient Family Conference
Anna Koget, DO

Event Date:

Sat, 11/13/2021 - 8:00am (EST)

Conference Materials:

Understanding_Low_Risk_MDS.pptx

Understanding_Aplastic_Anemia ppt.pptx

Understanding_Higher_Risk MDS.pptx

Understanding_PNH.pptx

Emotional and Health Impact of Caregiving.pptx

Understanding Transplant 2021.pptx

Bone Marrow Disease(s):

Conference Event Type:

Patient and Family - Regional One Day

Fall Patient and Family Virtual Conference, September 11, 2021

Sessions

Understanding Low Risk MDS 2021 Fall Patient Family Conference
Suresh Balasubramian, MD, Karmanos Cancer Center

Understanding Aplastic Anemia 2021 Fall Patient Family Conference
Daria Babushok, MD, PhD, Penn Medicine

Event Date:

Sat, 09/11/2021 - 8:00am (EDT)

Conference Materials:

Understanding Aplastic Anemia.pdf

Understanding Higher Risk MDS To AML Transition.pptx

Understanding Transplant Options.pptx

Bone Marrow Disease(s):

Conference Event Type:

Patient and Family - Regional One Day

Summer Patient and Family Virtual Conference, July 17, 2021

Sessions

Managing the Side Effects of Bone Marrow Failure - Summer 2021 Conference
Eric Padron, MD, Moffitt Cancer Center

Diagnosing Bone Marrow Failure Diseases - Summer 2021 Conference
Amy Duffield, MD, PhD, Memorial Sloan Kettering

Event Date:

Sat, 07/17/2021 - 8:00am (EDT)

Bone Marrow Disease(s):

Conference Event Type:

Patient and Family - Regional One Day

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