Patient panel discussions are a chance to meet some of the inspiring patients, caregivers and parents who are dealing with a
bone marrow failure
bone marrow failure:
A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be…
disease. Panel discussions are a bit different from our regular educational webinars so please plan to participate via the Q & A window.
This is a great webinar for people diagnosed with PNH or those who are providing care to someone with the disease. We extend a special invitation to newly diagnosed patients to join us to learn more about living with the disease and to sign up for our PNH support group emails.
As always, our panelists cannot provide you with medical advice and we encourage you to ask your treating
hematologist
hematologist:
(hee-muh-TOL-uh-jist) A doctor who specializes in treating blood diseases and disorders of blood producing organs.
or
oncologist
oncologist:
(on-KAH-luh-jist) A doctor who specializes in the treatment and prevention of cancer.
about your specific health needs.