Myelodysplastic Syndromes (MDS)

Telemedicine, also known as telehealth is becoming a daily medical standard practice used by healthcare professionals throughout the world. Formally defined, telemedicine is the use of telecommunications technology, by medical practitioners, to remotely evaluate, diagnose and treat patients (GlobalMed). This is made possible by the use of a variety of applications and services that include using two-way video services, email, smart phones, wireless tools, and other forms of telecommunications technology.

What Services Can Be Provided By Telemedicine?

We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH. These clinical trials (also known as research studies) were obtained from www.clinicaltrials.gov, the federal web site that presents information on clinical trials worldwide. To narrow down your search criteria, use the advanced search feature found on the home page.

This article describes some of the most common types of research articles published in medical journals. Medical journals publish many types of articles not discussed here. A comprehensive list is available from the National Library of Medicine.

Research articles can be primary or secondary. A primary research article describes the design, methods, and results of a study. A secondary research article is a review of at least two primary research articles.

Primary articles

Fear of treatment side effects is common after a diagnosis of aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marro

The Internet has made medical information more accessible than ever before.  People with serious illnesses like aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-u

As a result of numerous medical and scientific advancements, public health initiatives and implementation of best practices for health and wellness, people are getting older, and living longer.

We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose related to aplastic anemia, MDS, or PNH. These clinical trials (also known as research studies) were obtained from www.clinicaltrials.gov, the federal web site that presents information on clinical trials worldwide. To narrow down your search criteria, use the advanced search feature found on the home page.

Myelodysplastic Syndromes Myelodysplastic Syndromes: (my-eh-lo-diss-PLASS-tik SIN-dromez) A group of disorders where the bone

In 2006 the Institute of Medicine issued a report recommending that every cancer patient receive an individualized survivorship care plan that includes guidelines for monitoring and maintaining their health. In response to that report, many groups have now developed various types of "care plans" to help improve the quality of care of survivors as they move beyond their cancer treatment.  We realize that our organization represents three rare diseases, one of which is considered a cancer-- MDS. The survivorship care plan is applicable to all of our patients.  

Patient-centered care has become a central goal within the healthcare industry. Physicians are continuously working together with their patients in enhancing their relationship in order to make sure their patients are not only heard, but also feel comfortable with the care they are receiving. An example of an initiative that is meeting this criteria involves the emergence of Patient-Centered Medical Home (PCMH).