Bone Marrow and Stem Cell Transplantation
If you have a bone marrow failure disease like aplastic anemia, MDS or PNH, and your doctor thinks you may be a candidate for a bone marrow or stem cell tra
Paroxysmal Nocturnal Hemoglobinuria (PNH)
AAMDSIF Summer Fellowship Grant Program
2017 Summer Fellowship Grantee
Gabriela Sanchez Petitto
Gail J. Roboz, M.D.
Institution
New York Presbyterian Hospital
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Gail J. Roboz, M.D. is a professor of medicine and Director of the Clinical and Translational Leukemia Programs at the Weill Medical College of Cornell University and the NewYork Presbyterian Hospital in New York City. Dr. Roboz graduated summa cum laude from Yale University and received her medical degree from The Mount Sinai School of Medicine in New York, where she was elected to the Alpha Omega Alpha Honor Medical Society and achieved the highest academic standing in the graduating class. She completed her internship in internal medicine at The Beth Israel Hospital in Boston and a
Amer Zeidan, MBBS
Institution
Yale University and Yale Cancer Center
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Amer Zeidan’s primary research interest is in myelodysplastic syndromes (MDS) and was mentored in this research area by Dr. Steven Gore and Dr. B Douglas Smith at Johns Hopkins University where he has completed a clinical hematology/oncology fellowship and a clinical research fellowship in myelodysplastic syndromes. He also earned a Master of Health Science (MHS) degree in Clinical Investigation at Johns Hopkins before recently moving to Yale University as an Assistant Professor of Medicine to reunite with Dr. Steven Gore and continue his MDS research. Dr. Zeidan has two major areas of
Patient, Educator, and Volunteer
A PNH survivor for more than 25 years, Stephen King speaks about his life as a patient and an advocate in both formal and informal roles -- and offers advice for newly diagnosed PNH patients.
“I’m an engineer with a problem-solving orientation,” says the medical software manager from Atlanta, Georgia. “After my diagnosis, I thought, now that you know what it is, let’s fix it. It took a little time to sink in that there was no quick fix, and I had to learn more about it.”
Early Diagnosis, Treatment and Emphasis on Self-Advocacy
Jamie Lam - PNH Patient Jamie Lam Resumes Favorite Sport
I realized something wasn’t right when I was out of breath from simply walking up a hill to get to class during my senior year in college. I had been an active fencer since high school, and it didn’t make sense that walking up a hill would give me so much trouble. I visited my doctor after graduation, and I was put in the hospital the next day.
Antonio Maria Risitano, MD, PhD
Institution
University of Naples
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
In 2008 Dr. Risitano received a grant for the research project, "Genetic Fingerprint of Complement and Complement-related Genes in PNH: Relationship with Pathophysiology, Clinical Manifestations (including Thrombosis) and Response to Eculizamab PNH Foundation." We recently caught up with Dr. Risitano and asked how the grant helped him add to the understanding of bone marrow failure disease and where his current research is. The grant contributed to allowing Dr. Risitano to perform research that has unraveled novel mechanisms of disease in PNH. Risitano and his team were first able to
Bridget Casey – PNH Survivor and Scholarship Recipient Uses Her Faith To Help Others
"I discovered that I might not live to my 40th birthday."
Alani tells how he has become his own best advocate
“I never even had a cavity before I was diagnosed with PNH, plenty of denial later, I now live my life with PNH in it and don’t let PNH run my life!”
I lead an ordinary life, a healthy life. My name is Alani and this is my story.
Valeria Santini, MD
Institution
University of Florence
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Valeria Santini is an Associate Professor of Hematology at the University of Florence Medical School in Florence Italy, where she received her degree in Medicine and Postgraduate diploma in hematology (cum laude). She worked as an EORTC fellow in experimental hematology from 1988 to 1991 at the Dr. den Hoed Kliniek, Erasmus University, Rotterdam. In 1999 she worked in the Department of Leukemia at MD Anderson Cancer Center, University of Texas, Houston. Her scientific interests and publications are focused on maturation induction and therapeutic targeting of epigenetics modifications, myeloid