Because patients need help in different ways, we offer a variety of support services. From the patient/family HelpLine and support networks to live conferences, online classes and volunteer events, our aim is to positively impact as many lives as we can. Our community members contribute to that goal by sharing their own inspirational Stories of Hope, supporting each other's need to stay positive and motivated.
Diseases like aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells
MDS classification systems divide MDS into subtypes based on the results of blood and bone marrow bone marrow: The soft, spongy tissue inside most bones.
A correct diagnosis is essential to getting the right treatment - a complicated problem for a rare disease for which there is no single test. Because doctors see so few MDS cases, they need to conduct a variety of tests to determine what the patient’s disease is and is not.
To understand what is causing your symptoms and low blood counts, your doctor will start with a detailed medical history. Your doctor may ask:
The symptoms of MDS, also known as Myelodysplastic Syndromes Myelodysplastic Syndromes: (my-eh-lo-diss-PLASS-ti
MDS, or Myelodysplastic syndromes Myelodysplastic syndromes: (my-eh-lo-diss-PLASS-tik SIN-dromez) A group of di
Doctors can’t identify a specific cause in 9 out of 10 MDS cases. These are called “de novo” MDS, meaning arising without a known cause.
Two dramatic new films that vividly depict what it’s like to live with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the b
When the federal government is handing out money, it’s all too common for rare diseases to be overlooked since, by definition, they affect far fewer people. But December was a good month for our community. The U.S.