2025 Conferences
2025 Rockville Patient and Family Conference
Event Date: Sat, 03/08/2025 - 8:30am (EST)
The 2025 Patient and Family Conference in Rockville, MD was held on March 8, 2025.
Below are links to conference session recordings in full.
Aplastic Anemia and Transplant
PNH Complications with Philip Scheinberg
Aplastic Anemia
MDS and Transplant
Low Risk MDS
Debra's Story - Aplastic Anemia
MDS... Read more »
2025 Kansas City Patient and Family Conference
Event Date: Fri, 04/25/2025 - 5:30pm (EDT) to Sat, 04/26/2025 - 3:30pm (EDT)
Here are links to the conference sessions from the 2025 Kansas City Patient and Family Conference:
MDS/MPN Overlap
PNH and Current Therapies
Living Well with Bone Marrow Failure
Judy's Story of PNH
Transplant and GVHD
Aplastic Anemia
PNH Complications
High Risk MDS
2025 San Francisco - Bay Area Patient and Family Conference
Event Date: Sat, 07/19/2025 - 7:30am (EDT)
WHO SHOULD ATTEND?
The conference is open to the general public, however sessions have been designed for patients, family members and caregivers who are affected by bone marrow failure disease including aplastic anemia, PNH, MDS/AML, MPN and other bone marrow failure diseases.
HOW TO ATTEND?
The... Read more »
2025 Boston Patient and Family Conference
Event Date: Sat, 09/27/2025 - 7:30am (EDT)
CONFERENCE AGENDA - September 27, 2025
(Eastern Time Zone)
7:30 AM Registration and Breakfast
8:30 AM Conference Welcome
9:00 AM Aplastic Anemia
Low Risk MDS
10:15 AM PNH
High Risk MDS/AML
11:30 AM PNH Complications... Read more »
2025 Chapel Hill Patient and Family Conference
Event Date: Sat, 10/18/2025 - 7:30am (EDT)
CONFERENCE AGENDA - October 18, 2025
(Eastern Time Zone)
7:30 AM Registration and Breakfast
8:15 AM Conference Welcome
9:00 AM Aplastic Anemia
Low Risk MDS
10:15 AM PNH
High Risk MDS/AML
11:30 AM PNH Complications
... Read more »