Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

Watch Past Webinar Recordings

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Presenter(s)
Filippo Milano, MD, PhD
During this webinar, Dr. Filippo Milano will discuss cord blood transplant and its role in treating blood cancers and hematological disorders. He will discuss the unique benefits of cord blood as a stem cell source, recent advances in transplantation techniques, and strategies to…

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Topic(s)
Aplastic Anemia
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
In this webinar, Sondos Khattab, Registered Dietitian, will discuss practical tips for managing treatment-related challenges, food safety, and making informed nutrition choices to support overall health. Questions can be submitted in advance at help@aamds.org.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Jamie L Koprivnikar, MD

Dr. Jamie Koprvinikar discusses the signs and symptoms of PNH, current diagnostic approaches, available treatment options, and the latest advances in patient care. This session was recorded at the 2026 AAMDSIF New Brunswick Patient and Family Conference.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)

Dr. Virian Serei discusses how bone marrow failure is diagnosed, including the tests and evaluations used to receive a diagnosis of of aplastic anemia, myelodysplastic syndromes (MDS), or paroxysmal nocturnal hemoglobinuria (PNH).

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Xiaoyi Chen, MD, PhD

Drs. Xiaoyi Chen and Payal Sojitra discuss diagnosis approaches, key differences and treatment considerations for Lower-Risk MDS, Higher-Risk MDS, and MDS/MPN Overlap. The session was recorded live at the 2026 AAMDSIF New Brunswick Patient and Family Conference.

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD

Dr. Srinivasa Samikommu discusses bone marrow transplant, the transplant process, how doctors determine if it may be right for a patient and what you as a patient need to consider before moving forward with a transplant. The session was recorded at the 2026 AAMDSIF New Brunswick…

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Sumithira Vasu, MD
During this webinar, Dr. Sumithira Vasu will discuss the diagnosis, treatment, and impact of transplant-associated thrombotic microangiopathy (TA-TMA). After the presentation, there will be a question-and-answer session. Questions can be submitted in advance to help@aamds.org.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Presenter(s)
Sioban Keel, MD
Dr. Sioban Keel discusses inherited disorders, genetic testing, how these disorders are diagnosed, and their impact on treatment decisions and care.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Anna Halpern, MD
Dr. Anna Halpern discusses the signs and symptoms of aplastic anemia, current diagnostic approaches, available treatment options, and the latest advances in patient care.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bart Scott, MD

Dr. Bart Scott discusses the signs and symptoms of PNH, current diagnostic approaches, available treatment options, and the latest advances in patient care.

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Topic(s)
Bone Marrow Transplant
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Rachel B. Salit, MD
Dr. Rachel Salit provides an overview of transplantation for myeloproliferative neoplasms (MPN), including Myelofibrosis, when a transplant may be recommended, the transplant process, potential risks and benefits, recovery, and long-term follow-up.

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Topic(s)
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Anna Halpern, MD

Dr. Anna Halpern discusses how leukemic transformation is identified, what it means for prognosis, and how patients and their healthcare teams can navigate treatment decisions.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bart Scott, MD

Dr. Bart Scott provides an overview of aplastic anemia, myelodysplastic syndromes (MDS), myeloproliferative neoplasms (MPN), and paroxysmal nocturnal hemoglobinuria (PNH). He explains the diagnostic tests and criteria used to make an accurate diagnosis.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Naveed Ali, MD
Dr. Naveed Ali provides an overview of transplantation for myelodysplastic syndromes (MDS), when a transplant may be recommended, the transplant process, potential risks and benefits, recovery, and long-term follow-up.

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Topic(s)
Aplastic Anemia
Presenter(s)
Sioban Keel, MD

Dr. Sioban Keel discusses the signs and symptoms of aplastic anemia, current diagnostic approaches, available treatment options, and the latest advances in patient care.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Akriti Jain, MD
In this webinar, Dr. Akriti Jain discusses research most relevant to patients reported over the past year on the biology and treatment of Lower Risk MDS. These studies were presented at the American Society of Hematology (ASH) 2025 meeting, and their findings will be explained…

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Topic(s)
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Jayastu Senapati, MBBS, MD, DM
In this webinar, Dr. Jayastu Senapati discusses the diagnosis of secondary AML from MDS, treatment options available to patients and symptom management. Questions were asked by the online audience, and Dr. Senapati answered them clearly.

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Topic(s)
Aplastic Anemia
Presenter(s)
Phil Scheinberg, MD
ASH (American Society for Hematology) recently released new clinical practice guidelines for the diagnosis and management of aplastic anemia for both pediatric and adult patients. In this webinar, Dr. Scheinberg discusses the new guidelines and their impact for patients. For more…

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Topic(s)
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Taha Bat, MD
In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment for Aplastic Anemia and PNH. The studies were presented at the American Society of Hematology (ASH) 2025 meeting. These findings will be explained…

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Presenter(s)
Phil Scheinberg, MD
In this webinar, Dr. Phillip Scheinberg will discuss the latest research presented at EHA about aplastic anemia and PNH. This is an advanced presentation. There will be a Q & A session and questions can be submitted in advance to help@aamds.org.

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