Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

There are currently no upcoming webinars scheduled.

Watch Past Webinar Recordings

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Topic(s)
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Taha Bat, MD
In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment for Aplastic Anemia and PNH. The studies were presented at the American Society of Hematology (ASH) 2025 meeting. These findings will be explained…

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Presenter(s)
Phil Scheinberg, MD
In this webinar, Dr. Phillip Scheinberg will discuss the latest research presented at EHA about aplastic anemia and PNH. This is an advanced presentation. There will be a Q & A session and questions can be submitted in advance to help@aamds.org.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
In this webinar, Dr. Jan Bewersdorf discusses the latest research presented at EHA and ASCO on MDS and AML. This is an advanced presentation.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Lacey Williams, MD
In this recording, Dr. Lacey Williams discusses the diagnosis of MDS/MPN overlap and the treatment options available to patients.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD
In this recording, Dr. Srinivasa Sanikommu discusses complications that can occur during a PNH patient's lifetime and the treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Shauna describes her journey with MDS, or Myelodsplastic Syndromes, in this recorded session from the 2025 Chapel Hill Patient and Family Conference.

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Topic(s)
COVID-19
Presenter(s)
Brandi Reeves, MD
In this recording, Dr. Brandi Reeves discusses the diagnosis of aplastic anemia and the treatment options available to patients.

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Topic(s)
Bone Marrow Transplant
Presenter(s)
Jeremy A. Meier, MD, PhD
In this recording, Dr. Jeremy Meier discusses the journey of a transplant (before, during and after) and potential management of GVHD.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Lacey Williams, MD
In this webinar, Dr. Lacey Williams discusses the diagnosis of High Risk MDS and treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Jose Martinez, MD, PhD
In this webinar, Dr. Jose Martinez discuesse the diagnosis of Low Risk MDS and treatment options available to patients.

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Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
Presenter(s)
Jorg Dietrich, MD, PhD
In this webinar, Dr. Jorg Dietrich will discusses the diagnosis of brain fog/chemo brain and how patients can manage this symptom of disease and its treatments.

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Topic(s)
Bone Marrow Transplant
Presenter(s)
Corey Cutler, MD, MPH, FRCPC
In this webinar, Dr. Corey Cutler discusses advances in transplant and treating GVHD, or Graft Versus Host Disease.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD
In this webinar, Dr. Srinivasa Sanikommu discusses the management of PNH and complications experienced by patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Richard M. Stone, MD
In this recording, Dr. Richard Stone discusses the diagnosis of MDS/MPN overlap and the treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Jacqueline Garcia, MD
In this recording, Dr. Jacqueline Garcia discusses the diagnosis of high risk MDS and the treatment options available to patients.

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Topic(s)
Aplastic Anemia
Presenter(s)
Nikolai Podoltsev, MD, PhD
In this recording, Dr. Nikolai Podoltsev discusses the diagnosis of aplastic anemia and the treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Andrew Brunner
In this recording, Dr. Andrew Brunner discusses the diagnosis of low risk MDS overlap and the treatment options available to patients.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD
In this webinar, Dr. Srinivasa Sanikommu discusses the diagnosis of PNH and current treatments available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Christin DeStefano, MD, FACP
Drew A. Helmer, MD, MS
In this webinar, Drs. Christin Destefano and Drew Helmar discuss the link between military toxic exposure and hematologic malignancies.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
In this webinar, Kylie Chen, Registered Dietitian, discusses common nutrition challenges and evidence-based strategies to improve nutritional status and learn easy nutrition swaps.
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