Patient and Family Webinars

In this conference session, Dr. Amer Zeidan, MD discusses understanding the management options for higher risk MDS, the evolution of MDS to AML and more.

In this conference session, Dr. Anand Karnad, MD discusses best practices for treatment of PNH.

In this conference session, Dr. Ruben Mesa, MD discusses the different features between MDS and MPN and their overlap syndromes.

In this conference session, Dr. Elizabeth Cowhay Barnes discusses diagnosis and treatment of aplastic anemia.

In this conference session, Dr. Krisstina Gowin DO discusses best practices when living with bone marrow failure diseases.

In this webinar, Dr. Sandeep Jain will discuss the diagnosis and treatment of ocular GvHD which occurs in 40-60% patients following an allogenic transplant. Ocular GVHD may lead to severe ocular surface disease, which can significantly diminish quality of life and restrict daily activities. He will answer questions from participants at the end of the presentation.

In this webinar Drs. Linda Burns and Nandita Khera will discuss the advances in transplantation for older patients with MDS. Stem cell transplants are not frequently offered to older patients with high-risk myelodysplastic syndromes (MDS). According to a study from the Blood and Marrow Transplant Clinical Trials Network (BMTCTN 1102), older patients with MDS may indeed achieve a survival benefit from stem cell transplant. At the end of the webinar, there will be a questions and answer session. Questions can be submitted in advance at help@aamds.org.

In this webinar, Dr. Satheesh Chonat will discuss what is PNH, how PNH is diagnosed and what treatment options are available to pediatric patients.  After the presentation, Dr. Chonat will answer questions from participants. Advance questions can be submitted to help@aamds.org. 

In this discussion, Dr. Nandita Khera of Associate Professor of Mayo Clinic and Dr. Linda Burns Sr. Scientific Director of CIBMTR discuss which treatments are available to older MDS patients. 

This session will focus on how and when transplant is an option for bone marrow failure patients, including the risks and benefits of various approaches to transplantation.

Being a caregiver can be physically and emotionally stressful. Caregivers do not often realize their own emotional and physical health is compromised. This session will help caregivers understand the impact of caregiving and offer tips on how to maintain their own health.

This session will provide a comprehensive overview of high risk MDS and the transition to MDS, from diagnosis to treatment.

This session will provide a comprehensive overiew of PNH, from diagnosis to treatment.

This session will provide a thorough overview of aplastic anemia, from diagnosis to treatment

This session provide a comprehensive overview of low risk myelodsyplastic syndromes (MDS).

In this webinar, Dr. Andrew Brunner will present the most promising research presented at the 2021 European Hematology Association (EHA) and American Society of Clinical Oncology (ASCO) meetings for MDS.

Dr. Catherine Lee will provide a comprehensive overview of chronic and acute graft vs host disease ("GvHD") which is a complication of bone marrow transplant.  While some patients have very mild GvHD, many patients have more severe and long term disease.  Dr. Lee will discuss pre-transplant prevention and post-transplant management of GvHD. 

Dr. Jason Mendler will give a brief MDS overview and then answer questions from participants. This interactive webinar offers you the opportunity to ask questions that are answered directly by a MDS Expert.

Dr. Sarah Vij will deliver a presentation on how male fertility can be affected by bone marrow failure diseases and related treatments and what steps can be taken to preserve fertility.  This webinar will include discussions suitable for adult patients, family members, and caregivers and may not be appropriate for a young audience.