Leigh has dedicated more than a decade to serving patients, families, and loved ones in the rare bone marrow failure disease sector for AAMDSIF. In this role, her reach spreads across the nation to points across the globe. Leigh helps coordinate all of the AAMDSIF Patient & Family Conferences, webinars and support groups as well as providing direct assistance via the Helpline and Chat. Her previous experience includes working as a patient advocate for individuals with developmental disabilities. She currently holds an Associate of Arts in Psychology and is currently working on a Bachelor of Science in Psychology from University of Maryland Global Campus. As a a cancer survivor, Leigh understands the life changing phase of diagnosis, the life threatening phase of treatment and the life long phase of living with cancer.
Leigh Clark
Position / Title
AAMDSIF Patient Educator
Physician Status
Other pages on our site that mention Leigh Clark:
- Podcast Episode - Pediatric Nurse Finds her Way through Aplastic Anemia Treatment
- Podcast Episode - MDS and Keeping Hope - Donna's Story
- Podcast Episode - Long, Hard, Road to Diagnosis - Shaquilla's Story
- Podcast Episode - In Treatment for PNH: Shane's Story
- Podcast Episode - FDA Approval of PiaSky for Patients with PNH
- Podcast Episode - Recent FDA Approval of Danicopan for Patients with PNH
- Podcast Episode - Athletic Service Member Conquers Aplastic Anemia and MDS with Transplant
- Podcast Episode - Conquering PRCA: a conversation with Ron Duncan, Patient Survivor
- Podcast Episode - Hepatitis-Associated Aplastic Anemia with Dr. Roma Rajput
- Podcast Episode - Brian Anderson Explains Life, Treatment, and Surviving MDS
- Podcast Episode - Evan's Life is Turned Upside Down by Diagnosis of PNH
- Podcast Episode - Approval of Fabhalta (iptacopan), Oral Medication for Patients with PNH
- Podcast Episode - FDA approval of Tibsovo with Dr. Amir Fathi
- Podcast Episode - The Importance of Getting Second Opinion
- Podcast Episode - Living with PNH: Understanding the Family Medical Leave Act
- Podcast Episode - Understanding The Americans with Disabilities Act, for Patients
- Podcast Episode - How to Manage Chemo Brain with Dr. Jorg Dietrich
- Podcast Episode - COVID-19 And Vaccines For Patients - with Dr. Veronica Dioverti Prono
- Podcast Episode - What is a Clinical Trial? With Olga Rios, RN, of the NHLBI
- Podcast Episode - Dealing with Fatigue, with Christina Cline, RN
- Podcast Episode - Intermediate Risk MDS with Dr. Swapna Thota
- Podcast Episode - Diagnosing MDS, with Dr. Joshua Zeidner
- Podcast Episode - Blood Clots in Patients with PNH, with Dr. Maxim Norkin
- Podcast Episode - Treating AML in Older Adults, with Dr. Timothy Pardee
- Podcast Episode - Transplant for Older Patients with Dr. Nandita Khera - 2022
- Webinar - Living with MDS: A Patient Panel
- Webinar - Ask the MDS Expert
- Drug - Decitabine and Cedazuridine
- Drug - Pegcetacoplan
- Basic page - AAMDSIF Staff
- Webinar - A Candid Conversation with Caregivers
- Group - Cleveland (OH) BMT Support Group
- Group - Hershey (PA) BMT Support Group
- Group - Athens (GA) Support Group
- Patient Chronicle - A Remarkable Response in a Clinical Trial
- Basic page - Patient Advisory Council
