Patient and Family Webinars

In this webinar, Susan Berg from the Center for Shared Decision Making at Dartmouth - Hitchcock explain what is shared decision making and how patients/caregivers can work with their medical team to make decisions regarding their healthcare.

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

In this webinar, Dr. Thomas DeLoughery from Oregon Health Sciences University (OHSU) explains what is intravascular and extravascular hemolysis, symptoms, treatment and impact for patients.

In the webinar, Dr. Courtney DiNardo from MD Anderson Cancer Center in Houston, TX explains the different mutations found in AML. She discusses how mutations impact prognosis and affect treatment decisions.

In this webinar, Dr. Robert Means Jr. from ETSU Quillen College of Medicine discusses disease and treatment symptoms associated with PRCA and how symptoms are managed. He provides an overview of PRCA. Participants will have the opportunity to ask Dr. Means questions about PRCA.

During this webinar, Dr. Jamile Shammo from Rush University Medical Center, discusses PNH and special concerns for women. Topics discussed in the webinar are: puberty, birth control, pregnancy, menopause and hysterectomy.

Dr. Amer Zeidan from Yale Cancer Center explains the different mutations found in MDS and answers the question -“Should patients with MDS ask about their cancer mutations?” He discusses how mutations impact prognosis and affect treatment decisions

In this webinar, Dr. Daniel Pollyea from the University of Colorado, discusses the recent advances in treating AML.

Proper nutrition and regular exercise are important for maintaining overall health, keeping a strong immune system, and even optimizing blood production. During this program, registered oncology dietitian, Joanna Myers-Casale from MD Anderson Cancer Center at Cooper discusses the most current recommendations for a healthy diet, provide practical dietary suggestions for bone marrow failure patients to consider before, during and after treatment, dietary suggestions to help you deal with fatigue, taste changes, nausea, loss of appetite, treatment side effects and more.

In this webinar, Dr. Thomas LeBlanc from Duke University Hospital discusses AML - how the diagnosis and treatment decisions impact patients. He provides a basic overview of AML and current treatments.

Dr. Kasiani Myers of The Cancer and Blood Diseases Institute in Cincinnati, OH discusses the causes, diagnosis, and treatment of aplastic anemia and PNH. She will also discuss the relationship between aplastic anemia and PNH and how the dual diagnosis is treated.

In this webinar, Dr. Matt Kalaycio explains what is a bone marrow transplant and the risk and benefits of a transplant for MDS patients. Patients will be able to use the information learned in this webinar to have a discussion with their treating physician if a transplant is right for them.

During this program, Dr. Bhumika Patel and Dr. Jaroslaw Maciejewski from Taussig Cancer Institute discuss research reported over the past year on the biology and treatment of aplastic anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2018 meeting in San Diego, CA. Research findings are explained along with the potential impact of this research on understanding and treating aplastic anemia and PNH.

Updates from the December 2018 convening of the America Society of Hematology on MDS. 

Joshua Sasine, MD, PhD discusses CAR-T cells and how they are used in transplant.  

Dr. Steensma explains the relationship between Agent Orange and Myelodysplastic Syndromes in this webinar.

Recorded on October 16, 2018

Dr Navada explains how healthcare professionals diagnosis and treat the overlapping conditions of aplastic anemia and MDS, outlining the decisionmaking process and key factors relevant to effective treatment. 

This webinar explains how myeloid malignancies form in plain language for patients and families. 

This webinar provides the viewer with a basic understanding of myeloproliferative neoplasms (MPNs) as well as a review of how MPNs overlap with other bone marrow failure diseases, especially MDS.