Webinars | Aplastic Anemia & MDS International Foundation Return to top.

Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

Wed, 02/28/2024 - 2:00pm (EST) Advances in Treating Pediatric Aplastic Anemia Advances in Treating Pediatric Aplastic Anemia
Wed, 03/06/2024 - 2:00pm (EST) Aplastic Anemia Patient Panel Aplastic Anemia Patient Panel
Thu, 03/07/2024 - 2:00pm (EST) PNH Patient Panel P-N-H patient panel
Fri, 03/08/2024 - 2:00pm (EST) MDS Patient Panel M-D-S Patient Panel
Wed, 04/10/2024 - 10:00am (EDT) 2023 ASH Update - MDS and AML

Watch Past Webinar Recordings

Topic(s): Bone Marrow Transplant

In this webinar, Dr. Annie Im presents the latest research and treatment of GVHD.  

Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

In this webinar, Dr. Nathan Handley discusses what is integrative medicine and how it can be part of your treatment plan. He answers audience questions in the recording.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Managing Your Treatment

In this webinar, Dr. Thomas LeBlanc discusses the shared decision process and why it is important for patients to be part of their healthcare team. 

Topic(s): Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Abhay Singh will discuss the treatment management of low blood counts for patients with low risk MDS. You can submit questions in advance by emailing help@aamds.org.

Topic(s): Myelodysplastic Syndromes (MDS)

In this webinar, Drs. Kelly Bolton and Eytan Stein will discuss CCUS (clonal cytopenia of undetermined significance) and the connection to MDS.  You can submit questions in advance by emailing help@aamds.org

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In this webinar, Jennifer Lotter explains medical terms most commonly used with a diagnosis of aplastic anemia, MDS, and PNH. 

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In this webinar, Jane Hamilton discusses how and why it is important for caregivers to practice self care.  The entire interactive session was recorded.

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

In this webinar, Dr. Thota will discuss what caregivers can expect when their loved one is diagnosed- symptoms and side effects of disease and treatments.  Questions can be submitted in advance by emailing, help@aamds.org. There will be time for questions and answers at the end of the presentation.

Topic(s): Living Well with Bone Marrow Failure

Program participants will learn the basics of Medicare including how and when to enroll, the different parts of Medicare, the difference between Advantage and Supplement plans and what original Medicare does not cover, eligibility, how to avoid penalties, when to qualify for disability after a blood cancer diagnosis and which part covers infusion versus which part covers pill medications. Bonnie will also discuss what is new in 2024 for Medicare. This program is a must for anyone turning 65, over 65 and getting ready to retire, already on Medicare, or a caregiver for a loved one on Medicare.  
 

Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. Lai discusses the latest research presented at the 2023 EHA and ASCO meetings. This is an advanced educational presentation. 
 

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment

Learn about biosimilars and their use for bone marrow failure disease treatments from Cate Lockhart, MS, PharmD, PhD.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

Dr. Cecilia Y Arana Li explains which patients may be more likely to develop bone marrow failure diseases and why.

Topic(s): Aplastic Anemia, Myelodysplastic Syndromes (MDS)

Dr. Nandita Khera and Dr. Hemant Murthy explain transplant for aplastic anemia and MDS treatment.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Dr. David Dingli explains options for PNH patients.

Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

This panel features Mazie Tsang, MD; Melody Griffith, MSW, LMSW, and Jodi Clark

Topic(s): Acute Myeloid Leukemia (AML)

Dr. Aref Al-Kali describes non-transplant treatment options for patients with MDS, or Myelodysplastic Syndromes.

Topic(s): Aplastic Anemia

Learn about treatments that may be recommended for the treatment of Aplastic Anemia, excluding bone marrow transplantation, from this Patient and Family Conference Presentation. The presenter is Candido Rivera, MD.

Topic(s): Myelodysplastic Syndromes (MDS)

In this webinar, Jennie Vagher, certified genetic counselor, discusses hereditary or genetic predisposition to MDS. Jennie is an expert in rare cancer predisposition syndromes.

Topic(s): Myelodysplastic Syndromes (MDS)

The panelists are individuals who are living with MDS, or Myelodysplastic Syndromes.
Watch and learn from their own experiences.
#MDS  #bloodcancer 

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