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Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

Fri, 05/24/2024 - 2:00pm (EDT) ASH 2023 Update - Aplastic Anemia and PNH ASH 2024 Update on Aplastic Anemia and P-N-H

Watch Past Webinar Recordings

Topic(s): Pediatric Bone Marrow Failure Diseases

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

Topic(s): Myelodysplastic Syndromes (MDS)

During this webinar, Dr. Pamela Becker from Seattle Cancer Care Alliance and University of Washington School of Medicine discusses the history of MDS - past, current and future thinking of the disease and treatment options.

Topic(s): Myelodysplastic Syndromes (MDS)

Dr. Marlise Luskin from Dana Farber Cancer Institute defines high-risk MDS versus low-risk MDS, impact for patients and what treatment options are available.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

During this webinar, Dr. Shyamala Navada from Tisch Cancer Institute discussesthe history of PNH - past, current and future thinking of the disease and treatment options. 

Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Elie Traer from OHSU Knight Cancer Institute in Portland, OR will discuss what is refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Traer their questions.

Topic(s): Bone Marrow Transplant

In this webinar, Dr. Saurabh Chhabra from The Cancer Center at Froedtert Hospital in Wisconsin will discuss the latest advances in preventing and treating graft-versus-host disease(GVHD). He will also provide a brief overview of GVHD.

Topic(s): Bone Marrow Transplant, Managing Your Treatment

Melhem Solh, M.D., is board certified in the subspecialties of medical oncology and hematology. Dr. Solh is a Northside Hospital Blood and Marrow Transplant and Leukemia Program physician. In 2019, Dr. Solh was recognized as among Atlanta’s Top Doctors in his specialty by Castle Connolly.

In this webinar, Dr. Melhem Solh from The Blood and Marrow Transplant Group of Georgia will discuss what is GVHD, how it is diagnosed, signs and symptoms, treatment options and how patients can manage the diagnosis.

Topic(s): Bone Marrow Transplant

In this webinar, Dr. Melhem Solh from The Blood and Marrow Transplant Group of Georgia will discuss what is GVHD, how it is diagnosed, signs and symptoms, treatment options and how patients can manage the diagnosis.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Jonathon Cohen from Winship Cancer Institute of Emory University will discuss relapsed CLL- what causes patients to relapse and how to treat relapsed disease. Participants will have the opportunity to ask Dr. Cohen questions.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Matthew Davids will discuss the advances in treating CLL. He will also provide a brief overview of the CLL diagnosis.

Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Timothy Pardee from Wake Forest Baptist Health will discuss the challenges associated with treating AML in older adults and what treatment options are available.

Topic(s): Managing Your Treatment

In this webinar, Susan Berg from the Center for Shared Decision Making at Dartmouth - Hitchcock explain what is shared decision making and how patients/caregivers can work with their medical team to make decisions regarding their healthcare.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In the webinar, Dr. Casey O'Connell from USC Norris Comprehensive Cancer Center helps patients understand the most commonly used lab tests to diagnosis and monitor bone marrow failure diseases.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

In this webinar, Dr. Thomas DeLoughery from Oregon Health Sciences University (OHSU) explains what is intravascular and extravascular hemolysis, symptoms, treatment and impact for patients.

Topic(s): Acute Myeloid Leukemia (AML)

In the webinar, Dr. Courtney DiNardo from MD Anderson Cancer Center in Houston, TX explains the different mutations found in AML. She discusses how mutations impact prognosis and affect treatment decisions.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Robert Means Jr. from ETSU Quillen College of Medicine discusses disease and treatment symptoms associated with PRCA and how symptoms are managed. He provides an overview of PRCA. Participants will have the opportunity to ask Dr. Means questions about PRCA.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

During this webinar, Dr. Jamile Shammo from Rush University Medical Center, discusses PNH and special concerns for women. Topics discussed in the webinar are: puberty, birth control, pregnancy, menopause and hysterectomy.

Topic(s): Myelodysplastic Syndromes (MDS)

Dr. Amer Zeidan from Yale Cancer Center explains the different mutations found in MDS and answers the question -“Should patients with MDS ask about their cancer mutations?” He discusses how mutations impact prognosis and affect treatment decisions

Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Daniel Pollyea from the University of Colorado, discusses the recent advances in treating AML.

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