Webinars

This webinar features parents and guardians of pediatric patients who have been diagnosed with a bone marrow failure disease like aplastic anemia, MDS or PNH.  The panel includes parents and guardians at all stages of their journeys, from diagnosis to treatment to survivorship. 

In this webinar, Jane Hamilton discusses the benefits of respite care for caregivers. Learn tips and tools to hire a respite worker, how to partner and share the care.

In this webinar, Joanna Myers Casale, RD, CSO, discusses how the foods patients choose can help them cope with side effects, such as loss of appetite, nausea, vomiting, diarrhea, chewing and swallowing difficulties, and taste changes. The recording includes questions from attendees.
 

In this webinar, Dr. Phillip Scheinberg discusses research most relevant to patients reported over the past year on the biology and treatment on Aplastic Anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2021, European Hematology Association (EHA) 2022 and American Society of Clinical Oncology (ASCO)2022.  Research findings are explained along with the potential impact of this research on understanding and treating aplastic anemia and PNH. This is an advanced scientific presentation.
 

Dr. Sandrine Niyongere will gives a brief MDS overview and then answer questions from participants. This interactive webinar recorded patients asking questions that are answered directly by a MDS Expert. #MDS #myelodysplasia #bloodcancer

Patient panel discussions are a chance to meet some of the inspiring patients, caregivers and parents who are dealing with a bone marrow failure disease.  Panel discussions are a bit different from our regular educational webinars so please plan to participate via the Q & A window.  This is a great webinar for people diagnosed with MDS or those who are providing care to someone with the disease.  We extend a special invitation to newly diagnosed patients to join us to learn more about living with the disease and to sign up for our MDS support group emails.  As always, our panelists cannot provide you with medical advice and we encourage you to ask your treating hematologist or oncologist about your specific health needs. 

Dr. Mikhail Kogan, Medical Director of the GW Center for Integrative Medicine, discusses the differences between integrative, holistic and functional medicines and how they can be used to treat patients. The end of the webinar features questions from patients in the audience.

In this webinar, Dr. Jadee Neff will discusses how genetic testing used in the diagnostic process, how it can help identify possible causes of disease that inform decisions regarding appropriate therapies, identify potential donors for bone marrow transplant, and potential risk for comorbidities, She  answers questions from participants at the end of the presentation.

Patients may learn about a variety of treatments for aplastic anemia.  Sometimes the preference will be a non-transplant treatment. This webinar, which includes questions from the live audience at the end, describes the types of treatments and why each may be considered.

Program participants will learn the basics of Medicare including how and when to enroll, the different parts of Medicare, the difference between Advantage and Supplement plans and what original Medicare does not cover, eligibility, how to avoid penalties, when to qualify for disability after a blood cancer diagnosis and which part covers infusion versus which part covers pill medications.  This program is a must for anyone turning 65, over 65 and getting ready to retire, already on Medicare, or a caregiver for a loved one on Medicare.  

Megan Pailler, PhD, Assistant Professor of Oncology,  provides clinical assessment and intervention services to oncology patients on both an inpatient and outpatient basis. Her area of focus has been the hematological services, including leukemia, lymphoma, and bone marrow transplant, providing interventions for patients throughout the spectrum of transplant as an integrated member of the treatment team. Her research interests have focused on developing novel, empirically-based interventions for young adult cancer patients.

Has a bone marrow transplant been suggested as a treatment for aplastic anemia, MDS, or PNH?  George Chen, MD, explains why your specialists may recommend this treatment, along with risks and benefits.  He takes questions at the end of the recording from the attendees.

These three experts discuss new and upcoming treatments for PNH, or Paroxysmal Nocturnal Hemoglobinuria.

Eunice Wang, MD of Roswell Park Comprehensive Cancer Center explains the challenges of living with High-Risk MDS during this recorded session.  Watch now for her presentation and the answers she gives to the attendees' questions.

This session features Dr. Bart Scott. He describes how PNH patients can live their best lives with treatments and disease management. Dr. Scott presented this session at the 2022 Buffalo Patient and Family Conference.

This session, recorded at the 2022 Buffalo Patient and Family Hybrid Conference, answers your many questions about aplastic anemia. The featured speaker is Dr. Elizabeth Griffiths.

Amanda Przespolewski, DO, Roswell Park Comprehensive Cancer Center explains Low-Risk MDS challenges and treatments for patients.  Watch now to learn all about Low-Risk Myelodysplastic Syndromes.