AAMDSIF hosts Patient and Family Conferences around the United States each year. Conferences are free to attend and include presentations by the leading medical experts in rare blood cancers and bone marrow failure diseases. It is also an incredible and important opportunity for patients to connect with one another and share support, answers and hope.
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2025 Conferences
Who should attend?
- Aplastic anemia, PNH, MDS, MPN, and AML patients
- Those who are newly diagnosed or currently in treatment, as well as long-term survivors
- Caregivers, family members or friends
- Nurses and other healthcare professionals are also welcome
Why should you attend?
- Gain unprecedented access to top experts
- Get your questions answered
- Return home a wiser and better-equipped self-advocate
- Meet those who genuinely understand what you are going through
- Build a strong and supportive community
- Leave with a sense of optimism and hope for the future
- Mark your calendars now. Advance registration is always recommended.
What to Expect from AAMDSIF Conferences:
- An in-depth review of the current thinking on aplastic anemia, PNH, MDS, MPN, and AML.
- Practical steps you can take to become an even stronger advocate for your best care and treatment.
- Practical strategies for improving your health and well-being in spite of your illness.
- Meet other patients and family members, join a Community Connection group in your area and discover our Peer Support Network.
- Learn how AAMDSIF can help you with this life-altering journey.
Need Help?
If you have questions regarding our conferences or registration, please call our conference information line at 301-279-7202 x 128 or email us at conference@aamds.org
2025 San Francisco - Bay Area Patient and Family Conference
Event Date: Sat, 07/19/2025 - 7:30am (EDT)
WHO SHOULD ATTEND?
The conference is open to the general public, however sessions have been designed for patients, family members and caregivers who are affected by bone marrow failure disease including aplastic anemia, PNH, MDS/AML, MPN and other bone marrow failure diseases.
HOW TO ATTEND?
The... Read more »
2025 Boston Patient and Family Conference
Event Date: Sat, 09/27/2025 - 7:30am (EDT)
CONFERENCE AGENDA - September 27, 2025
(Eastern Time Zone)
7:30 AM Registration and Breakfast
8:30 AM Conference Welcome
9:00 AM Aplastic Anemia
Low Risk MDS
10:15 AM PNH
High Risk MDS/AML
11:30 AM PNH Complications... Read more »
2025 Chapel Hill Patient and Family Conference
Event Date: Sat, 10/18/2025 - 7:30am (EDT)
CONFERENCE AGENDA - October 18, 2025
(Eastern Time Zone)
7:30 AM Registration and Breakfast
8:15 AM Conference Welcome
9:00 AM Aplastic Anemia
Low Risk MDS
10:15 AM PNH
High Risk MDS/AML
11:30 AM PNH Complications
... Read more »
2025 Rockville Patient and Family Conference
Event Date: Sat, 03/08/2025 - 8:30am (EST)
The 2025 Patient and Family Conference in Rockville, MD was held on March 8, 2025.
Below are links to conference session recordings in full.
Aplastic Anemia and Transplant
PNH Complications with Philip Scheinberg
Aplastic Anemia
MDS and Transplant
Low Risk MDS
Debra's Story - Aplastic Anemia
MDS... Read more »
2025 Kansas City Patient and Family Conference
Event Date: Fri, 04/25/2025 - 5:30pm (EDT) to Sat, 04/26/2025 - 3:30pm (EDT)
Here are links to the conference sessions from the 2025 Kansas City Patient and Family Conference:
MDS/MPN Overlap
PNH and Current Therapies
Living Well with Bone Marrow Failure
Judy's Story of PNH
Transplant and GVHD
Aplastic Anemia
PNH Complications
High Risk MDS
2025 San Francisco - Bay Area Patient and Family Conference
Event Date: Sat, 07/19/2025 - 7:30am (EDT)
WHO SHOULD ATTEND?
The conference is open to the general public, however sessions have been designed for patients, family members and caregivers who are affected by bone marrow failure disease including aplastic anemia, PNH, MDS/AML, MPN and other bone marrow failure diseases.
HOW TO ATTEND?
The... Read more »
2025 Boston Patient and Family Conference
Event Date: Sat, 09/27/2025 - 7:30am (EDT)
CONFERENCE AGENDA - September 27, 2025
(Eastern Time Zone)
7:30 AM Registration and Breakfast
8:30 AM Conference Welcome
9:00 AM Aplastic Anemia
Low Risk MDS
10:15 AM PNH
High Risk MDS/AML
11:30 AM PNH Complications... Read more »
2025 Chapel Hill Patient and Family Conference
Event Date: Sat, 10/18/2025 - 7:30am (EDT)
CONFERENCE AGENDA - October 18, 2025
(Eastern Time Zone)
7:30 AM Registration and Breakfast
8:15 AM Conference Welcome
9:00 AM Aplastic Anemia
Low Risk MDS
10:15 AM PNH
High Risk MDS/AML
11:30 AM PNH Complications
... Read more »
2024 Los Angeles Patient and Family Conference
Event Date: Sat, 04/13/2024 - 7:45am (EDT)
2024 Patient and Family Conference in Los Angeles
Session Recordings:
Transplant for Aplastic Anemia and MDS
Emerging Therapies in High-Risk MDS
Cardiovascular Concerns after HCT
Supportive Care Management
Advances in the Therapy of PNH
Advances in Treating Lower-Risk MDS
Palliative Care
Living... Read more »
2024 Seattle Patient and Family Conference
Event Date: Sat, 06/22/2024 - 11:00am (EDT)
Watch these recordings from the Conference Sessions:
What is my Diagnosis?
Aplastic Anemia
Inherited Bone Marrow Failure
Leukemic Transformation
Myelodysplastic Syndromes
MDS and Transplant Therapies
MPN Transplant Therapies
MPN Non-Transplant Therapies
2024 Philiadelphia, PA, Patient and Family Conference
Event Date: Fri, 07/19/2024 - 2:00pm (EDT) to Sat, 07/20/2024 - 4:00pm (EDT)
The conference was held over two days - Friday, July 19 from 2-7 PM ET and Saturday, July 20 from 8AM - 4 PM ET.
Watch these recordings from conference sessions:
High-Risk MDS
A Patient Story
Aplastic Anemia
GVHD - Graft VS Host Disease
Low-Risk MDS
PNH
Nutrition and Bone Marrow Failure
2024 Chicago Patient and Family Conference
Event Date: Sat, 09/14/2024 - 8:30am (EDT)
Watch these sessions 2024 Patient and Family Conference, held in partnership with the University of Chicago.
Aplastic Anemia
Advances in Treating PNH
Fatigue Management
2024 Tampa Patient and Family Conference
Event Date: Sat, 10/19/2024 - 7:30am (EDT)
Due to the impact on the Tampa, Florida community and surrounding areas by Hurricanes Helene and Milton, the AAMDSIF Tampa Patient and Family conference has been cancelled.
We will be announcing future webinars so stay tuned for more information from us.
Our thoughts are with all of those... Read more »
2023 Omaha Patient and Family Hybrid Conference
Event Date: Sat, 04/15/2023 - 9:30am (EDT)
Here are the session recordings and the presentations for the 2023 Omaha Patient and Family Hybrid Conference.
April 15, 2023
Aplastic Anemia Non-Transplant Therapies and Clinical Trials, from Omaha Patient and... Read more »
2023 Salt Lake City Patient and Family Conference
Event Date: Sat, 07/15/2023 - 8:00am (EDT)
Thank you for attending the 2023 Salt Lake City Patient and Family Conference. We will keep uploading presentations as we receive them, please keep checking back for updates.
Presentation Materials:
Predisposition to Inherited Bone Marrow Failure Syndromes
Aplastic Anemia and Non-... Read more »
2023 New Haven Patient and Family Conference
Event Date: Sat, 10/14/2023 - 8:15am (EDT)
On October 14, 2023, Patient and Family Hybrid Conference, in Partnership with Yale Cancer Center, was held in New Haven, CT. Find recordings or materials from this conference here.
Session Recordings:
High-Risk MDS
Managing Low Blood Counts
PNH and Non-Transplant Therapies
Aplastic Anemia and... Read more »
2023 AAMDSIF Patient and Family Conference in Dallas, TX
Event Date: Sat, 11/04/2023 - 9:30am (EDT)
Join patients, families and caregivers for the 2023 Dallas, TX Patient and Family Conference This event is chaired and organized by Dr. Taha Bat from UT Southwestern.
Patients with aplastic anemia, paroxysmal nocturnal hemoglobinuria (PNH), myelodysplastic syndromes (MDS), and acute myeloid... Read more »
