These three experts discuss new and upcoming treatments for PNH, or Paroxysmal Nocturnal Hemoglobinuria.
Patient and Family Webinars
Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!
Register for Upcoming Patient Webinars
Fri, 05/24/2024 - 2:00pm (EDT) | ASH 2023 Update - Aplastic Anemia and PNH |
Watch Past Webinar Recordings
- Presenter: David J. Araten, MD
- Presenter: Ilene Weitz, MD
- Presenter: Satheesh Chonat, MD
- Presenter: Eunice Wang, MD
Eunice Wang, MD of Roswell Park Comprehensive Cancer Center explains the challenges of living with High-Risk MDS during this recorded session. Watch now for her presentation and the answers she gives to the attendees' questions.
- Presenter: Bart Scott, MD
This session features Dr. Bart Scott. He describes how PNH patients can live their best lives with treatments and disease management. Dr. Scott presented this session at the 2022 Buffalo Patient and Family Conference.
- Presenter: Elizabeth Griffiths, MD
This session, recorded at the 2022 Buffalo Patient and Family Hybrid Conference, answers your many questions about aplastic anemia. The featured speaker is Dr. Elizabeth Griffiths.
- Presenter: Amanda Przespolewski DO
Amanda Przespolewski, DO, Roswell Park Comprehensive Cancer Center explains Low-Risk MDS challenges and treatments for patients. Watch now to learn all about Low-Risk Myelodysplastic Syndromes.
- Presenter: Hemant Murthy, MD
Dr. Hemant Murthy provides brief transplant overview and then answers questions from participants. He tackles common and uncommon questions during this presentation, essential for all potential transplant patients and families to learn.
- Presenter: Joseph Oved, MD
Dr. Joseph Oved answers questions from participants. The webinar covers most of the most pressing questions from parents about the disease and treatment of their child with bone marrow failure disease.
- Presenter: Daria Babushok, MD, PhD
Dr. Daria Babushok discusses the significance of PNH clones in the diagnostic assessment of patients with bone marrow failure and recognized indications for starting complement inhibitor therapy in PNH (Paroxysmal Nocturnal Hemoglobinuria). The question and answer session is included after the presentation in this recording.
#PNH #paroxysmalnocturnalhemoglobinuria
In this conference session, Dr. Sharma discusses what causes severe aplastic anemia, bone marrow transplants for it and other forms of treatment when bone marrow transplants aren't the best solution.
In this two-part conference session, Dr. Brion Randolph discusses the process of transplant as a modality for treating aplastic anemia, MDS and PNH. In the second part of the session, Dr. Salil Goorha discusses possible complications and side effects of transplant as well as best practices to live well after transplant.
- Presenter: Catherine Lai, MD, MPH
In this conference session, Dr. Lai discusses how to manage MDS in adults such as how it impacts a patient's life, treatment options, and additional topics.
- Presenter: Marcin Wlodarski, MD, PhD
In this conference session, Dr. Wlodarski discusses the basics of Pediatric MDS, the differences between MDS in children and adults, and practical examples on GATA2 and SAMD9/9L.
In this conference session, Dr. Ashkay Sharma discusses what causes severe aplastic anemia, bone marrow transplants for it and other forms of treatment when bone marrow transplants aren't the best solution.
- Presenter: Bhumika Patel, MD
In this conference session, Dr. Patel discusses the review of a PNH diagnosis, complications, and treatments for the disease.
- Presenter: Swapna Thota, MD
In this conference session, Dr. Thota discusses what a patient may experience and expect when diagnosed with aplastic anemia and also what questions to ask your doctor.
- Presenter: David Beck, MD, PhD
In this webinar, Dr. David Beck, MD, PhD and Anna Cantor, MA, MS, CGC, discuss VEXAS syndrome which is a newly discovered auto-inflammatory condition affecting older adults. VEXAS syndrome often overlaps with myelodysplastic syndromes (MDS) with autoimmune disorders (AD). The question-and-answer section is included in this recording.
- Presenter: Jaroslaw Maciejewski, MD, PhD
In this webinar, Dr. Jaroslaw Maciejewski discusses the recent advances in treating PNH including treatments recently approved as well as what's in the pipeline. The recording includes the question and answer section.
- Presenter: Firas El Chaer, MD
In this webinar, Dr. Firas El Chaer discusses the diagnosis of secondary AML and how treatment options are decided. Secondary acute myeloid leukemia (AML) refers to a condition in patients who have had prior myelodysplasia (MDS), myeloproliferative disorder, or aplastic anemia that converts to myeloid leukemia. It can occur with or without treatment for those conditions, or as a result of previous exposure to a chemotherapy or radiation. Patients with secondary AML need treatment soon after diagnosis because the disease often progresses fast. This recording includes a question and answer section.
- Presenter: Elizabeth Griffiths, MD
In this webinar, Dr. Elizabeth Griffiths discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and secondary AML. These studies were presented at the American Society of Hematology (ASH) 2021 meeting in Atlanta, GA. Research findings are explained along with the potential impact of this research on understanding and treating MDS and AML. This is an advanced scientific presentation.
- Presenter: Emma Groarke, MB, FRCPath
In this webinar, Dr. Emma Groarke will discuss what is clonal evolution and potential impact for patients with aplastic anemia. She will answer questions from participants at the end of the presentation.
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