In this webinar, Kylie Chen, Registered Dietitian, discusses common nutrition challenges and evidence-based strategies to improve nutritional status and learn easy nutrition swaps.
Patient and Family Webinars
Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!
Register for Upcoming Patient Webinars
| Tue, 07/29/2025 - 2:00pm (EDT) | Marching Through MDS: Veterans and the Battle Against Myeloid Neoplasms |
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Watch Past Webinar Recordings
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS)
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
- Presenter: Bart Scott, MD
Bart Scott, MD, explains various treatments for PNH, or Paroxysmal Nocturnal Hemoglobinuria. He discusses possible side effects and treatment methods.
Advances in Aplastic Anemia from the San Francisco Bay Area Patient and Family Conference (Jul 2025)
Topic(s): Aplastic Anemia
- Presenter: Sally Arai, MD
In this webinar, Dr. Sally Arai discusses the latest in treating aplastic anemia and what is on the horizon.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
- Presenter: Bart Scott, MD
Learn from Dr. Bart Scott in this recorded session. Find out all the symptoms and science for a diagnosis of PNH, or Paroxysmal Nocturnal Hemoglobinuria to answer your most pressing questions.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia
- Presenter: Judith Shizuru, MD
Dr. Judith Shizuru explains how Transplantation can be used to treat Aplastic Anemia and PNH. She discusses how GVHD, or Graft VS Host Disease, can occur after transplant as well.
Topic(s): Pediatric Bone Marrow Failure Diseases
The Pediatric Hematology/Oncology Experts answer questions from the audience at the 2025 San Francisco Bay Area Patient and Family Conference.
Topic(s): Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS)
- Presenter: Jessie Alexander, MD
- Presenter: Rajni Agarwal, MD
Which bone marrow failure diseases can be inherited? Why? How?
Find the answers to these questions and more in this recording from the 2025 San Francisco Bay Area Patient and Family Conference.
Topic(s): Pediatric Bone Marrow Failure Diseases
- Presenter: Jennifer Kim, MD
Dr. Jennifer Kim explains how patients with bone marrow failure diseases can make the transition from treatment by pediatric specialists to treatment by adult specialists.
Topic(s): Pediatric Bone Marrow Failure Diseases
- Presenter: Emily Ach, PhD
Dr. Emily Ach explains what patients can expect after the diagnosis of Aplastic Anemia, MDS, or PNH.
Topic(s): Pediatric Bone Marrow Failure Diseases, Myelodysplastic Syndromes (MDS)
- Presenter: Marcin Wlodarski, MD, PhD
Dr. Marcin Wlodarski explains diagnosis and treatment for pediatric patients with MDS, or Myelodysplastic Syndromes.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
- Presenter: Satheesh Chonat, MD
Dr. Satheesh Chonat explains the presentation of PNH, or Paroxysmal Nocturnal Hemoglobinuria, in children as well as its treatment.
Topic(s): Aplastic Anemia
What do you go through to treat of Aplastic Anemia? What is life like afterwards? What kind of life can you lead? Kinsey describes her journey in this recording from the 2025 San Francisco Bay Area Patient and Family Conference.
Topic(s): Aplastic Anemia
- Presenter: Anju Goyal, MD
Dr. Anju Goyal explains Aplastic Anemia and answers questions from the audience.
Topic(s): Myelodysplastic Syndromes (MDS)
- Presenter: David Sallman, MD
In this webinar, Dr. David Sallman discusses the diagnosis of MDS and MPN, treatment options available to patients and symptom management.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
- Presenter: Srinivasa Reddy Sanikommu, MD
In this recording, Dr. Srinivasa Sanikommu discusses PNH complications that can impact a patient - extravascular hemolysis, intravascular hemolysis, Budd-Chiari Syndrome and blood clots. Recording includes the question-and-answer session.
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)
In this recording, Dr. Jesus Gonazlez Lugo discusses the diagnosis of High Risk MDS and the evolution to AML along with treatment options for patients. Recording includes the question-and-answer session.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
- Presenter: Srinivasa Reddy Sanikommu, MD
In this recording, Dr. Srinivasa Sanikommu discusses current thinking on PNH and therapies that are available to patients. Recording includes the question-and-answer session.
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment
In this recording, Dr. Furha Cossor discusses living with bone marrow failure and fatigue management. Recording includes the question-and-answer session.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
Judy talks about her PNH journey from diagnosis, treatment decisions and moving forward.
Topic(s): Bone Marrow Transplant
In this recording, Dr. Anurag Singh discusses transplant and potentials complications such as GVHD and treatment options. Recording includes the question-and-answer session.
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Thank you to our sponsor Taiho Oncology.