Topic(s):
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presentation Date:
Sun, 12/06/2020 - 7:00pm (EST)
Join AAMDSIF's Leigh Clark for a panel discussion with two longer-term PNH patients, Marlena Connor and Jessi Hackney. Marlena and Jessi talk about their experiences as patients, what they wish they'd knowns when they were being diagnosed, what resources are important to them and how patients (and caregivers) can connect with others affected by PNH.