Bridget Casey – PNH Survivor and Scholarship Recipient Uses Her Faith To Help Others
"I discovered that I might not live to my 40th birthday."
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Alani tells how he has become his own best advocate
“I never even had a cavity before I was diagnosed with PNH, plenty of denial later, I now live my life with PNH in it and don’t let PNH run my life!”
I lead an ordinary life, a healthy life. My name is Alani and this is my story.
Valeria Santini, MD
Institution
University of Florence
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Valeria Santini is an Associate Professor of Hematology at the University of Florence Medical School in Florence Italy, where she received her degree in Medicine and Postgraduate diploma in hematology (cum laude). She worked as an EORTC fellow in experimental hematology from 1988 to 1991 at the Dr. den Hoed Kliniek, Erasmus University, Rotterdam. In 1999 she worked in the Department of Leukemia at MD Anderson Cancer Center, University of Texas, Houston. Her scientific interests and publications are focused on maturation induction and therapeutic targeting of epigenetics modifications, myeloid
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The Nurse’s Role in Preparing Patients for Stem Cell Transplantation
(excerpted from Thomas’ Hematopoietic Stem Cell Transplantation, 5th Edition)
Kellie Day, Debono Scholarship recipient
Kellie was diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells -
Shyamala Navada, MD
Institution
Mount Sinai Medical Center
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Dr. Navada is an assistant professor in the Tisch Cancer Institute at the Icahn School of Medicine at Mount Sinai in New York City. She attended medical school at the University of Illinois at Chicago. Subsequently, she did an Internal Medicine Residency at the University of Michigan in Ann Arbor prior to completing a hematology/oncology fellowship at Mount Sinai. She is currently completing a Masters of Science in Clinical Research in the graduate school at Mount Sinai. Her primary clinical and research interests are myelodysplastic syndromes (MDS) and acute myeloid leukemia (AML) in the
"PNH is a Part of Me" - Anta Sene finds that acceptance leads to hope
My name is Ndeye Anta Sene. I am 22 years old and live in Maryland. I was born in Senegal, in West Africa and in December 2007 came to the United States by myself at age 16 due to medical issues.
H. Joachim Deeg, MD
Institution
University of Washington and Fred Hutchinson Cancer Research Center
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Joachim Deeg, MD is a member of the Fred Hutchinson Cancer Research Center in Seattle, Washington and professor of medicine at the University of Washington. He is also a member of the AA&MDSIF Medical Advisory Board.
Amy E. DeZern, MD, MHS
Institution
Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Dr. Amy DeZern is a hematologist and medical oncologist at the Sidney Kimmel Comprehensive Cancer Center and is an Assistant Professor of Oncology and Medicine at the Johns Hopkins University School of Medicine. She received her medical degree in 2005 from the Johns Hopkins University School of Medicine and her Master in Clinical Investigation (M.H.S.) from the Johns Hopkins Bloomberg School of Public Health. She completed residency training in internal medicine as well as fellowships in medical oncology and hematology at Johns Hopkins. Dr. DeZern sees patients at the Sidney Kimmel