patient
Mary Miller: Beyond Watch and Wait - A Mind, Body, Spirit Approach to Living with MDS
In 2005 at age 70, Mary Miller of Doylestown, Pennsylvania was diagnosed with MDS. Now 77, she says of her diagnosis, “My initial reaction was that I had never heard of it, so I looked it up online and scared myself half to death!”
Pamela Becker, MD, PhD
Mikkael Sekeres, MD, MS
Mikkael A. Sekeres, MD, MS has been Medical Advisory Board Co-Chair since 2004. He is currently the Physician Liaison in Hematology and Chief of the Division of Hematology at the Sylvester Comprehensive Center at the University. Previously, Dr. Sekeres was the professor of medicine, director of the leukemia program, and Vice Chair for
Richard M. Stone, MD
Dr. Stone received his MD in 1981 from Harvard Medical School, his internal medicine residency training at Brigham and Women's Hospital, and his hematology-oncology fellowship at DFCI. He has performed numerous laboratory and clinical studies on acute leukemia and related disorders, and frequently participates in grand rounds worldwide.
Kyle Malmstrom – Saved by Identical Twin, Young Aplastic Anemia Survivor Literally Brings Comfort to Others
Written by Kimberly Malmstrom
Our son, Kyle, was a normal active 11-year-old who enjoyed climbing trees, swimming, and running. He loved to run around and play with his friends. The first week of school last fall was normal for Kyle. He was excited to see friends and meet his new sixth grade teachers. However, throughout that week, he developed large bruises. Some had known causes - others did not.
Luke Gane, Aplastic Anemia Survivor and UCLA Bruin
Norma Good’s Life as an MDS Survivor: From Diagnosis to Remission
A grim prognosis
Feeling at home in the muddy water
"May we live like the lotus, at home in the muddy water.”
Judith H. Lasater, PhD
Patient Advisory Council
The AAMDSIF Patient Advisory Council (PAC) was created in 2008. Its purpose is to serve as a resource to the AAMDSIF staff in the development and review of patient education materials, programs and services. Members of the PAC include doctors, nurses, patient educators, patients and caregivers, all of whom have an interest in supporting the needs of people living with aplastic anemia, MDS, PNH or another bone marrow failure disease. Review by the PAC provides patients and their families with the full confidence that they are receiving the most accurate, reliable and up-to-date information from the Foundation.









