Paroxysmal Nocturnal Hemoglobinuria (PNH)
PNH Foundation Announces Grants For Patients
The PNH Research and Support Foundation seeks to ensure that all PNH patients can see a PNH specialist to pursue the best course of treatment. The Foundation also helps patients with costs related to stem cell transplants in cases where this treatment is required. The PNH Foundation may be able to provide financial aid up to $3,000 per eligible, U.S.-based PNH patient with demonstrated financial need for the following costs:
Doctor Helps Determine Her Own Aplastic Anemia and PNH Diagnosis
“I was fortunate to have a medical background, because with it I was able to help diagnose myself with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and
AA&MDSIF survey on the Path to PNH Diagnosis
AA&MDSIF along with our strategic partner, the PNH Research and Support Foundation (PNHF), heard from 163 patients who shared their patient journey from an initial “disease related medical episode” or incidental finding, to document the path to the PNH expert hematologist
Clinical Trials Report for March 2015
We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH.
A Story of Hope
“Faith, hope and endurance are imperative to living a life full of possibilities with PNH,” says Emma Pritchett, who has lived with paroxysmal nocturnal hemoglobinuria
End-of-Life Resources
The Aplastic Anemia Aplastic Anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, whit
David Margolis, MD
Blood Transfusion Safety and Risks
Negative side effects of blood transfusion therapy are uncommon. Blood banks, hospitals, and health-care providers take many precautions to minimize risks before each blood transfusion.
Blood banks test each unit of blood to find out its ABO type and Rh status. In the United States, after a hospital laboratory receives a blood unit from the blood bank, the laboratory tests the unit again.
Types of Blood Transfusions
The parts of blood used in a transfusion depend on why the patient needs the transfusion.