In this webinar, Dr. David Sallman discusses the diagnosis of MDS and MPN, treatment options available to patients and symptom management.
Patient and Family Webinars
Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!
Register for Upcoming Patient Webinars
There are currently no upcoming webinars scheduled.
Watch Past Webinar Recordings
Topic(s): Bone Marrow Transplant
In this recording, Dr. Anurag Singh discusses transplant and potentials complications such as GVHD and treatment options. Recording includes the question-and-answer session.
Topic(s): Aplastic Anemia
- Presenter: Taha Bat, MD
In this recording, Dr. Taha Bat discusses the diagnosis of aplastic anemia along with treatment options for patients. Recording includes the question-and-answer session.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
- Presenter: Srinivasa Reddy Sanikommu, MD
In this recording, Dr. Srinivasa Sanikommu discusses PNH complications that can impact a patient - extravascular hemolysis, intravascular hemolysis, Budd-Chiari Syndrome and blood clots. Recording includes the question-and-answer session.
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)
In this recording, Dr. Jesus Gonazlez Lugo discusses the diagnosis of High Risk MDS and the evolution to AML along with treatment options for patients. Recording includes the question-and-answer session.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
- Presenter: Srinivasa Reddy Sanikommu, MD
In this recording, Dr. Srinivasa Sanikommu discusses current thinking on PNH and therapies that are available to patients. Recording includes the question-and-answer session.
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment
In this recording, Dr. Furha Cossor discusses living with bone marrow failure and fatigue management. Recording includes the question-and-answer session.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
Judy talks about her PNH journey from diagnosis, treatment decisions and moving forward.
Topic(s): Acute Myeloid Leukemia (AML)
In this webinar, Drs. Fadi Haddad and Jayastu Senapati discuss the diagnosis secondary AML from MDS, treatment options available to patients and symptom management.
Topic(s): Bone Marrow Transplant, Aplastic Anemia
- Presenter: Amy E. DeZern, MD, MHS
In this webinar, Dr. Amy DeZern discusses the latest in transplantation and GVHD for aplastic anemia. The presentation will include information on clinical trials available to patients considering a transplant. The recording includes the question and answer session.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
- Presenter: Bhumika Patel, MD
In this recording, Dr. Bhumika Patel discusses what is new in PNH and current treatment options available to patients.
Topic(s): Myelodysplastic Syndromes (MDS)
- Presenter: Catherine Lai, MD, MPH
In this recording, Dr. Catherine Lai discusses MDS and how patients can also be diagnosed with MPN's. Her presentation discusses the treatment options available to patients and resources.
Topic(s): Myelodysplastic Syndromes (MDS)
- Presenter: Brian Ball, MD
In this recording, Dr. Ball Brian discusses low risk MDS and current treatment options.
Topic(s): Aplastic Anemia, Living Well with Bone Marrow Failure
Debra shares both her experiences and how she maintained hope with Aplastic Anemia and its treatment.
Topic(s): Myelodysplastic Syndromes (MDS)
- Presenter: Parveen Shiraz, MD
In this recording, Dr. Parveen Shiraz discusses transplant for MDS and potentials complications such as GVHD and treatment options.
Topic(s): Aplastic Anemia
- Presenter: Phil Scheinberg, MD
In this recording, Dr. Phillip Scheinberg discusses aplastic anemia and current treatment options available to patients.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
- Presenter: Phil Scheinberg, MD
In this recording, Dr. Philip Scheinberg discusses PNH complications that can impact a patient - extravascular hemolysis, intravascular hemolysis, Budd-Chiari Syndrome and blood clots.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia
- Presenter: Taha Bat, MD
In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment on Aplastic Anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2024 meeting and their findings will be explained along with the potential impact of this research on understanding and treating aplastic anemia and PNH. This is an advanced scientific presentation. At the end of the presentation, there will be a question and answer session. Questions can be submitted in advance at help@aamds.org.
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)
- Presenter: Akriti Jain, MD
In this webinar, Dr. Akriti Jain discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and AML. These studies were presented at the American Society of Hematology (ASH) 2024 meeting and their findings will be explained along with the potential impact of this research on understanding and treating MDS and AML. This is an advanced scientific presentation.
Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS)
In this webinar, Dr. Alejandro Marinos Velarde discusses the risk factors that can cause post transplant relapse along with treatment and management of relapse. He answers questions from the live audience as well.
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