35th Anniversary Podcast Series: Marissa Amuso, Aplastic Anemia, BMT
Marissa Amuso, patient.
Podcast Episodes
Our patients, families, and caregivers have been asking us for more ways to learn about rare blood cancers and bone marrow failure diseases. So, we're coming to you today, thanks to generous support from individual donors and our corporate partners.
35th Anniversary Podcast Series: Dr. Charles Parker
Charles J. Parker, M. D., is Professor of Medicine in the Division of Hematology and Hematologic Malignancies, Department of Internal Medicine, at the University of Utah, the Huntsman Cancer Institute and the George E. Whalen VA Medical Center, Salt Lake City, UT.
Sarah was ready for a great career, but the diagnosis changed her plans... temporarily!
Imagine being ready to launch your career, then being thrown off course by both aplastic anemia and PNH, all at once! Listen to Sarah's story of her path to survivorship here.
30 years survivorship! Listen to Norma's story of aplastic anemia and MDS here:
30 years ago, Norma was diagnosed with aplastic anemia, followed by MDS. How did she make it? Discover this great story in her own words!
Kat Edmonds knows patients, but more importantly, she coaches them on how to make the best decisions for their own lives. Find out more here:
Kat hears patients ask: "I have this bone marrow failure problem ... how is this going to affect me and loved ones? What does this mean for my life?" Discover how Kat helps walk patients through diagnosis, treatment, and survivorship.
Busy, happy retirement shaken by MDS - AML: Shirley's story of survivorship!
From a sunny, lively retirement to MDS then AML? That was Shirley's life! After treatment in a Clinical Trial, she is in remission, still playing the accordion! This is her story.
Is sleep that important for bone marrow disease patients? Discover Dr. Mekonnen's insights here:
Can sleep affect your treatment for bone marrow failure diseases? Dr. Asefa Mekonnen explains why sleep is important for patients as well as when to tell your doctor that you aren't sleeping well. Check this out!
"What do I do now?" Nancy Corbitt, Nurse Navigator shares her wisdom
Nancy has worked with hundreds of patients in her career, guiding patients through decision-making and treatment. Discover her best advice for bone marrow failure patients and caregivers in this podcast.
Patrice led the charge in her treatment for aplastic anemia
Patrice banned "stinkin' thinkin'" from her mind as she began treatment for aplastic anemia. Later, she'd continue that practice during her bone marrow transplant, so she began not just surviving, but thriving! Listen to her story here.
Duane's Normal, Active Life: Disrupted by MDS, Transfusions, Treatments
Listen to Duane's story, leading to his 2009 transplant, and continuing survivorship!
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