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The Importance of Controlling Terminal Complement Activity and Intravascular Hemolysis in Paroxysmal Nocturnal Hemoglobinuria (PNH)

Author(s): 
Hill A, Hotermans C, Pirozzi G
Primary Author: 
Hill A
Journal Title: 
American Journal of Hematology
Original Publication Date: 
Mar 2025
Bone Marrow Disease(s): 

The Path to Accessible Care: Development and Impact of Eculizumab Biosimilars for Paroxysmal Nocturnal Hemoglobinuria and Atypical Hemolytic Uremic Syndrome

Author(s): 
Jang JH, Han B, Jung J, Russo P, Kulasekararaj AG
Primary Author: 
Jang JH
Journal Title: 
BioDrugs
Original Publication Date: 
Mar 2025

Eculizumab, a humanized

Bone Marrow Disease(s): 

Heterogeneity in Health-Related Quality of Life of Patients with Aplastic Anemia: A Latent Profile Analysis

Author(s): 
Wu G, Li X, Ren X, Huang J, Zhang X, Liang T, Sun L, Hao M, Kuang Z, Li X, Zhang Q, Xu L, Zheng Y, Xie W
Primary Author: 
Wu G
Journal Title: 
Patient Preference and Adherence
Original Publication Date: 
Mar 2025

Purpose: Concerns over health-related quality of life (HRQOL) in patients with

Bone Marrow Disease(s): 

2025 San Francisco - Bay Area Patient and Family Conference

Recorded Sessions:

Nutrition for Aplastic Anemia, MDS, or PNH

Managing PNH Treatments

Advances in Aplastic Anemia

Register for the 2025 San Francisco Bay Area Patient and Family Conference
Event Date: 
Sat, 07/19/2025 - 10:30am (EDT)
Bone Marrow Disease(s): 
Conference Event Type: 
Patient and Family - Regional One Day

AAMDSIF Supports the Accelerating Kids' Access to Care Act

AAMDSIF Supports the Accelerating Kids' Access to Care Act.

On March 26, 2025, AAMDSIF joined with 212 additional patient advocacy and medical center organizations in urging members of the US Congress to pass the Accelerating Kids’ Access to Care Act.
Passage of this bill will permit faster, more thorough care, for children with complex medical conditions.

Please view the PDF below.

Allogeneic Hematopoietic Cell Transplantation in Patients With Acute Myeloid Leukemia With Myelodysplasia-Related Genetic Features: Relevance of the Genetic Underlying Category. A Retrospective Analysis on Behalf of the Acute Leukemia Working Party of the

ABSTRACT