Patient and Family Webinars

In this webinar, Jennifer Lotter explains medical terms most commonly used with a diagnosis of aplastic anemia, MDS, and PNH. 

In this webinar, Jane Hamilton discusses how and why it is important for caregivers to practice self care. The entire interactive session was recorded.

In this webinar, Dr. Thota will discuss what caregivers can expect when their loved one is diagnosed- symptoms and side effects of disease and treatments.  

Program participants will learn the basics of Medicare including how and when to enroll, the different parts of Medicare, the difference between Advantage and Supplement plans and what original Medicare does not cover, eligibility, how to avoid penalties, when to qualify for disability after a blood cancer diagnosis and which part covers infusion versus which part covers pill medications. Bonnie will also discuss what is new in 2024 for Medicare. This program is a must for anyone turning 65, over 65 and getting ready to retire, already on Medicare, or a caregiver for a loved one on Medicare.  
 

Dr. Lourdes Mendez explains High-Risk MDS, or Myelodysplastic Syndromes, in detail for patients and families from the 2023 Patient and Family Conference in New Haven, CT.  Learn about this condition and treatment options by watching now.

Dr. Lai discusses the latest research presented at the 2023 EHA and ASCO meetings. This is an advanced educational presentation. 

Learn about biosimilars, biosimilar medications, and their use for bone marrow failure disease treatments from Cate Lockhart, MS, PharmD, PhD.

Learn about treatments that may be recommended for the treatment of Aplastic Anemia, excluding bone marrow transplantation, from this Patient and Family Conference Presentation. The presenter is Candido Rivera, MD.

Learn about treatments that may be recommended for the treatment of Aplastic Anemia, exclduding bone marrow transplantation, from this Patient and Family Conference Presentation. The presenter is Candido Rivera, MD.

PNH patients discuss their PNH journey by sharing their stories and answering questions from other PNH patients. 

The panelists are individuals who are living with MDS, or Myelodysplastic Syndromes.
Watch and learn from their own experiences.
#MDS  #bloodcancer 

Dr. Caroline Piatek defined PNH, how PNH is diagnosed, the available treatment options, and side effect management. She also answered questions about PNH (Paroxysmal Nocturnal Hemoglobinuria.)

Srinivas Tantravahi, MBBS, MRCP (UK) of Huntsman Cancer Institute explains which non-transplant therapies may be considered for treatment of aplastic anemia.

Paul J Shami, MD of Huntsman Cancer Institute describes the types of therapies that may be used in treating MDS, or Myelodysplastic Syndromes that do not include a bone marrow transplant.

Charles Parker, MD, AB from Huntsman Cancer Institute explains various treatments for patients with PNH, or Paroxysmal Nocturnal Hemoglobinuria, in this session. Dr. Parker explains why particular therapies are preferred as options for therapies continue to advance.

Watch this informative patient panel from the 2023 Patient and Family Conference in Salt Lake City, Utah. This session was led by Jill Gahlsford, RN, of Huntsman Cancer Institute.

Michael Pulsipher, MD, Primary Children's Hospital, explains the details of bone marrow transplant for aplastic anemia in this presentation. He explains how doctors determine when to recommend a transplant and the method of treatment.

Ryotaro Nakamura, MD, City Of Hope, explains the reasons why the specialist may recommend a bone marrow transplant for a patient with MDS. The recording includes questions from the audience.

Sagar Patel, MD, Huntsman Cancer Institute, explains this post-transplant condition and its treatments. Watch to learn more about techniques used to prevent GVHD as well as short-term and long-term complications.