Patient and Family Webinars | Page 13 | Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

There are currently no upcoming webinars scheduled.

Watch Past Webinar Recordings

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, COVID-19

Our presenter is Carlos M. De Castro, MD, a cell therapy and hematologic malignancies specialist who sees patients at Duke Cancer Institute in Durham, NC.  Dr. De Castro is a Professor of Medicine at Duke University School of Medicine and a member of the AAMDSIF Medical Advisory Board.  

Dr. De Castro addresses the specific concerns of aplastic anemia and PNH patients related to COVID-19.  This is a pre-recorded webinar in which patients, family members and caregivers were able to submit questions to the presenter. 

Topic(s): COVID-19

Recorded 3/13/20, this webinar features two experts, Dr. Mikkael Sekeres and Dr. Isabel Schuermeyer, who discussed how patients can deal with the outbreak of COVID-19 both physically and emotionally. After their presentation, they answered questions from the live audience.

Topic(s): Managing Your Treatment

In this webinar, Cate Lockhart - Executive Director at Biologics and Biosimilars Collective Intelligence Consortium, helps patients and families understand the difference between biologic and biosimilar medications. She discusses the approval process for FDA approval and how biosimiliar medications will impact the future of treating patients.

Topic(s): Pediatric Bone Marrow Failure Diseases, Bone Marrow Transplant

In this webinar, Dr. Michael Pulsipher from Children's Hospital Los Angeles will discuss pediatric bone marrow transplant and how to optimize the best outcomes for pediatric patients after transplant. Complications can arise after transplant and Dr. Pulsipher will discuss who to protect your child's health.

Topic(s): Bone Marrow Transplant, Pediatric Bone Marrow Failure Diseases

Dr. Michael Pulsipher, MD, describes the determination for bone marrow transplant treatment in children in order to promote positive outcomes.

Topic(s): Bone Marrow Transplant

Costa Herbert, RN from Fred Hutchinson Cancer Research Center discusses the transplant process so patients and caregivers can travel the transplant journey with knowledge and confidence. 

This webinar is presented in partnership with Be the Match. 

Topic(s): Myelodysplastic Syndromes (MDS)

Dr Catherine Lai, Medstar Georgetown University Hospital Lombardi Comprehensive Cancer Center, discusses the challenges associated with treating MDS in older adults and what treatment options are available. 

Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Daniel Weisdorf from the University of Minnesota Clinical and Translational Science Institute will discuss what is a bone marrow transplant and the risks and benefits of a transplant for CLL patients.

Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. Gail Roboz from Weill Cornell, discusses the advances in MDS and AML research that was reported at the annual conferences of two major hematology/oncology organizations this summer – the American Society of Clinical Oncology (ASCO) and the European Hematology Association (EHA).

Topic(s): Aplastic Anemia

During this webinar, Dr. Phillip Scheinberg from Hospital Sao Jose, Beneficencia Portuguesa de Sao Paolo in Brazil discusses the history of Aplastic Anemia - past, current and future thinking of the disease and treatment options.

Topic(s): Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

Topic(s): Pediatric Bone Marrow Failure Diseases

During this webinar, Dr. Michael Burke from Children's Hospital of Wisconsin, will discuss refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Burke their questions.

Topic(s): Myelodysplastic Syndromes (MDS)

During this webinar, Dr. Pamela Becker from Seattle Cancer Care Alliance and University of Washington School of Medicine discusses the history of MDS - past, current and future thinking of the disease and treatment options.

Topic(s): Myelodysplastic Syndromes (MDS)

Dr. Marlise Luskin from Dana Farber Cancer Institute defines high-risk MDS versus low-risk MDS, impact for patients and what treatment options are available.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

During this webinar, Dr. Shyamala Navada from Tisch Cancer Institute discussesthe history of PNH - past, current and future thinking of the disease and treatment options. 

Topic(s): Acute Myeloid Leukemia (AML)

In this webinar, Dr. Elie Traer from OHSU Knight Cancer Institute in Portland, OR will discuss what is refractory/relapsed AML, how it is diagnosed, affects on treatments and what this diagnosis means for patients. Participants will have the opportunity to ask Dr. Traer their questions.

Topic(s): Bone Marrow Transplant

In this webinar, Dr. Saurabh Chhabra from The Cancer Center at Froedtert Hospital in Wisconsin will discuss the latest advances in preventing and treating graft-versus-host disease(GVHD). He will also provide a brief overview of GVHD.

Topic(s): Bone Marrow Transplant, Managing Your Treatment

Melhem Solh, M.D., is board certified in the subspecialties of medical oncology and hematology. Dr. Solh is a Northside Hospital Blood and Marrow Transplant and Leukemia Program physician. In 2019, Dr. Solh was recognized as among Atlanta’s Top Doctors in his specialty by Castle Connolly.

In this webinar, Dr. Melhem Solh from The Blood and Marrow Transplant Group of Georgia will discuss what is GVHD, how it is diagnosed, signs and symptoms, treatment options and how patients can manage the diagnosis.

Topic(s): Bone Marrow Transplant

In this webinar, Dr. Melhem Solh from The Blood and Marrow Transplant Group of Georgia will discuss what is GVHD, how it is diagnosed, signs and symptoms, treatment options and how patients can manage the diagnosis.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Jonathon Cohen from Winship Cancer Institute of Emory University will discuss relapsed CLL- what causes patients to relapse and how to treat relapsed disease. Participants will have the opportunity to ask Dr. Cohen questions.

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