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Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

Fri, 04/23/2021 - 2:00pm (EDT) Intimacy and Bone Marrow Failure
Tue, 04/27/2021 - 2:00pm (EDT) Haploidentical Transplant for MDS
Mon, 05/10/2021 - 11:30am (EDT) Hereditary MDS
Wed, 05/12/2021 - 2:30pm (EDT) Combination Therapies in Relapsed/Refractory AML
Thu, 05/20/2021 - 12:00pm (EDT) ASH 2020: MDS Updates

Watch Past Webinar Recordings

Presenter:
Topic: Related Bone Marrow Failure Diseases and Malignancies

In this webinar, Dr. Robert Means Jr. from ETSU Quillen College of Medicine discusses disease and treatment symptoms associated with PRCA and how symptoms are managed. He provides an overview of PRCA. Participants will have the opportunity to ask Dr. Means questions about PRCA.

Presenter: Jamile M. Shammo, MD, FASCP, FACP
Topic: Paroxysmal Nocturnal Hemoglobinuria (PNH)

During this webinar, Dr. Jamile Shammo from Rush University Medical Center, discusses PNH and special concerns for women. Topics discussed in the webinar are: puberty, birth control, pregnancy, menopause and hysterectomy.

Presenter: Amer Zeidan, M.D.
Topic: Myelodysplastic Syndromes (MDS)

Dr. Amer Zeidan from Yale Cancer Center explains the different mutations found in MDS and answers the question -“Should patients with MDS ask about their cancer mutations?” He discusses how mutations impact prognosis and affect treatment decisions

Presenter: Daniel Pollyea, MD, MS
Topic: Acute Myeloid Leukemia (AML)

In this webinar, Dr. Daniel Pollyea from the University of Colorado, discusses the recent advances in treating AML.

Presenter: Joanna M. Myers Casale, RD, CSO
Topic: Living Well with Bone Marrow Failure, Managing Your Treatment

Proper nutrition and regular exercise are important for maintaining overall health, keeping a strong immune system, and even optimizing blood production. During this program, registered oncology dietitian, Joanna Myers-Casale from MD Anderson Cancer Center at Cooper discusses the most current recommendations for a healthy diet, provide practical dietary suggestions for bone marrow failure patients to consider before, during and after treatment, dietary suggestions to help you deal with fatigue, taste changes, nausea, loss of appetite, treatment side effects and more.

Presenter: Thomas LeBlanc, MD, MA
Topic: Acute Myeloid Leukemia (AML)

In this webinar, Dr. Thomas LeBlanc from Duke University Hospital discusses AML - how the diagnosis and treatment decisions impact patients. He provides a basic overview of AML and current treatments.

Presenter: Kasiani Myers, MD
Topic: Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

Dr. Kasiani Myers of The Cancer and Blood Diseases Institute in Cincinnati, OH discusses the causes, diagnosis, and treatment of aplastic anemia and PNH. She will also discuss the relationship between aplastic anemia and PNH and how the dual diagnosis is treated.

Presenter: Matt Kalaycio, MD
Topic: Bone Marrow Transplant, Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Matt Kalaycio explains what is a bone marrow transplant and the risk and benefits of a transplant for MDS patients. Patients will be able to use the information learned in this webinar to have a discussion with their treating physician if a transplant is right for them.

Presenter: Jaroslaw Maciejewski, MD, PhD, Bhumika Patel, MD
Topic: Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

During this program, Dr. Bhumika Patel and Dr. Jaroslaw Maciejewski from Taussig Cancer Institute discuss research reported over the past year on the biology and treatment of aplastic anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2018 meeting in San Diego, CA. Research findings are explained along with the potential impact of this research on understanding and treating aplastic anemia and PNH.

Presenter: Sudipto Mukherjee, MD, MPH
Topic: Myelodysplastic Syndromes (MDS)

Updates from the December 2018 convening of the America Society of Hematology on MDS. 

Presenter: Joshua Sasine, MD, PhD
Topic: Bone Marrow Transplant, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Joshua Sasine, MD, PhD discusses CAR-T cells and how they are used in transplant.  

Presenter: Shyamala Navada, MD
Topic: Aplastic Anemia, Myelodysplastic Syndromes (MDS)

Dr Navada explains how healthcare professionals diagnosis and treat the overlapping conditions of aplastic anemia and MDS, outlining the decisionmaking process and key factors relevant to effective treatment. 

Presenter: Amir Fathi, MD
Topic: Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

This webinar explains how myeloid malignancies form in plain language for patients and families. 

Presenter: Stephen Oh, MD
Topic: Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS)

This webinar provides the viewer with a basic understanding of myeloproliferative neoplasms (MPNs) as well as a review of how MPNs overlap with other bone marrow failure diseases, especially MDS. 

Presenter:
Topic: Bone Marrow Transplant

Steven Devine, MD walks potential donors through all of the steps to becoming a bone marrow donor from screening to donation and everything in between. This webinar was a joint project between Be the Match and AAMDSIF. 

Presenter:
Topic: Managing Your Treatment

Reducing the stress of diagnosis and treatment for rare bone marrow failure diseases is the topic of this webinar. K. Stolar explains in-depth in the full webinar, recorded 8-23-2018.

Presenter:
Topic: Pediatric Bone Marrow Failure Diseases, Acute Myeloid Leukemia (AML)

This webinar discusses the diagnosis and treatment options for pedaitric AML patients and their families. 

Presenter: Ryan J. Mattison, MD
Topic: Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr Mattison provides an overview of the two primary diagnosis tools for patients with MDS (myelodysplatic syndromes).  

Presenter:
Topic: Bone Marrow Transplant

Dr Malone explains the key issues for transplant patients during the first 100 days, focusing on Acute GVHD (graft-versus-host-disease). 

Presenter: James Foran, MD
Topic: Living Well with Bone Marrow Failure, Managing Your Treatment

Dr Foran explains how blood transfusions are used for bone marrow failure disease patients and how hematologists/oncologists deal with iron overload

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