Patient and Family Webinars | Page 15 | Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

Sat, 04/13/2024 - 12:15pm (EDT) Advances in Treating Aplastic Anemia Webinar: Advances in treating aplastic anemia
Thu, 04/18/2024 - 4:00pm (EDT) Understanding Secondary AML: High Risk MDS to AML Webinar: Understanding Secondary A-M-L and High Risk M-D-S to A-M-L

Watch Past Webinar Recordings

Topic(s): Bone Marrow Transplant

Steven Devine, MD walks potential donors through all of the steps to becoming a bone marrow donor from screening to donation and everything in between. This webinar was a joint project between Be the Match and AAMDSIF. 

Topic(s): Managing Your Treatment

Reducing the stress of diagnosis and treatment for rare bone marrow failure diseases is the topic of this webinar. K. Stolar explains in-depth in the full webinar, recorded 8-23-2018.

Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

This webinar discusses the diagnosis and treatment options for pedaitric AML patients and their families. 

Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr Mattison provides an overview of the two primary diagnosis tools for patients with MDS (myelodysplatic syndromes).  

Topic(s): Bone Marrow Transplant

Dr Malone explains the key issues for transplant patients during the first 100 days, focusing on Acute GVHD (graft-versus-host-disease). 

Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

Dr Foran explains how blood transfusions are used for bone marrow failure disease patients and how hematologists/oncologists deal with iron overload

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

A look to the future of treatment for patients with PNH (paroxysmal nocturnal hemoglobinuria). 

Topic(s): Aplastic Anemia

Dr DeZern provides a thorough review of the three major classificiations of aplastic anemia including diagnosis, treatment and prognosis. 

Topic(s): Pediatric Bone Marrow Failure Diseases

Dr Michael Pulsipher discusses the cognitive, social and physical side effects for children dealing with bone marrow failure diseases. 

Topic(s): Acute Myeloid Leukemia (AML)

Dr Savona explains what options are available for patients with AML outside of transplant. 

Topic(s): Managing Your Treatment

All bone marrow failure disease patients and their families need to understand how to read lab results. This webinar covers all of the basics and answers some of the most common questions. 

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

This webinar discusses issues related to PNH. 

Topic(s): Acute Myeloid Leukemia (AML)

Dr. Jacqueline Garcia describes diagnostic and therapeutic options for AML, or Acute Myeloid Leukemia.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies

Dr Keng explains myelofibrosis and how it overlaps with other bone marrow failure diseases. 

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Dr Catherine Broome provides a comprehensive overview of PNH for newly diagnosed patients and their families. This is a recorded webinar so you will not be able to ask questions. If you do have questions, please send an email to help@aamds.org or use the Chat option on the bottom right of your screen. 

Topic(s): Aplastic Anemia

Dr Arana Yi provides a thorough overview of aplastic anemia including a discussion of the diagnosis and treatment options currently available. 

Topic(s): Myelodysplastic Syndromes (MDS)

This webinar provides the basic information that every MDS patient and their famlies should know about the disease.

 

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

This webinar discusses the most recent findings in aplastic anemia and PNH from the American Society of Hematology 2017.  

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Learn about PNH, or Paroxysmal Nocturnal Hemoglobinuria. Dr. Leslie Ellis presents from normal bone marrow and blood to the PNH issues and diagnosis. Participants asked questions. 

 

Topic(s): Myelodysplastic Syndromes (MDS)

Dr Gore provides a plain language review of the most important research presented at the late 2017 Annual Meeting of the American Society of Hematology. 

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Special thanks to Abbvie and Taiho Oncology

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